Okay, so I realize this was posted a whilee ago and you may not ever check back, but I figured I'd make an attempt at a response, just in case.

I'm fifteen years old and I was diagnosed with Crohn's around age 8 or 9. So what is that, about 6 of 7 years ago, I got diagnosed-- at the beginning of fourth grade. Doctors think I got it when I was in about the first grade-- not as young as two years old, but older than many who report being diagnosed in the early to mid teen years.

Anyway, while I experienced a milder form of the disease that entailed constant throwing up as opposed to continuous diarrhea, it took numerous tests just to bee 100% sure that I did in fact have the disease..

I dont really know what I'm going with this, sorry. Lol. I guess my point is that it is possible to be diagnosed at a considerably young age, as Crohn's is a very indefinitely identified/researched disease-- so dont take no for an answer.

Oh, and P.S.-- I had an edoscopy and colonoscopy at around age 8 or 9 and while it ended up being the most solid piece of evidence in the diagnosis of my disease, doctor's have since determined (or at least guess) that my disease is in the middle of my small intestine-- an area unable to be reached by either procedure. Maybe when your daughter gets older you can attempt a colonscopy/endoscopy.. and even then, if results dont surface themselves but symptoms persist and no other solution is identified, it still could be Crohn's.

Good luck, sorry if that didn't help. :/

I was diagnosed in 6th grade, so three years ago, i had simular symptoms and was falling on the short side of the growth charts and I took those simular tests and they found nothing as well. but when they did the colonoscopy, thats when they found my mild case of crohn's.

I am not sure about DIAGNOSED AGES and the percent of CHILDREN WITH CROHN'S, but i am young and i have it...

I would keep pushing for the test, if it has not already happened due to how long this post has been up, but it couldn't hurt for you to confirm Crohn's disease or rule it out.

I hope your daughter is better now, if not i wish you and her good luck.

I was diagnosed in 6th grade, so three years ago, i had simular symptoms and was falling on the short side of the growth charts and I took those simular tests and they found nothing as well. but when they did the colonoscopy, thats when they found my mild case of crohn's.

I am not sure about DIAGNOSED AGES and the percent of CHILDREN WITH CROHN'S, but i am young and i have it...

I would keep pushing for the test, if it has not already happened due to how long this post has been up, but it couldn't hurt for you to confirm Crohn's disease or rule it out.

Hi. How is your daughter now? Was she diagnosed with Crohn's or anything else?? My son was just released from Johns Hopkins (one of the top two childrens hospitals in the nation) after 13 days there and he is now undergoing tests for Crohn's. He is two and a half and they said it is not all that uncommon. He is having an EGD and colonoscopy next week. His Sed rate was over 100 for two months and he had to have a blood trasfusion as a result of an acute hemolytic episode. Please keep me posted...MOMS ALWAYS KNOW BEST!!

My friend's son was just diagnosed..he is 15 months..and they really didn't think it was Crohns because the youngest patient they'd ever seen was 2. These are pediatric gastroenterologists in Los Angeles...and they were surprised. He did have a colonoscopy...it is possible! But because it isn't "typical' it may go undiagnosed....

My daughter was diagnosed with Crohns at 18 months old and never been better since then. We tried lots of medication and now the doctor suggested Methotrexate?
She's a very happy girl and never complains of any abdominal pain though she visits toilet at least 5 times a day.
Anyone heard about SedaCrohn? We just want to know if its worth trying.
Cheers

I was nine and they thought it was luekimia at first. After that was ruled out they had no idea. until my colonoscopy & endoscopy was done they did not know. i am now 14 and I supposedly have had it since birth. born small and stayed that way until years of various steroids made me... well... not so tiny. im on immunosuppressors and I still get sick. 9th grade so far i have been absent at least 25 times.

I feel your pain! My daughter was just diagnosed at 9 years old but has had severe symptoms since the first day of her life. The doctors ran tons of tests only to shrug their shoulders at us and tell us.....sorry there are no answers. My daughter has spent most of her life in and out of hospitals and it wasn't until this month we found a saint of a doctor that took one look at my daughter to know that there was something very wrong. Testing done, we finally got the answer we have been searching for.....Crohn's. My daughter now has damage to her stomach and small intestine. My suggestion is to find a doctor who will really listen and validate your concerns before it is too late and the damage is done.

Just out of curiosity- does anyone know the youngest age reported with a crohn's diagnosis? My daughter was just diagnosed (21 months old) with Crohns and I think it started when she was about 8 months old when she was hospitalized a couple of times for vomiting, severe diarrhea, and dehydration. She had dropped off of the growth curve, and all of her tests have indicated that she has it- elevated sed rate, high fecal calprotectin, positive IBD panel, and very obvious on the colonoscopy/EGD. I would also like to know where to find the best GI specialist in the midwest area...

I was recently diagnosed with Crohn's disease and never had any of the diarrhea or vomiting I have read of others having and they say is common with this disease,just had severe abdominal pain.
Doctor has me taking "Pentassa" now about a year and a half and the infection is "completely cleared up" according to my last scop which are pretty invasive btw. I would imagine would be especially so for a small child.
sorry i can't help in your case basically at all, i mostly just like to brag about being "cured" lol
though i do still have to take the medication
gl