Medical Questions > Conditions and Diseases > Arthritis Forum

Bilateral Sacroiliitis (Page 1)

I’m a 29yr old female and diagnosed with bilateral sacroiliitis... The pain is constant and unmanageable for me. I have been continuously to a chiropractor, physiotherapist who practises acupuncture. I have also been to an osteopath. I have been on anti inflammatories and pain killers for months. I don’t sleep for more than an hour at a time, because as soon as I move the pain is enough to wake me. I use heat creams, heat packs, warm baths, ice packs, sleeping with pillows between my knees, I don’t sit for long periods, no lifting, minimal bending, I had a week of rest off work, but to not much relief. I bent over and emptied the dishwasher and almost immediately pain returned. I had some relief from the acupuncture as it releases the tense muscles I have in my lower back, buttocks and thighs, but the pain returns or the acupuncture is 'undone' with 24 hours or so... I am the process of trying to get an appointment to have CT guided cortisone injection, which I am not that keen on, (I have heard stories about infertility, its lack of effectiveness, weight gain... INFO ANYONE???) I may have to wait 3 months, so I don’t know where to turn now and until then. A feeling of hopelessness is growing in me. I’m too young for this and it is affecting my entire life. I’ve become a burden/bother to my family, boyfriend, friends, because after I struggle through a day at work I cannot manage to socialise without extreme determination and self convincing that I can which is exhausting in itself. I can’t manage to spend a few hours walking around a shopping centre or sit down in the movie theatre comfortably. Play with my puppy, do my housework etc. I cannot perform my job properly (I manage a liquor store, a lot of heavy lifting, moving, bending, kneeling which lead to my sacroiliitis). I seem to be rambling. It is so hard to get anybody to understand the pain I’m in 99% of the time; I have very little time without it... I am wondering if anybody out there has found anything to relieve their pain and discomfort. Even the tiniest 'tricks' they use for relief. Or what treatment has worked the best? I really would like to discuss this further and hear other experiences.
My true hope is that I can get back to full living/working/functioning capacity, lose the 20kg I have put on since I have had this (about 6 months), I use to be very fit and my physical job helped with that. I am hoping to have children soon, but have been told I would not comfortably and painlessly be able to carry them, And would have to be on complete bed rest for majority of a pregnancy. And I want to enjoy a pregnancy! I want to be the fun, lively, fit self I use to be. These last 6 months has changed me dramatically; I am a completely different person than I was 6 months ago. I have always suffered from depression, since I was a teenager. This is making a lot of progress and work that I had made with my depression come undone.
I’m sorry for rattling on, but I have needed to let this all out (I feel better just doing so!)
Thanks 29f, Australia
Thanks for listening/reading... Hope to hear from someone....
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First Helper dinks
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replied April 15th, 2009
Experienced User
sacroiliac condition
Hi there

I think your condition relates to allergies.
It is important to realise that the cells of every part of the body are constantly being renewed
All the power of health and healing is built into your body. Your body requires specific essential nutrients through food, exercise, sufficient sleep, pure clean water and a relatively stress free lifestyle.

Your first action should always be the restoration of your immune system by supplying the essential nutrients through food sources and nutritional supplements that are safe, without running the risk of potential adverse reactions to synthetic drugs.

Your body will repair itself, regenerate itself, restore itself, and defend itself as long as you provide your body with the right tools it requires to function correctly.

Itâspam�s not about curing disease, Nobody but you can do that. Itâspam�s about restoring the proper function of your immune system. When you supply your body with the essential and required nutrients, exercise, water, sleep and many other needs, and avoid the foods(?) you are allergic to, your body will use these resources to defend, restore and protect your immune system, bodily systems and cellular systems.
this is not about curing disease, but about restoring your health where life begins.
At the cellular level.
Your body has the ability to fight cancers and other disease very efficiently, if you supply your body with the right ingredients to function properly at the cellular level.

Every cell has the blueprint (DNA) and even a carbon copy (RNA) to produce the perfect cell and most organs renew themselves every 2 or 3 years.
If, after that time, you still have the same health issues you are making the same mistakes and have failed to provide what your body needs so it can restore the proper function to your immune system.

Healhy cells can not survive in a toxic environment. They need to mutate and become anaerobic. This means they can survive in a toxic environment.
It is called cancer.
Allergies cause a toxic environment because of a lack of nutrients.
Your digestive system does not work in an allergic reaction and if you have the allergic reaction every day, your immune system is up the pole.

Vitamin C and Zinc are the 2 main fuels the immune system needs. Plus an avoidance of anything you might be allergic to.

The most allergenic foods are; Dairy products.
wellknown for being the causal factor in Arthritis, Osteoporosis, Heart disease and a list of other health problems as long as your arm.
Avoid anything that comes out of a cow!!!
Take a Vitamin C supplement (at least 3000mg) and a zinc supplement (at least 50 mg) and eat heaps of vegies, avoid meats, in particular, deli meats because of the nitrate and nitrites, they are poisonous, avoid soda's and cola's, sugar and anythig else that is acid forming. You need alkaline foods to restore the PH, Find those on the net.

Good luck

Kinetico
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replied April 24th, 2009
Sacriliitsis...You are singing my song
I am 28 and have had the same for 4 months. I have been in my bed 95% of the time. I ahve been off work, and unable to take care of my two children(thank God for my husband). I have had two guided cortisone injections and a third in another 5 days. I has given about 30% pain reduction. I TOTALLY understand what you are going through!! I have has a spinal tap, 5 MRI's a CT scan, a nuclear bone test and a million blood tests, I have seen neurologists, Spine specialists, spine therapists, artritis doctor. All within the 4 months. I am exausted and quickly losing hope that I will find out the cause or get out of pain 100%. I too want my life back! I want to play with my children and be a mom again.
I went through all kinds of pain meds, nothing got rid of my pain. Morphine helped me the best although you have to be careful no to become addicted to it. I was recently given a tens unit for pain. I am now off all drugs!!! It doesnt help 100% but it makes a HUGE difference. I put the probes on the area it hurts just enough to feel them, they should not contract, just vibrate the skin. This stops the signal of pain getting to my brain and it has helped a ton. I am returning to work in a week. Not sure how I will do but I need to get a part of my life back, sitting only causes more depression.
This pain, is so severe. I have two kids, I had one natural and can tell you this pain is worse than childbith because it doesnt end. The actual pain is comparable but you know there is an end to childbirth, this never goes away. My pain got sop bad there were days I wanted to give up, I was tired of the pain and couldnt take it anymore. If you find out how to take care of this, PLEASE respond to me! I hope you are better now than when you wrote this! Take care and research all you can and go to as many doctors as you can. One might know what to do.

Bhicks.
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replied July 2nd, 2009
Did anyone ever tell you that you had Anklosing Spondolyitis? I'm sure they would have of tested you for the gene marker HLAB27. If you do have this condition TNF blockers help somewhat. Thet are Remicade, Humaria, and Enbrel. My husband suffers every day with this and he has been on remicade for about 5 years. Maybe you can inquire good luck and God bless.
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replied July 28th, 2009
3 years with sacroiliitis
I am a 31 year old female, and my sacroiliitis started about 3 years ago (when I was 28 ). After years of tests I finally got the diagnosis about 1 year ago. As someone who has broken a lot of bones in my life, the pain is 1000 time worse than the pain of broken bones - that is the only way I can come up with to describe it.

For a while, I was on 75mg extended release diclofenac tablets, which I took twice a day. They worked really well for several months, but eventually they just stopped working and the pain came back even worse than before. My doctors then switched me to the highest available dosage, with is a 100 mg extended release tablet that I take once a day. This worked amazingly well, and I got my life back for about 1 year, and have been essentially pain-free. About 2 weeks ago, I started to feel the pain gradually coming back, and it is increasing every day, so I know that my miracle pills are going to stop working soon. I don't know what I'll do next. About 10 months ago (during my "remission") I started a new job where I take a train to work everyday and then walk about a mile to my office. Driving isn't really an option, because of where the office is located. I don't know what I'm going to do. I guess I should be grateful that I had a whole year without pain, but I already feel myself panicking because I know that is all going to go away soon, and I'll be crippled again.

As for the child-bearing situation - I'm afraid I don't have any advice. I've never wanted children, so when my doctors told me that pregnancy would be a problem, it didn't bother me.

Why haven't there been more studies? Why isn't there a cure for this?
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replied August 9th, 2009
Living with Sacroiliitis
I have to tell you all that this sounds all so familiar and although I feel terrible for you all, but I am going through the same thing and it makes me feel better to know that others are suffering the symptoms that I am. I am a 47 year old single mother, and this started from an injury at my workplace. The pain has been terrible, and I have been dealing with this for 7 months already! I have had a series of epidural injections which help a little bit but only for a short time. Next week they are trying Facet injections. UGH!!! I have my good days and bad days, and hate being on painkillers!!! My poor daughter has had to hear me cry at night in my bed with agonizing pain! And whoever said it was worse than childbirth is right!!! I have a very high tolerance for pain but when this flares up, it is unbearable!!! I just want to go back to work and be normal again. Shopping forget it I have to use a cane wherever I go, but sometimes I just refuse. I am still in pain management and also see a physiotherapist. I have to have another MRI because it gets so bad I think that there has gotta be something else wrong. I went to physical therapy and that set me back even further instead of helping, although it felt good while I was there but afterwards I was in soooo much pain so I had to stop. I wish I could give you a success story but unfortunately as I lay here in my bed in pain I only wish for something that will help us all. Oh and by the way since I am on workmans comp, I hope none of you will have to go through the hell that I have. They only treat Sacroiilitis as a moderate disability, and they don't give you crap!!! It has been horrible for me but I cannot go back to work because my job duties require me to do all the things I can't. I want to go back more than anything, and can't live in pain and worry everyday about money and taking care of my child. All I could do is pray they find something that actually helps! Good luck to you all!
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replied January 7th, 2010
HELP FOR SACROLILITIS
I am sorry to hear that all of you are going through the same thing that I have been for about 1 1/2yrs now. Yea have all the pain killers, muscle relaxers etc. down the Rizotomys nerve burns. I have another appointment Jan 11, 2010. I'm going to discuss something I seen on the news with Dr Abure, it said it's called SR Rizotomy where they run a tiny wire up through the nerves of the SR..I'm hoping they know something of this because yes the pain is very unbearable and pain meds only smooth it out a little and your right if you move a tiny bit when your asleep the pain awakens you and you get no sleep. I have (2) grandaughters and I'm missing out a lot with both of them. My life as I knew it has come to screatching hault. But none of this started until after I had a failed back surgery for incontinence. Crazy Doctor really messed me up and left town on alot of people. Well I'm rambling on my best to you all and if anyone does find a way for relief please let us know.
renamae
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replied January 28th, 2010
I am also 29 and I've been dealing with this pain for 14 years. I have been to numerous docs and have been told it is everything from a pulled muscle to a blown disc. It took ME going to school myself to finally get a proper diagnosis (I'm studying to be a chiro). I've started treatments with interferential (electric stim) and I've had great success. I am also going to be using a TENS unit like a previous poster mentioned once I can get my hands on one. I'm curious if mine is caused by ankylosing spondylitis or something else. I'll be getting some additional testing run to find out. I want to avoid corticosteroids for as long as possible.

I want to let you know that I had no problems with pregnancy. In fact, my SI pain almost disappeared toward the end (I think due to the relaxin in my system) and I had no complications with a normal med-free delivery and I now have a happy, healthy 9-month-old daughter. I wish you good luck and I most definitely "feel your pain."
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replied February 2nd, 2010
I am 25 years old man working in Sowfware Company. I am suffering from this disease from last one and half year.
Sitting on chair and doing work for at least 8 hrs a day increases my pain.
I started YOGA last year and it helps to keep me some % away from the pain for the day. But if I don't do the YOGA then pain increases. Last week I had nuclear bone test and Doctor told me the disease in primary stage, please let me know if there is any solution for this.
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replied March 18th, 2010
Wow, I am not alone. I had a lumbar fusion 4 years ago and have had this pain ever since. Total I have been in pain sonce I was 23. I have piriformis syndrome (fixable I hope) and bilateral sacroilitis. I am in a lot of pain pretty much everyday. I am also 29. If I do feel OK one wrong move could put me back in massive pain. I have no idea how to fix this. I will keep you informed and thank you all for the great ideas.
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replied March 26th, 2010
Hi guys, So i'm in the same boat as you!!! I'm 26, female, and been living with Bilateral Sacroilitis for 3yrs now. I was diagnosed using a contrast-enhanced MRI scan. I see a Rhematologist every 6 months. It was bad at first. But it can be controlled. HERE'S HOW I MANAGE: >Exercise. Light and often. Stretch. >Pilates or just simple core muscle exercises to strengthen the girdle. A stronger core will mean less stress on the SI (sacro-iliac) joints when twisting/lifting. >Cycling and swimming to keep the joints moving. >Minimal running to reduce impact to the joints. >Through the rough times ("flare-ups"), no alcohol, rest and anti-inflammatory medication. I know more powerful treatment (pump infusion therapy/steroids) may be required in the future, but I'll try and hold that off for as long as possible. I have good days, bad days; good weeks, bad weeks. I'll never be 100% all of the time and sometimes the pain is pretty bad. However sometimes its alright. I think it's about putting yourself first, knowing what helps or hinders, and adjusting your lifestyle. I'm going snowboarding next month, want to try some big jumps. But if I have to take it easy, i guess i'll just have to check out the scenery and the spa instead!
Good luck and keep positive everyone.'
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replied March 26th, 2010
Wear well cushioned shoes too! Have lots of different pairs! Feet=Legs=Back
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replied May 16th, 2010
AnkolisingSpondilitis
Sorry to hear everyones stories. I Recently found out that i have Ankolosing Spondylitis (AS), which explains the non stop pain i've been in for over 2 years now, i'm currently 21(male). It has really stopped me from doing things i love and made being social an even harder task. I've found smoking pot to help somewhat with pain and the self loathing but who wants to be high all day? Not really a long term solution. I spent the first 9 months without using any pain killers, but eventually gave them a shot, they still work for me most days, but its a bit hard being baked on pain killers when you're studying to become a biochemist. Two whole years i was neglected by every medical professional i told my story to, so often people thought i was a hypochondriac, but now i feel so justified, though that doesn't make up for the pain i've had to live through. I used to tell people about my pain, but i eventually realized that it changed the way alot of people thought of me... not in a particularly positive way either. I've come to accept my condition and stop it from getting in the way of me enjoying my life. Pain is pain, and it's something i've accepted. I know that most of you who have already told your stories are in more pain than i, and that makes me sad... for someone to be experiencing a similar thing to me but to a harsher degree makes me want to go solve all of our problems. I have faith in science, unfortunately we have to live through our conditions until more profound discoveries are made, but it will happen, and future generations will be spared from this unnecessary suffering.
Just a side note on Corticosteroids, i was taking prednesolone (or similar) for one week because of an reaction i was having to any drug i put in my body, over that week, i lost 8kg of muscle. If i knew the side effects i never would have touched them. Make sure you ask you're doctors about side effects with any medication they are recommending. For someone with a low body weight and muscle mass, also a host of injuries etc... this was definatly a bad idea, and it could have been avoided.

Well thanks for letting me share, I encourage people to vent here, it's nice to be able to let it out without having someone judge you, or atleast think your being judged. Good night world.
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replied June 1st, 2010
Hi to all of you:

RE: Trigger Point Pain in Muscles.

It sounds to me as if most of you are experiencing MUSCLE pain rather than 'bone pain.'

I don't doubt the reality or severity of your pain, but to treat any pain properly it is helpful to diagnose or define it properly. You need to know that "Sacroiliitis"--just like the word "Osteoarthritis"--is a MISNOMER, because 'itis' refers to inflammation, and there is no inflammatory process going on in your cases based on what most of you have said.

"Osteoarthritis" is an old, out-dated, misleading definition because it implies that there is 'inflammation' of the bone and/or the joint; however, 20 or so years ago, studies found that there is NO inflammation of the bone in cases of 'osteoarthritis.'

Regarding 'sacroiliitis?' Odd that 'sacroiliitis' isn't included in my 30 year old medical dictionary. I DID, however, find when I googled it that the Mayo clinic defines 'sacroiliitis' as an 'inflammation' of the sacroiliac joint.

ODD, since 'inflammation' by definition includes the following:
SYMPTOMS:
--Pain.
--Heat (area of skin feels hot to the touch).
--Redness of area.
--Swelling of area.
--Disordered function.
--Headache.
--Loss of appetite.
--General feeling of discomfort.
--Migration of Leukocytes to the surrounding tissues.

PATHOLOGICAL CHANGES:
[I'm skipping over a bit, it's too long]
"Each type of cell has a particular role to play in the inflammatory process. The MONOCYTES and MACROPHAGES are great scavengers for all kinds of dead tissue [WHAT dead tissue???] The POLYMORPHS are active in autolysis and the destruction of bacteria [WHAT bacteria????], and the LYMPHOCYTES form a barrier against the spread of irritants and probably form the fundamental tissue from which the healing scar develops [WHAT scar??] These cells appear in the inflammatory conditions at stated intervals, and in a definite order or succession; the macrophage, for instance, antedating the polymorph by a week [WHAT week???] and the lymphocyte by several days [WHAT "several days???]."

Does this SOUND like the ongoing chronic pain condition you have? NO. So what you have is not an "-ITIS"--an inflammation of the sacroiliac joint. What you have is, I believe, severe chronic TRIGGER POINT pain in your muscles.

But you can find out for yourselves. There's an excellent book entitled "The Trigger Point Therapy Workbook" by Davies.

To quote Davies: "Your sacroiliac can be "put out of joint" by trigger points at the base of your spine. This is because tension in the deep spinal muscles twists the sacrum, the broad bone that joins the spine to the pelvis, causing a slight disarticulation." "[It] can be extremely disabling, restricting all motion--front, back or sideways. Your back typically feels stiff as a board. Turning your body is next to impossible."

Does this describe your pain? If so, then take a look at Davies' book.

ONE OTHER THING: Muscle pain can be a result of, or aggravated by, an acidifying diet. Most Americans have diets that are too acidifying. Sugar and white flour are acidic. Soft drinks are extremely acidic. High acidity in the blood compromises muscle function and often results in muscle pain. Chances are that you need to get on a more ALKALIZING diet. See 'saveourbones.com' as a starting place.

Good luck to all of you! I hope you find the answers you seek.
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replied March 4th, 2012
SI joint pain
You've never felt this pain?
I believe it to be nerve pain. Although I get muscle pain and spasms secondary to this. I have had this pain since an injury November 1999. I have hypermobility of the pelvis which creates too much movement at the SI joints. (SI joint dysfunction) This in turn irritates the nerves that run along that area.

Massage is a temporary relief, but due to chronic spasm from the nerves, the relief is never long enough. I have also had temporary relief from chiropractic. I know I need to exercise more, but that's difficult because it always hurts. I am a nurse and always on my feet. My career is also my curse. I take all the appropriate supplements and eat fairly well. HYDRATION, is also very important.

IT IS REAL PAIN. I feel for all of my fellow sufferers. Keep your chin up. I have started a new herbal anti-inflammatory. I was taken off all NSAID's in December after a GI bleed that landed me in ICU and transfusion of 5 units of blood. I was on celebrex and taking quite a bit of ibuprofen with it, when the celebrex wasn't working any longer.

My doc gives me radio frequency neurotomies L4-L5-S1, which help with the radiating pain to my feet. I can only have these twice a year. I had another doc give me an epidural in the SI joint. I was pain free for 3 months. My next appt. I am going to ask for the RF (radio frequency) in the SI joints. I think it is the best possible solution for this pain. AVOID surgery, it can create more trouble.

If you have never felt this type of chronic pain, it may be hard for you to understand it. Yes it is depressing as well. Good luck to everyone. Add flaxseed powder or oil to your diet, a natural anti inflammatory. Costco sells the powder in large bags.
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replied March 4th, 2012
SI joint pain
You've never felt this pain?
I believe it to be nerve pain. Although I get muscle pain and spasms secondary to this. I have had this pain since an injury November 1999. I have hypermobility of the pelvis which creates too much movement at the SI joints. (SI joint dysfunction) This in turn irritates the nerves that run along that area.

Massage is a temporary relief, but due to chronic spasm from the nerves, the relief is never long enough. I have also had temporary relief from chiropractic. I know I need to exercise more, but that's difficult because it always hurts. I am a nurse and always on my feet. My career is also my curse. I take all the appropriate supplements and eat fairly well. HYDRATION, is also very important.

IT IS REAL PAIN. I feel for all of my fellow sufferers. Keep your chin up. I have started a new herbal anti-inflammatory. I was taken off all NSAID's in December after a GI bleed that landed me in ICU and transfusion of 5 units of blood. I was on celebrex and taking quite a bit of ibuprofen with it, when the celebrex wasn't working any longer.

My doc gives me radio frequency neurotomies L4-L5-S1, which help with the radiating pain to my feet. I can only have these twice a year. I had another doc give me an epidural in the SI joint. I was pain free for 3 months. My next appt. I am going to ask for the RF (radio frequency) in the SI joints. I think it is the best possible solution for this pain. AVOID surgery, it can create more trouble.

If you have never felt this type of chronic pain, it may be hard for you to understand it. Yes it is depressing as well. Good luck to everyone. Add flaxseed powder or oil to your diet, a natural anti inflammatory. Costco sells the powder in large bags.
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replied June 5th, 2010
I was diagnosed with sacroiliitis 7 1/2yrs ago after many years of going to the doctors with pain and being told there was nothing wrong but it had got to the point where i was limpimg pretty bad and was in absolutely awful pain before they really looked into what was wrong. I was finally diagnosed after it was found on a x ray but by this point i was virtually unable to walk

My consultant performed a injection in the joint which sent my body into spasm and didn't work and then i had a joint fusion but unfortunately this didn't work either, the only relief i got was after 6wks complete rest, i was able to walk for a day before the symptoms came back full force. I live on morphine and find once i've had a little bit of movement, my legs do not work, i have been in a wheelchair now for 7 yrs which is the only way i can get out of the house. I've tried all sorts to try and get my life back on track but nothing seems to have worked, i'm not a mardy person or someone who can't handle pain but
this has completely changed my life!!!!

I feel for anyone who is suffering from this condition has its very much misunderstood, i'd try anything to have my life back and every 6 months i search the internet for any more news on treatments, has my consultant has told me that mine was so bad what its now permanent and there is no more they can do unless there are advances re treatments which he said he'd be happy to try on me if they become available.

My advice to any new suffers is take every treatment options because if it left untreated, has was the case with me for a long time, permanent damage can be done.
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replied July 13th, 2015
My heart breaks for you. I am so sorry and sad to read of your experience with sacroiliitis. I found your post while wondering whether anyone has ever had to require a wheelchair due to sacroiliitis, since I fear I may eventually require one, if I'm unable to get it properly treated. Mine is the result of a lower lumbar back fusion and started on the left side and has progressed to my right side. I've tried steroid injection & RFA, but both have failed to provide long-lasting relief. I'm now waiting for a consultation with a surgeon to discuss fusing my left SI joint and how that might impact my right side.
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replied July 29th, 2010
Hello Everyone,

I was diagnosed to sacroiliitis today after going through more than a year of pain, 3 months of physical therapy, and 2 MRI's. I have unilateral or mono sacroiliitis on my left side, and have been limping for the past month. I cannot even imagine going through this with on both sides of my sacroiliac joints- I'm so sorry for those of you that are going through this right now. In a way I feel fortunate that I have figured out what this is at a relatively early stage. I am determined to find a way to fix this as I am only 24 and do not want to live this way for the rest of my life. A few things I am going to be trying. For one, I read that depending on what causes the pain, certain exercises can help. This website has pictures and descriptions of stretches and strengthening you can do: http://www.sportsinjuryclinic.net/cyberthe rapist/back/buttocks/sacroiliacr/stretchin g.php I am also planning on taking Lyprinol (an all natural anti-inflammatory). In addition to these things I will be doing more research and possibly seeing some specialists. I will try to post anything I find, in hopes it may help you too. Good luck and best wishes to you all.

-Katie
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replied August 6th, 2010
Hi all its very sad reading about so much pain and suffering but I am also suffering from same pain and misery for last 9 years I also suffer from bilateral sacroiliitis(RA factor negative & HLAB-27 negative) and its too much pain to be dealt with for a human being I m 31,male and this thing struck me after a major accident sustaining severe back injuries I have three episodes of sacroiliitis which immobilizes me totally for about an year but in between I got two years of normal life and then it comes back and it starts all over again it is a set pattern 2 years of pain then 2 years ok and then again same thing happen. I tried every thing allopathy, homeopathy, ayurvedic, panchkarma, yoga and naturopathy.
I tried indomethacin sr,paracetamol,diclofenac sodium,muscle relaxants but to no avail. Relief is temporary but side effects are horrible then I switched to ayurvedic panchakarma which gave flexibility, mobility and strength to my SI joint. and also make me able to do stretching and some yoga asans and kept me fit for 2.5 years then again sacroillitis repeated and for last 11 months I am bed ridden this time also I tried panchkarma but with no results now I am trying niyog therapy which has given me 35-40% percent relief and mobility.
My experience is panchkarma, yoga, streching and niyog therapy has given me more relief then any thing else some times ice application also helps. But don’t worry guys there are lot of sufferers like us may be some day medical science will get some cure for sacroiliitis.
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replied August 9th, 2010
hi friends,

it seems sombody has penned down my sufferings exactly. i tell you, these doctors dont understand the kind of agony we go through.peopl start calling us hypochondriac.since 1 1/2 yr i am suffering with constant pain in my back.my stamina to do work went down drastically.had put on around 15 kg weight. in bone scan mettabolic bony dissorder was been revealed for which doctor said its vit d defficiency and overweight. had calciroll 60000 iu, ecery week for 2 months, but no relief.i m 29, with a one daughter. my life had become hell as people including my husband also used to think may be its psychological.i had been crying with no body to reach any diagnosis. after too much of running around and too much of net surfing, my digital xray was done which revealed b/l sacrolitis.and a USG REVEALLED complex cyst in ovary which is 2.5* 2.1cm.i dont know how to handle both the situations. i can understand my friends how sad and bad this suffering is. i wanted to plan for second child but now i want to be back fit aand spend a healthy life with my daughter who looks forward to me to play,run and smile. suggest me please what should i do now to avoid and accept..which treatment to be avoided and what would be the best.

god bless you all. take care till then waiting for some cure.
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replied November 16th, 2010
Dear Aussie 29F,
I'm so sorry about your pain! My best friend was recently diagnosed with sacroiliitis, and I have never seen her like this. Someone needs to petition Congress to start doing some research for a cure! I have no personal advice, just some from our Great Physician in the Bible, where it says that God will put "none of these diseases" on those who follow His commandments, and some of that includes dietary rules...such as not eating any unclean/scavenger meats (like pig) or any unclean/scavenger seafood (like crab, shrimp & lobster). Maybe try fasting for a few days with just plenty of water, then start eating only fresh, raw fruits & veggies & whole grains for a while. I read a post on another site where this has kept a fellow sufferer pain-free for 2 years.
God bless, and best wishes to you all.
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replied March 29th, 2012
Thanks. But being ex-military I've had more friends killed due to this book than I care to discuss.

God won't fix my back from my motorcycle accident and I'd rather not embarrass you so please politely keep your Santa references to yourself.
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replied March 9th, 2011
Saccroiliitis help
I have suffered with this for over 10 years. My original arthritis doctor told me I'd likely be in a wheel chair by 50. I was a divsion I college athlete and this was a hard pill to swallow. I tried everything the doctors gave me (viox, etc.), nothing worked. I am now 43 and back playing sports competitively. There are no cures for this disease so don't get your hopes up, there are only ways to keep it at bay and there will still be flare ups. No doctors told me, it was purely by chance that I found out how to stop the pain. I was taking fish oil for high triglycerides. After about 4 months the pain stopped. That was it, fish oil! It needs to be a very good quality fish oil as some will make your other joints ache. I take GNC triple strength once a day. When I have a flare up I will take Aleve until I get it back under control. Anyone ever try DMSO for the flare ups? You have to give the fish oil a few months, don't expect an overnight cure. I also eat very healthy, juice daily, etc. Good Luck, there is hope!
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replied March 4th, 2012
It's a year later, how are you doing now? I kept mine at bay until December when they took me off all NSAIDs because of a GI bleed. Now I am trying the alternatives. I take flaxseed powder every day with my glucosamine, vitamin, spirulina, etc. mix that looks awful. I am trying to figure out my food triggers. I think there are a few, sugar #1. I hope you are well ! I am a fighter, and not giving up quite yet. I am 50, feel 70 at times, look 40 and want to feel like a 20 yr old. Cuz sometimes I act 20.
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