Medical Questions > Conditions and Diseases > Hypoglycemia Forum

Adrenergic Postprandial Syndrome

You know, for years I managed my symptoms successfully by reducing carbs. And now that I only eat meat I have no where to go. Very scary. Mayo Clinic turned my down years ago because I didn't have a low sugar reading at the onset of symptoms, but I did record a 33 point drop in 20 minutes 1.5 hours after a sandwich.

Everyone wants me to medicate for anxiety, but I refuse to go down all the way until I can't get up. I could always handle my anxiety. What I can't handle is my body crashing into a very clear state of hypoglycemia that it is fighting its way out.

C'mon - I've woken up in the middle of the night (ONCE!) sweating, heart racing and could barely move) because I had pancakes and syrup earlier for dinner. It was amazing to me that sipping an 1/8 cup of OJ would relieve those symptoms COMPLETELY. This doesn't sound like anxiety - this sounds like my body over reacting to carbs.

I'll accept the fact that I have a family history of anxiety and have had many panic attacks, but what I can't except is that what I experience from consuming carbs is simply a mental illness.

I firmly believe that since symptoms were imeediately relieved upon sipping orange juice after I could barely walk due to dizzyness and a rapid heart beat (10 times worse than any panic attack I've experienced).

Damn it - if I could just get my diet back - anxiety and panic attacks are a piece of cake.
Did you find this post helpful?
First Helper Kevin701
|

replied October 29th, 2011
The "panic attack" after eating can actually be diabetes/ insulin-resistance. I had hypoglycemia since age 15 and now at 38 I was just diagnosed as prediabetic. I also ate low carb diet since I felt worst after eating carbs, so all my blood glucose tests did not show the diabetes. You need to eat medium to high carb for 3 days prior to a blood glucose test for it to show correct results.

I had these postprandial panick/palpitations for the past three years and they were worst in the morning after breakfast. I purchased a glucose meter and confirmed my suspicion. Glucose was 100 - 130 when at 6:30am. After eating my BG went upto 170 after an hour and then back to 100 in less than 30 minutes. When my BG decreases this fast, this is when I had the heart palpitations, my blood pressure increased 140/95 and my abdomen hurt all day. I felt bloated and nauseated all day. I went to the endocrinologist and did the 5 hour glucose tolerance test. I was put on Glucophage (Metformin) and my symptoms have almost disappeared (this is my 5 day on the medication). It makes your body use your own insulin more efficiently (insulin sensitizer).
|
Did you find this post helpful?

replied October 29th, 2011
Thanks, but I actually now record in the 50s 1.5 hours after eating just a 1/4 cup of plain oatmeal. I now suspect NIPHS or glucose-stimulated insulinoma. For now though, I'm avoiding any more testing and enjoying my son. When I can no longer eat the minimal amount of vegetables I've incorporated into my diet, I'll surrender and go into the hospital.
|
Did you find this post helpful?

replied October 30th, 2011
Metformin is also used for hypoglycemia, ask your doctor. I had highs (170) and lows (60's). This medication does not make your pancreas make more insulin, so it won't make you more hypoglycemic. It will allow you to eat a normal diet, it has for me in only a few days. I have been almost anorexic for a few years because any food would make me feel ill and all the doctors said I was anxious and depressed. I also have an autoimmune thyroid disease that made me hypothyroid (but all my symptoms were sort of hyper not hypo thyroid - fast hear rate, high blood pressure, loosing weight, abdominal pain, weakness). I even had to quit my job since I was so ill. I have felt "normal" again. Just ask your doctor if you can try the smallest dose and see if it helps.
|
Did you find this post helpful?

replied February 5th, 2012
To Ballroomeast....

I would like to share some info that might help. I created in myself the very problem you are trying to solve. I then had to solve it!!! I am a 65 year old woman with Pulmonary Fibrosis (caused by formaldehyde poisoning). PF was diagnosed in 2003 with an open lung biopsy. I was given a maximum of 6 years of life. I am doing quite well after 9 years. However, I did have to drastically alter my diet to achieve this. My problem is C02 as my lungs cannot easily release it. Therefore, in order to drastically reduce the levels of C02 in my body, I went on the Ketogenic Diet for 4 months and then kept my carbs very low with my protein at a moderate level. My fat is EXTREMELY HIGH. I consume about 14oz of heavy whipping cream from grass finished cows every day. If I consume any food (except fat and small amounts of protein) before 4pm, I will fall asleep for about 1 hour. I simply cannot stay awake about 1.5 hours after the meal. It took me some time to learn that my BG would usually drop 20-40 points during this period...although my Whole Blood Glucose would still be above 80! How long I slept seemed to be determined by how rapid and steep the drop in BG! I am able to have a productive day by consuming small amounts of protein and lots of fat (either heavy whipping cream or extra virgin olive oil). The 4 months on the Ketogenic Diet adapted my muscles to burning not only fatty acids but also ketones. (They no longer burn glucose.) My central nervous system needs only about 20 grams of glucose a day as the remaining 20-30 grams comes from the glycerol when I burn stored fat. Once a week, I eat a very high carb meal...about 100 grams...about 6pm in the evening. I rarely experience the rapid drop in blood glucose on these days.

mary
|
Did you find this post helpful?

replied October 27th, 2015
Hi Mary! I have the EXACT same reactions you do! I would like to chat with you now if you are available please? We can email or chat on phone. Thanks, Lee.
|
Did you find this post helpful?

replied July 24th, 2012
Reactive Hypoglycemia / Postprandial syndrome
I have a genetic condition called Hypokalemia Periodic Paralysis which is triggered by insulin spikes, causing my muscles to grow weak, heavy and almost insupportable to the point of paralysis, but most with my condition remain conscious though they can't move, but I also have a concurrent "reactive hypoglycemic" problem because this spike also resulted in my hands and feet getting cold as ice and my heart rate rising from 71 to 101 bpm. I then pass into a semi-coma for 3 hours, and awake to find my heart feeling belabored like I'd run a marathon. Even a half of a single fresh strawberry could set me into this coma-like condition. I, too, remedied the problem by going on a ketogenic diet. The first day of the diet I actually had an attack in the early evening. I realized that my body thought I was in distress and released the emergency stores of glycogen from my liver. The next day was better, as I'd exhausted my glycogen stores and was now burning fatty acids and ketones. I've recently incorporated more protein, but before that I would strictly eat unsweetened almond (fatty carb) and peanut butter (fatty carb), guacamole (fatty carb), whole fat Greek Yogurt with a little artificial sweetener and a block of cheese for either breakfast or lunch, unsweetened jello with heavy cream. I actually lost weight and my cholesterol normalized. Hey, I'm a genetic mutant. Go figure!!! Another thing, if a drink of orange juice can normalize someone, then you don't have the same type of reactive hypoglycemia I have. I would do the orange juice thing, normalize for 20 to 30 minutes, then start on the downslide again, drink more orange juice, then another downslide. It was like a horrible roller coaster, a maniacal yo-yo effect. Made me afraid of food for a while. I'd rather just pass into the 3-hour semi-coma if there was no other remedy. Fortunately, reducing carbs with a high glycemic index has been more savior. Oh, and none of my hypoglycemic attacks were anxiety provoked or had any emotional trigger. That's a crock. If there's another answer for my "reactive hypoglycemia" I'd like to hear it. No sarcasm intended.
|
Did you find this post helpful?

replied March 23rd, 2013
Hi kimmy girl and ballroom east too!! I too have hypokalemic periodic paralysis but my paralysis is only partial and happens while potassium levels are well within the normal range.. this is definitely some thing ballroomeast needs to explore.. I am on low carb quality proteins and healthy fats with emphasis on high potassium level foods... and no refined carbs.. low glycemic index veg is ok.. I still have to supplement over 100 meq of potassium and take a potassium sparing diuretic to force sodium out of muscle cells so they can repolarize... think about checking this out ballroom east.. kayceebee
|
Did you find this post helpful?

replied July 24th, 2012
Reactive Hypoglycemia / Postprandial syndrome
I have a genetic condition called Hypokalemia Periodic Paralysis which is triggered by insulin spikes, causing my muscles to grow weak, heavy and almost insupportable to the point of paralysis, but most with my condition remain conscious though they can't move, but I also have a concurrent "reactive hypoglycemic" problem because this spike also resulted in my hands and feet getting cold as ice and my heart rate rising from 71 to 101 bpm. I then pass into a semi-coma for 3 hours, and awake to find my heart feeling belabored like I'd run a marathon. Even a half of a single fresh strawberry could set me into this coma-like condition. I, too, remedied the problem by going on a ketogenic diet. The first day of the diet I actually had an attack in the early evening. I realized that my body thought I was in distress and released the emergency stores of glycogen from my liver. The next day was better, as I'd exhausted my glycogen stores and was now burning fatty acids and ketones. I've recently incorporated more protein, but before that I would strictly eat unsweetened almond (fatty carb) and peanut butter (fatty carb), guacamole (fatty carb), whole fat Greek Yogurt with a little artificial sweetener and a block of cheese for either breakfast or lunch, unsweetened jello with heavy cream. I actually lost weight and my cholesterol normalized. Hey, I'm a genetic mutant. Go figure!!! Another thing, if a drink of orange juice can normalize someone, then you don't have the same type of reactive hypoglycemia I have. I would do the orange juice thing, normalize for 20 to 30 minutes, then start on the downslide again, drink more orange juice, then another downslide. It was like a horrible roller coaster, a maniacal yo-yo effect. Made me afraid of food for a while. I'd rather just pass into the 3-hour semi-coma if there was no other remedy. Fortunately, reducing carbs with a high glycemic index has been more savior. Oh, and none of my hypoglycemic attacks were anxiety provoked or had any emotional trigger. That's a crock. If there's another answer for my "reactive hypoglycemia" I'd like to hear it. No sarcasm intended.
|
Did you find this post helpful?

replied March 23rd, 2013
Hi BALLROOMEAST>>I too have a type of hypokalemic periodic paralysis and my blood potassium levels are never below normal.. I paralyse also sometimes when my sodium consumption is too high.. since I am normokalemic periodic paralysis just minor downward shifts in my potassium can spiral into an almost paralysed state,, I take a potassium sparing medication and almost 100 meq daily of khlor con and can still suffer paralysis if I fall off my paleolithic style diet.. kimmiegirl do you supplement potassium or take potassium holding medications.. by doing this I can consume low glycemic carbs and don't have to be on the full ketogenic diet.. my fruit has to be in the natural package such as an apple or pear..occaisional citrus but they carry more carbs.. Kayceebee
|
Did you find this post helpful?

replied January 28th, 2014
LOW CARB PLUS L CARNITINE AND CHROME VERSUS HYPOGLICEMIA
Hey all. Ive been diagnosed to have Postprandial Reactive Hypoglycemia since 2001, probably had it since 1997 though, since the symptoms go all the way back. Heres what worked for me. Do the Atkins diet, and pay special attention to the supplements Chromium (which helps aid insulin resistance) and L Carnitine (which helps the body use fat as a source of energy instead of glucose). I took metphormine (glucophage) but since I am an athelete it gave me Lacto acidosis due to my intensive excercise (Can you believe that? After being obese in my childhood now I have exceptional physical resistance just for leaving carbs out of my diet) Just leave them carbs out of your diet, I know its hard as hel but its the only way out. If you do not have the will to leave out carbs then drink ground linseed with warm water with every high carb meal, it will soften the insulin spike uptake and make the sugar be absorbed slowly in your digestive system, And dont worry about what them doctors say, only an updated endocrinologist even knows what PRH is. Thank God ive had one of the best Health Insurances in the world which allowed me to visit nearly 12 different specialists until one hit the mark. but the first 11, quite frankly I wanted to slap them. Woe to all sugar and refined fast food producers, may the "low fat" diet lie end.
|
Did you find this post helpful?

replied January 30th, 2014
Hi Kevin01 and all on here discussing Postprandial syndromes...all you are saying makes sense in the journey which has involved a year and a half and consultants in: dysautonomia (elderly medicine - I am 46!), 2 x gastroenterologists,tropical medicine, rheumatology (these guys are good), neurology, have lost count. I perplex them all. They found a high Vit D deficiency, low blood pressure, Raynauld's, Epstein Barr Virus in the blood, high d-dimer in the blood on occasion and high creatine kinase.. Basically I have problems with food, symptoms like dumping syndrome, at an extreme can go into a coma-like state and wild horses could not get me upright. I am weak, cannot exercise which is so frustrating as there are no reserves (I am slim, athletic build, low body fat and have been fit through my life). I cannot drink alcohol...stupidly had 2 x g&t's about 4pm on an empty stomach on holiday recently and became the Hulk - it was not pretty! I have
to eat regularly and when I do I can go ashen, dark, dark circles under eyes, feel like I am going to collapse. Also I eat and am starving afterwards, can feel hungry all day long. Periods are all messed up...not unsurprsingly they want to suggest I need psychological help...so to show my determination to be well and to play ball I have agreed to that but know in my heart this is physical.My symptoms can be completely unrelated to my mood at the time they come on. My mother has adrenal failure (Addison's disease and the associated auto-immune conditions - thyroid, sjogren's etc) so this could be a cortisol problem but my feeling is adrenalin is involved - Adrenergic postprandial syndrome??? But could low cortisol prompt this..ie. struggling adrenals? Any thoughts would be welcome on this slow journey. PS. having cut out a lot of carbs helps a bit...not totally.
|
Did you find this post helpful?

replied July 9th, 2018
Adregeneric Postprandial syndrome
It's amazing what you just said. This is so me and I have been to so many endocrines and nobody could figure this out. My adrenals were shot. I ended up having very low cortisol. Your story is my story! OH MY WORD. I have been to dysautonomia specialists, had several doctors who say I have POTS but I only have some of the irregularities, many gi doctors although I do have Crohn's disease, rheumatology, hepatology, you name it I have been to them all.

I have a high Vit D deficiency too-look into that it causes a lot of issues. low blood pressure and sometimes low bp at night and normal in the day at other times slightly hypertensive but I am now taking Hydrocortisone and that raises your bp and can cause hypertension.

I also have had EBV and it's reactivated several times, High D-Dimer but they keep saying low probablity of blood clots, I don't have Raynauds or high Creatine Kinase but that's about the only two I don't have that you do.

I had just been to another endocrine neuro-endocrine and he said he thinks I have dumping syndrome going on from my Crohns essentially not working. I have a foot of my terminal ileum cut out.

I am now at the point where I can not exercise well really started three years ago, I could not even barely get downstairs. I now use a wheel chair mostly and can barely get off the couch even with steroids. I was also in great shape before all of this.

I also started getting dark circles about a year ago. I can barely stand in shower and feel too like I could pass out a lot or collapsse. No alcohol for me too. I get the periods where I want to eat the earth and then other times not so bad . I really think that has to do with a nutrition problem or a glucose/insulin issue also thyroid component I think too.

My periods last 6 months throw my body almost into crisis. I had so many doctors and ER physicians tell me it was all in my head it was anxiety and they even got my husband thinking it too. Well some of the symptoms are anxiety. I get terrible body shakes low cortisol and anxiety are all low cortisol symptoms.

My primary care dr told me she thought I had Addison's disease and then I spent forever trying to prove or disprove it according to the blood test for it I don't have it but I have all the symptoms. I even had one tell me that you don't have it now but that you could get it. You fit the profile. Your 45 years old you are of Northeastern European descent etc. Then she did nothing for me it was awesome NOT!

I suspect I have Adrenal Insufficiency of some sort be it Addison's or just secondary Adrenal Insufficiency. I also suspect I have Hashimoto's as my cousin has this and I already have an autoimmune condition (Crohn's). I suspected either Sjogren's or Scardiosis too but the testing never shows this.

I just found info and this forum about Adrenergic postprandial syndrome and this so sounds like me. Early on most endocrines told me you don't have hypoglycemia because your blood sugar doesn't go into the 40's. However I sound like the walking billboard for APS. I kept telling the endocrines that I get hypoglycemic symptoms in the mid 80's or lower and yet my blood sugar rarely ever gets below 70. None of them could understand it at all. I would wake up with horrible heart palpitations due to low blood sugar and they kept saying it was my low blood pressure but even when I didn't have low blood pressure and I would wake up I still would have the heart palpitations and my blood sugar was always mid 80's or below but not ever below 60.

I had issues at work where I would eat and then go into a meeting and have huge blood sugar drops that would make me have such bad hypoglycemia reactions I would have to leave the room. I get very nauseated if my blood sugar drops into the mid 80's worse in the mornings.

Yes low cortisol also makes more histamines produce in your body and I have horrible histamine issues as well. Cortisol regulates histamines in your body. I have done tons of research trying to diagnose myself as we have pretty awful endo's here in AZ but this website is amazing. I am surprised I didn't run into this sooner. I wish I had.
|
Did you find this post helpful?

replied January 22nd, 2015
To balroomeast: I read your post and was wondering how are you doing since your last post in 2011. I hope you're feeling better. Did you find out what your health problem is or was? I was going to suggest you do a blood test and besides the blood sugar levels try checking levels of various vitamins and minerals as well was hormones and all that is possible to check with blood test so you can rule out any imbalance before doing a treatment with medications; also check if you have candida overgrow... I have Candida overgrow and need to detox and take probiotics and also need B vitamins to help digesting my food and for good mental health since B vitamins help with both. I hope you 're well. Sincerely, Lily
|
Did you find this post helpful?

replied January 22nd, 2015
To balroomeast: I read your post and was wondering how are you doing since your last post in 2011. I hope you're feeling better. Did you find out what your health problem is or was? I was going to suggest you do a blood test and besides the blood sugar levels try checking levels of various vitamins and minerals as well was hormones and all that is possible to check with blood test so you can rule out any imbalance before doing a treatment with medications; also check if you have candida overgrow... I have Candida overgrow and need to detox and take probiotics and also need B vitamins to help digesting my food and for good mental health since B vitamins help with both. I hope you 're well. Sincerely, Lily
|
Did you find this post helpful?

replied June 30th, 2016
Lily, thanks for asking.

Quite amazingly, I was able to slowly introduce carbs after a few years only eating ground beef. I chose ground beef because of its fat content and it was easy to cook and then transport cold.

So I made it back to potato chips and ice cream, but it didn't last. I started reacting again at 4 hours, then enevtually 2 hours and then again after just a few minutes now.

I was forced back to only being able to eat fat and protein - can't have around .5 grams of carbs. I'm hoping after a year or two I can introduce carbs again but this time I'm not going to over do it. I'll be happy if I can stick with vegetables instead of adding more.

I suspect now it's not an insulin issue. I feel it may be the slow loss of some enzyme that would normally help to counter regulate sugar without any symptoms. Instead, it seams as if adrenaline has to regulate by itself as if there's no glycogen.

Very strange.....
|
Did you find this post helpful?