|Hi, I thought I could write on that forum aiming to get some help or ideas.
My 2 year old daughter really seem to have Crohn disease. She has diarrhea since September 2007, non-stop. She was hospitalized and did plenty of tests (for detecting viruses, bacteria, parasites, intolerance to lactose, sugar, etc): all negatives.
I spoke to the paediatricians about Crohn's disease, they all told me that it's almost impossible for such a young kid. They did two qualitative tests that could give you a hint for Crohn: Erythrocyte Sedimentation Rate (ESR) and Barium Enema, which came out totally normal. However, doctors don't want do do the real test: the colonoscopy, because they say it's very invasive and they are not sure it's worth it, and that they never seen a case of Crohn's disease for such a young kid.
It's true that despite the diarrhea, my daughter is doing great. She doesn't complain about pain (although she is very though, her growth curve is normal (she dropped between birth and 1 year old, now she maintains at 50%), so they don't do any further investigation.
As a mom, I feel very worried (no potty training when you have diarrhea more than 4 times a day), and as a scientist, I really need to understand what's happening here.
I'm a bit frustrated, and I can't accept "she is like that" as an answer.
A desperate mom...