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Any idea what these symptoms are? hypermobility...

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Idk if this is the right place to ask. So far it's not lupus, general anxiety, POTS, depression, anything eye related, celiac, allergies, or anything like that.

Nausea (chronic, Don’t how it feels to not be nauseated.)

Dizziness

Feeling strong pressure in my head, especially when I move certain ways

Brighton criteria are met and an 8 on the beighton scale

Headache

Painful lump on left side back of neck

Tension in neck

Visual disturbances: loss of vision and dizzy spells randomly a few times a week

General imbalance / clumsiness

Vertigo from position change or sudden standing

Difficulty walking on uneven ground (being barefoot helps)

Pressure/pain in the neck

Pressure/pain behind the eyes (soreness in the eyeballs)

Back pain

Ringing in ears

Pain when changing position

Tingling / crawling feeling on scalp (a lot)

Intolerance to loud / confusing sounds (makes me dizzy and nauseated)

Pain & tension along ear / eye / jawline

Difficulty swallowing

Spontaneous vertigo

Poor blood circulation / cold hands & feet

Sinus / mucous problems

Pressure in ears / ears feel stopped up

Menstrual problems / severe cramping during period /(New)lack of period

Gag reflex problems (gag too easily)

Frequent urination

Popping/cracking sounds in neck or upper back when stretching or moving

Hiccups associated with drinking carbonated beverages (every sip sets them off)

Feelings of it being harder to breathe because of the head pressure/pain (lightheaded)

Chronic joint pain

Numb/tingling arms/legs

Lots of partial dislocations, but the joints pop back in easily

Stomach/throat spasms? Like, all of a sudden my stomach (organ, not entire midsection) clenches up and I get a mouth full of vomit. Or, I’ll be swallowing and my throat will start going in reverse and the food I just chewed will come back up.

High and narrow palate (teeth pulled and had braces)

Sore, swollen gums and tooth decay, even though I brush my teeth and floss

Inability to gain/maintain weight

Insensitivity to local anesthetics (I always feel it when the dentist drills my teeth)

Constant finger, shoulder, ankle, and wrist pain
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First Helper Pipsy
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replied September 18th, 2013
Experienced User
Have you seen your doctor about these symptoms? Have you had blood test done or anything?
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replied September 18th, 2013
I have been to the doc and have had bloods drawn, MRI, MRA, EEG, tests for celiac, allergies, lyme, lupus, arthritis, and a bunch of other stuff.
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replied September 18th, 2013
Experienced User
Was benign joint hypermobility syndrome confirmed by your doctor?

Have you noticed any really dark patches of skin? It would almost like a mud/dirt streak that doesn't wash off.

Also, was the loss of weight or inability to gain weight was this post or prior to your other symptoms?

We all feel the dentist drill it sucks and is annoying, but that does not indicate a insensitivity to anaesthetics by the way Smile.
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replied September 19th, 2013
Well, my dentist has to give me way more stuff, and yes, the hypermobility is confirmed. They're still looking for a cause. No dark patches that I know of. The weight loss thing has been off and on my whole life.
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replied September 19th, 2013
Experienced User
is there a family member with same symptomatology?

The reason I ask these questions is most causes of hypermobility is genetically passed down meaning either one or both parents carried this gene and therefore means someone in your family most likely has had the symptoms as you and perhaps the same condition. So perhaps talk to your parents or better yet your grandparents to see if they remember anyone that has had the hypermobilty symptoms and see if had it diagnosed. I realize it is a long shot.

The only other thing I can think of is to see if your doctor has done any skin biopsies for a collagen typing test or have done any genetic related test. The reason being I am concerned about the possibility of Ehlers-Danlos syndrome. However, this is extremely unlikely.

Talk to your doctor to what they think about the possibility perhaps they have already checked.

That being said I know you said that this isn't being caused by general anxiety and I believe you, it is not like hypermobilty can be caused by that. However, I think some of your symptoms are being caused anxiety such as your belief that your insensitive to anesthetics, to some of your other symptoms such as an irregular menstrual, to even the pressure feeling in your ears. I really do hope that you reconsider that part of your symptoms might be psychosomatic and maybe while your figuring out what is the cause of your hypermobility you might want to consider seeing a psychologist.

Hope you get better and best of luck.
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replied September 19th, 2013
My mom and grandmother have DDD. My grandmother has arthritis that fuses her joints, but my mom is hypermobile, too.

It's not irregular menstrual. It's gone. Plus an increase in body hair. I'm growing a moustache...Idk what that could be, but I don't like it.

Well, my dentist is the one who told me i was insensitive to them because he injected me, left for 20 minutes and went to drill and I wasn't numb at all.

My gp won't refer me to a psych. He put me on xanax, but it made me too dizzy to walk and I could barely breathe. So he put me on the highest dose you can get. -.-
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replied September 19th, 2013
Experienced User
Do your parents have an insurance that covers psychologists? if so a self referral is usually more then adequate. Also, I wouldn't be surprised if a psychologist will accept a self referral regardless of insurance. Try and find a psychologist that runs a private practice or offers private consultation and call them to see if they accept a self referral.

Also, I am not talking a psychiatrist which do without doubt need a referral from a GP because they are considered specialists but psychologist are generally considered not.

Next, perhaps talk to your doctor about trying a different anti-anxiety pill or readjust the dosage...

Ask your mom about her symptoms and see if they overlap with yours perhaps that can help give some insight to situation.
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replied May 30th, 2014
Chiari I malformation
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