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Certain HIV positive, but negative tests (Page 162)

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October 10th, 2017
Experienced User
I'm not feeling ok since last week. First, my neck lymph nodes started to hurt again. The pain increased day by day, and this morning I woke up with a bad sore throat. I can barely eat, since it hurts so much when I swallow. I went to the doctor, she said my tonsils are enlarged and very red.

So, it turns out that I have tonsillitis. Of course, it can happen to anyone. But I've never had tonsillitis since I was a kid. So I can tell that my immune system is being destroyed day by day. I'm tired of being sick all the time. Every time I recover from some illness, there comes another. I'm in a permanent state of illness.

Sometimes I wish I could die, so this will stop once and for all.
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replied October 10th, 2017
Experienced User
My wife just texted me, saying she's having a very bad diarrhoea. She's been spending the whole morning in the toilet. This is all my fault...

Please God, kill me already...
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replied October 10th, 2017
Experienced User
I went to the doctor and asked for a PCR DNA and RNA, which she refused to provide, because those were really expensive tests that would be given just if a person had a negaive test and had at the same time severe symptoms (Kaposis sarcoma, pcp, thrush, etc). She also refused to a CD4 count because she thought that this test means nothing and changes abruptly even in a matter of hours, without any real reason.

All of my results were perfect (as expected for a 23-year-old person) but she refered me to an Otolaryngologist for my ear, to a pneunologist and to a psychiatrist (which I am considering not to accept now, because I have read that people tend to get addicted to the medicament prescripted)

With regards to my HIV test, she told me, It would be better to take one test monthly until the year mark, because although 99.99% of people test positive by 6 months, it is better to be extra sure.
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replied October 11th, 2017
Experienced User
To all my 'hypochondriac' friends !!

The below is for people that they already did a 4th generations test on the 13 week, and the results were negative.

All of us here, including my self, we done tons of tests beyond the window periods, and everything is negative but we just can not let go!!
This is call obsession/Hypochondriasis/Depression =CHRONIC STRESS

Chronic stress can lower your immune system by increasing the cortisol levels in your body and can cause HIV related symptoms.
The only way to balance your cortisol levels is to go a see a psychiatrist and to take some antidepressants for few months.Plus working out in they gym can help a lot.

To my friend ScaredMatt: Brother, you have done tons of tests. You have to understand that with all these symptoms that you are experiencing your viral load should be sky high. For only psychological reason go a do an RNA test, and take your wife to do a 4th generation test. Again, i will stick to my theory that all these symptoms that you are going through is due to stress. From your CD4 that you provided is shows clearly that your anxiety and stress had an impact on your immune system.Also, now from reading your post, you are again fallen in to the same hole, and again you will suppress your immune system...You need to see a psychiatrist.

To my friend TheWorstOfLucks: STOP doing tests. There is nothing wrong with you. Please go and see a psychiatrist, you need to take some antidepressants for few months...By taking antidepressants you will remove your anxiety and stress, therefore you will reduce your cortisol levels in your body...therefore your immune system will get stronger.

To my friend ashyami: Brother there is nothing wrong with you or your family members, your paranoia makes you see things...Stop worrying, everyone is fine...plus bro you need to be a positive that you are fine...

TO SUM UP:
CD4 tests and RNA viral load test are two tests that people with HIV are doing together so they can monitor their illness and if the medication that they taking is working or not.
If you did a 4th generation at 6 weeks and another one at 13 weeks and both test are negative, then you are negative!
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replied October 12th, 2017
Experienced User
My situation is getting worse. I can definitely feel my lymph nodes under my ears and in my groin. I believe my armpit's nodes are swollen too, but I'm not sure though.

I feel like I am having a second round of ARS. 8 months after exposure. How is that possible? I was getting better day by day, but now it's starting all over again.
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replied October 12th, 2017
Experienced User
Hey Matt;

During my research I have never found something like a "second round of ARS", once they come they stay between 1 week and 6 months (although way milder for those who have them for several months).

I won't tell you to be relaxed because you are feeling unwell, and I agree that there must be something wrong with you, either it is phisical, mental or both. However, you should be assured with your negative status.

The reasons:

1) You have been tested for HIV with a variety of tests and after a reasonable amount of time
2) Your symptoms of "ARS" took a lot to start after your exposure
3) Your symptoms of "ARS" do not match a lot with those of HIV.

I am not telling you to put it out of your mind, because me myself am not able to do it. However, you should have a good number of reasons to think that this was just a coincidence. What if both you and your wife ate something that had a bacteria/fungus/whatever that is affecting you and that has not been found in test yet (it sounds unlikely, but not as unlikely as having HIV).

To be honest, I am getting tired of you, but not of you as a person, but of your suffering (because I really like you), it is not fair that a good man, who made a little mistake has to bear with so much sorrow.

I hope one day (soon) you will be completely certain that you are negative.

Greetings.
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replied October 12th, 2017
Experienced User
I forgot to say something that crosses my mind.

Our cases are similar in terms of risky activity (cunnilingus), but if I had had your symptoms and not mine, I would be already enjoying my life again.

Some months ago my father was diagnosed with cancer in a late stage (I don't know if I posted it here, so sorry if I had already done it), an you don't know how much I suffer knowing that the last weeks I was with him in my country I didn't give him as much love as he deserved just because I was depressed, scared and ashamed. Now I am thinking that maybe when I come back to my country he won't be there. Can you imagine how it feels? You have your beautifu wife and until now, there's no reason to believe she won't be there with you for a long time, so don't deprive her from your love. You never know when life can be taken from you or a beloved one. Kiss your wife, mother and father (in case you have them with you), grandparents, siblings, friends, pets, everybody, and live each day as if it were the last one
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replied October 12th, 2017
Experienced User
Dear WorstOfLucks,

I'm very sorry for for all the pain you've been through the last 6 months. I want o to apologize for being harsh on you several times. You are a a good kid and don't deserve this.

I've been thinking a lot about our concerns and came up with an idea. You might try this as well. What you need to do is go to the doctor and say you are sexually active and therefore you want to take PrEP. He or she will prescribe you some Anti Retroviral drug, like Truvada. PrEP is used to prevent people from being infected, so you don't need to test positive to take it.

If HIV is your problem, the anti retroviral drug will make you feel better. I know this might sound crazy, but I saw a post in one of those forums, in which the guy tested negative up to 3 months, but for some reason the doctor prescribed him AZT "to help with symptoms". The guy said he actually felt better ,even though he was still negative after 6 months. I won't post the link here, but I can email it if you want.
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replied October 12th, 2017
Experienced User
Matt;

Yours is a really good idea, I don't know how it didn't cross my mind, alhough I think I read the same post a lot of time ago.

However I have to sleep on that idea a lot.

The reason is that since this is a first world country I am sure they are going to provide me with very recent medication and I am not quite sure that I am going to stay in France for a long time (as I mentioned due to my depression I barely attend classes and when I do go, it is as though I were not there, and therefore I am doing terribly in classes, and most likely the scholarship I have will be removed and I will have to go back to my country).

By contrast in my country for peopl who suffer HIV and don't have an insurance and who are unemployed (which would be my case if going back) the HIV medication that is provided is not very different from AZT (I am exagerating but I am sure is really old medication).

Since th evirus developes resistance, I don't want to start medication that I am not sure I am going to be able to continue having, probably making the situation even worse.

However I am going to consider it.
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replied October 12th, 2017
Experienced User
Thanks, I do consider myself as a good "kid" XD.

However, the worst things happen to good people.

I forgot to mention something: Some days ago I noticed ansmall flat purple non-itching mark in the part where the neck meets the shoulders. At the moment I thought nothing of it. However, today I was watching documentals on people dying with AIDS in the 80s (I know it is not good for my psychological health) and when they started talking about Kaposis Sarcoma it rang a bell. After some research I found that a characteristic of that cancer is that when pressed hard it doesn't go white like the parts surrounding it, and voila, it didn't go white. Iam almost certain it is nothing, but, it could be something.

Today my ears have been terribly, it is like a whistle sound mixed with a fly and I remembered one ot the moredators of ZOP (read backwards) who went from HIV contration to AIDS and almost going deaf in less than 1 year. I prefer death than a disability, if I can't hear, how am Igoing to be able to find a Job in my country?

I just hope that if that in my neck is indeed Kaposi's sarcoma, I hope it advances faster than my ear infection
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replied October 12th, 2017
Hi Guys,

I think we are all in this for LONG time. I'm specially can't move on after 18 MONTHS, yes months.

No matter if you tell person to move on after 3 months, 6 months, 9 months, 12 months, 15 months, 18 months... but as long as after riskier exposure people are getting symptoms which DOES NOT go away, they will not move on.

My prospective on life now is that at least it's not a death sentence and it's manageable chronic condition.... an that's in 2017... so if someone turns out to be positive . in 2027 it may be far better then this ....

I know it's easier said then done...but can't think much further than this...
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replied October 13th, 2017
Experienced User
Into68week,

I totally understand your feelings. I would be glad to have a definitive diagnosis, even if it means having to deal with a chronic disease. The problem is that we just can't find a differential diagnosis to explain our symptoms.

I was once a very healthy person. Never got sick. I used to catch a cold like once a year (with very mild symptoms). But for the last 6 months... I don't remember the last day I felt completely ok. There'se always something with me (or with my wife, or both).

Sometimes I believe this is an unknown virus who mimics HIV symptoms. This worries me because, even if it's not HIV, but mimics ALL its symptoms, who knows what will happen to us in the long term? Will we survive? Only time can tell now.
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replied October 13th, 2017
Experienced User
By the way, if someone could share some treatment for lymph node pain, I will be grateful. I'm currently trying some of ashyami tips, with no success so far.
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replied October 13th, 2017
I have apptie problems , and white tongue , and gut problems, and peeling skin , is someone has same problems?
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replied October 13th, 2017
I think the best test someone would have work on was to find out "Based on your immune system, How long it would take for you to create antibodies that would be detected by 4th gen test for sure?"....

like taking some sort of cell from your body and run against all hiv virus and see how long it would take for that person's immune system to produce antibodies.... That would solve all window period problems....

I was in optimal health till April 2016.. it went down hill after that ..

loss of appetite.. not hungry at all and if i don't ea, i feel sick and burning from inside....

fatigue, no energy

white tounge problem, brain fog most of the time,... etc...
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replied October 14th, 2017
Experienced User
i guess no one is listening to me...What is wrong of you guys to go to a psychatrist?

You guys need profetional help.

YOU DONT HAVE HIV !!

DO NOT try to take HIV medication!

This is by far the most silly idea ever...

If you do that you will get more freaked out...

You mind is killing your body !!
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replied October 14th, 2017
Experienced User
Hey Sun;

I had a severe appetite lost during the first 2 weeks, I barely could drink milk. I also had some diarrhea, although it was just one day. I have had minor skin peeling, but it reamins until today, specially in my chin (a little area) and my right arm (an area the size of half a palm) and if I scratch them they bleed.
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replied October 15th, 2017
20 week hiv negative, I think it’s another virus .or it’s something else .
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replied October 15th, 2017
Experienced User
Congratulations Sun;

Yes, most likely it is something different from HIV.
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replied October 15th, 2017
Experienced User
Since Matt's ideas, I have been doing a lot of research and I came across this post in a forum;

Look for What happened to me HIV test after 6 months, and read the result from healthboards forum, it is the story of a man with several ARS syptoms, more or less like mine, even more severe, after a real risk and whose symptoms were relieved when using AZT but who tested negative for HIV at 6 months with every possible test. Unfortunately his thread never finishes, s we won't know what happened with him, but I would like to pick up our minds on this regards, specially Matt's.
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replied October 15th, 2017
Experienced User
Sun17,

Congratulations for your negative result. Rest assured that it won't change.

Unfortunately we've been infected with some unknown pathogen. I didn't have oral thrush, but I'm dealing with a penile candida for 4 (or 5, I'm not sure) months. I've tried every medication out there, but it's useless. I've been suffering lymph nodes swelling all over the the body as well.

I had a skin problem (folliculitis), but the doctor said it's caused by a bacteria (Staphylococcus aureus). All those problems aren't supposed to afflict immunocompetent people, so if I were to rely on symptoms, I would be 100% sure HIV positive.

Fortunately, symptoms doesn't equal to HIV. My antibody tests were negative up to 8 months. I also had to PCR (3 and 6 months), which were undetectable (that is, negative). My CD4 count is high, which is not compatible with a person with HIV.

The problem is our symptoms are real, and not "in our heads", so we will have to find the root of the problem, otherwise we won't get better.
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replied October 17th, 2017
Just my thoughts and not an advise to anyone:

1) U=U is great campaign. Overall, this would reduce stigma for HIV

2) In 1980, HIV was death sentence, In 2017 it's manageable condition... Hopefully in 10-15 years, it's just a flu shot type thing...I'm giving all my blessings to all scientists and other people who's helping with hiv cure and other stuff.

3) PreP would fight this infection spread, and more -ve people would go for pref if U=U... directly co-relating to increase use to prep type of medicine.... From one prospective, companies would make tablets like that to make more profits from non-hiv people.

4) California just reduce knowingly transmitting hiv as misdemeanor instead of felony.. big step.

5) If somehow they can reduce price of HIV medicine to $500/month even without insurance, that would be helpful for so many ppl....

6) Read article that many patent would expire in coming years, so in 5-10 years you would see so many generics even in USA.

7) we came long way from 5-6 medicine to 1 (which contains all) pill a day... Hopefully, In future, they fit some capsule in your body which releases medicine on time on a daily basis.... or may be monthly injection or something like that.

Cool HOPE for the best and prepare for the worst...
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