Hi, I thought I could write on that forum
aiming to get some help or ideas.
My 2 year old daughter really seem to have
Crohn disease. She has diarrhea since
September 2007, non-stop. She was
hospitalized and did plenty of tests (for
detecting viruses, bacteria, parasites,
intolerance to lactose, sugar, etc): all
negatives.
I spoke to the paediatricians about
Crohn's disease, they all told me that
it's almost impossible for such a young
kid. They did two qualitative tests that
could give you a hint for Crohn:
Erythrocyte Sedimentation Rate (ESR) and
Barium Enema, which came out totally
normal. However, doctors don't want do do
the real test: the colonoscopy, because
they say it's very invasive and they are
not sure it's worth it, and that they
never seen a case of Crohn's disease for
such a young kid.
It's true that despite the diarrhea, my
daughter is doing great. She doesn't
complain about pain (although she is very
though, her growth curve is normal (she
dropped between birth and 1 year old, now
she maintains at 50%), so they don't do
any further investigation.
As a mom, I feel very worried (no potty
training when you have diarrhea more than
4 times a day), and as a scientist, I
really need to understand what's happening
here.
I'm a bit frustrated, and I can't accept
"she is like that" as an answer.
Any advice?
A desperate mom...
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youngwithcrohns
New User, Becoming EHEALTHy
Joined: 14 Apr 2008 Posts: 1
Thanks: 1
Thanked:0
Posted: 04-14-08 20:36pm
Okay, so I realize this was posted a
whilee ago and you may not ever check
back, but I figured I'd make an attempt at
a response, just in case.
I'm fifteen years old and I was diagnosed
with Crohn's around age 8 or 9. So what is
that, about 6 of 7 years ago, I got
diagnosed-- at the beginning of fourth
grade. Doctors think I got it when I was
in about the first grade-- not as young as
two years old, but older than many who
report being diagnosed in the early to mid
teen years.
Anyway, while I experienced a milder form
of the disease that entailed constant
throwing up as opposed to continuous
diarrhea, it took numerous tests just to
bee 100% sure that I did in fact have the
disease..
I dont really know what I'm going with
this, sorry. Lol. I guess my point is that
it is possible to be diagnosed at a
considerably young age, as Crohn's is a
very indefinitely identified/researched
disease-- so dont take no for an answer.
Oh, and P.S.-- I had an edoscopy and
colonoscopy at around age 8 or 9 and while
it ended up being the most solid piece of
evidence in the diagnosis of my disease,
doctor's have since determined (or at
least guess) that my disease is in the
middle of my small intestine-- an area
unable to be reached by either procedure.
Maybe when your daughter gets older you
can attempt a colonscopy/endoscopy.. and
even then, if results dont surface
themselves but symptoms persist and no
other solution is identified, it still
could be Crohn's.
Good luck, sorry if that didn't help. :/
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