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2 year old with Crohns ?

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LaMama

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2 year old with Crohns ?
Posted: 03-25-08 15:05pm

Hi, I thought I could write on that forum aiming to get some help or ideas.

My 2 year old daughter really seem to have Crohn disease. She has diarrhea since September 2007, non-stop. She was hospitalized and did plenty of tests (for detecting viruses, bacteria, parasites, intolerance to lactose, sugar, etc): all negatives. Confused

I spoke to the paediatricians about Crohn's disease, they all told me that it's almost impossible for such a young kid. They did two qualitative tests that could give you a hint for Crohn: Erythrocyte Sedimentation Rate (ESR) and Barium Enema, which came out totally normal. However, doctors don't want do do the real test: the colonoscopy, because they say it's very invasive and they are not sure it's worth it, and that they never seen a case of Crohn's disease for such a young kid. Rolling Eyes

It's true that despite the diarrhea, my daughter is doing great. She doesn't complain about pain (although she is very though, her growth curve is normal (she dropped between birth and 1 year old, now she maintains at 50%), so they don't do any further investigation. Crying
or Very sad

As a mom, I feel very worried (no potty training when you have diarrhea more than 4 times a day), and as a scientist, I really need to understand what's happening here.

I'm a bit frustrated, and I can't accept "she is like that" as an answer.

Any advice?

A desperate mom...
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youngwithcrohns

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Posted: 04-14-08 20:36pm

Okay, so I realize this was posted a whilee ago and you may not ever check back, but I figured I'd make an attempt at a response, just in case.

I'm fifteen years old and I was diagnosed with Crohn's around age 8 or 9. So what is that, about 6 of 7 years ago, I got diagnosed-- at the beginning of fourth grade. Doctors think I got it when I was in about the first grade-- not as young as two years old, but older than many who report being diagnosed in the early to mid teen years.

Anyway, while I experienced a milder form of the disease that entailed constant throwing up as opposed to continuous diarrhea, it took numerous tests just to bee 100% sure that I did in fact have the disease..

I dont really know what I'm going with this, sorry. Lol. I guess my point is that it is possible to be diagnosed at a considerably young age, as Crohn's is a very indefinitely identified/researched disease-- so dont take no for an answer.

Oh, and P.S.-- I had an edoscopy and colonoscopy at around age 8 or 9 and while it ended up being the most solid piece of evidence in the diagnosis of my disease, doctor's have since determined (or at least guess) that my disease is in the middle of my small intestine-- an area unable to be reached by either procedure. Maybe when your daughter gets older you can attempt a colonscopy/endoscopy.. and even then, if results dont surface themselves but symptoms persist and no other solution is identified, it still could be Crohn's.

Good luck, sorry if that didn't help. :/
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