2 year old with Crohns ?

Okay, so I realize this was posted a whilee ago and you may not ever check back, but I figured I'd make an attempt at a response, just in case.

I'm fifteen years old and I was diagnosed with Crohn's around age 8 or 9. So what is that, about 6 of 7 years ago, I got diagnosed-- at the beginning of fourth grade. Doctors think I got it when I was in about the first grade-- not as young as two years old, but older than many who report being diagnosed in the early to mid teen years.

Anyway, while I experienced a milder form of the disease that entailed constant throwing up as opposed to continuous diarrhea, it took numerous tests just to bee 100% sure that I did in fact have the disease..

I dont really know what I'm going with this, sorry. Lol. I guess my point is that it is possible to be diagnosed at a considerably young age, as Crohn's is a very indefinitely identified/researched disease-- so dont take no for an answer.

Oh, and P.S.-- I had an edoscopy and colonoscopy at around age 8 or 9 and while it ended up being the most solid piece of evidence in the diagnosis of my disease, doctor's have since determined (or at least guess) that my disease is in the middle of my small intestine-- an area unable to be reached by either procedure. Maybe when your daughter gets older you can attempt a colonscopy/endoscopy.. and even then, if results dont surface themselves but symptoms persist and no other solution is identified, it still could be Crohn's.

Good luck, sorry if that didn't help. :/

hi my daughter had symptons since 8 months old, blood in her nappy loose stools, just kept getting told to watch her plenty of fluids, sometimes she would be constipated and i would have to give her laxatives. until she had a blood test when she was nearly 2 and her blood count was half what it should of been. took her to hospital then they started to listen, had camera both ends, baring meal and plasma xrays, i was told she had crohns when she was just 2 years old, had no surgery thank goodness but she is doing well some 11 years on, still on solafalk. Now i have just been told i have crohns at the age of 44 on steroids at the moment going onto azathioprine. fingers crossd for no surgery but the doctors says very probable. so you can be diagnosed early

I was diagnosed in 6th grade, so three years ago, i had simular symptoms and was falling on the short side of the growth charts and I took those simular tests and they found nothing as well. but when they did the colonoscopy, thats when they found my mild case of crohn's.

I am not sure about DIAGNOSED AGES and the percent of CHILDREN WITH CROHN'S, but i am young and i have it...

I would keep pushing for the test, if it has not already happened due to how long this post has been up, but it couldn't hurt for you to confirm Crohn's disease or rule it out.

I hope your daughter is better now, if not i wish you and her good luck.

I was diagnosed in 6th grade, so three years ago, i had simular symptoms and was falling on the short side of the growth charts and I took those simular tests and they found nothing as well. but when they did the colonoscopy, thats when they found my mild case of crohn's.

I am not sure about DIAGNOSED AGES and the percent of CHILDREN WITH CROHN'S, but i am young and i have it...

I would keep pushing for the test, if it has not already happened due to how long this post has been up, but it couldn't hurt for you to confirm Crohn's disease or rule it out.

Hi. How is your daughter now? Was she diagnosed with Crohn's or anything else?? My son was just released from Johns Hopkins (one of the top two childrens hospitals in the nation) after 13 days there and he is now undergoing tests for Crohn's. He is two and a half and they said it is not all that uncommon. He is having an EGD and colonoscopy next week. His Sed rate was over 100 for two months and he had to have a blood trasfusion as a result of an acute hemolytic episode. Please keep me posted...MOMS ALWAYS KNOW BEST!!

I do hope your son is ok? My daughter is now 14 years and is going for a camera test next week , as she is out of remission and has crohns active again, its been around and in remission at various times in here life, she copes very well but is always in pain, now her joints are hurting especially her knees. Im just about to have surgery to remove some large bowel and to remove a fistula i have with my bladder, This Crohns has a lot to answer for!! keep well x

My friend's son was just diagnosed..he is 15 months..and they really didn't think it was Crohns because the youngest patient they'd ever seen was 2. These are pediatric gastroenterologists in Los Angeles...and they were surprised. He did have a colonoscopy...it is possible! But because it isn't "typical' it may go undiagnosed....

My daughter was diagnosed with Crohns at 18 months old and never been better since then. We tried lots of medication and now the doctor suggested Methotrexate?
She's a very happy girl and never complains of any abdominal pain though she visits toilet at least 5 times a day.
Anyone heard about SedaCrohn? We just want to know if its worth trying.
Cheers

I was nine and they thought it was luekimia at first. After that was ruled out they had no idea. until my colonoscopy & endoscopy was done they did not know. i am now 14 and I supposedly have had it since birth. born small and stayed that way until years of various steroids made me... well... not so tiny. im on immunosuppressors and I still get sick. 9th grade so far i have been absent at least 25 times.

I feel your pain! My daughter was just diagnosed at 9 years old but has had severe symptoms since the first day of her life. The doctors ran tons of tests only to shrug their shoulders at us and tell us.....sorry there are no answers. My daughter has spent most of her life in and out of hospitals and it wasn't until this month we found a saint of a doctor that took one look at my daughter to know that there was something very wrong. Testing done, we finally got the answer we have been searching for.....Crohn's. My daughter now has damage to her stomach and small intestine. My suggestion is to find a doctor who will really listen and validate your concerns before it is too late and the damage is done.

Just out of curiosity- does anyone know the youngest age reported with a crohn's diagnosis? My daughter was just diagnosed (21 months old) with Crohns and I think it started when she was about 8 months old when she was hospitalized a couple of times for vomiting, severe diarrhea, and dehydration. She had dropped off of the growth curve, and all of her tests have indicated that she has it- elevated sed rate, high fecal calprotectin, positive IBD panel, and very obvious on the colonoscopy/EGD. I would also like to know where to find the best GI specialist in the midwest area...

I was recently diagnosed with Crohn's disease and never had any of the diarrhea or vomiting I have read of others having and they say is common with this disease,just had severe abdominal pain.
Doctor has me taking "Pentassa" now about a year and a half and the infection is "completely cleared up" according to my last scop which are pretty invasive btw. I would imagine would be especially so for a small child.
sorry i can't help in your case basically at all, i mostly just like to brag about being "cured" lol
though i do still have to take the medication
gl

Hi! My daughter is 8 and she had symptoms of Chrohns for the past 2 years. Have you ever heard of the book "Breaking the Vicious Cycle" by Elaine Gottschall? I strongly recommend reading it or checking out the website. My duaghter started the SCD (Specific Carbohydrate diet) in mid October 2009 and now she does not experience stomach cramping, diarrhea, lack of appetite or joint pain. I'm so thrilled and am still praying that this continues to work for her! The diet is a little intimidating at first (I cried the first week because I was so overwhelmed) but it gets easier. There are so many recipes available on the internet for the scd diet. I have one question - has your daughter taken a lot of antibiotics? My daughter's symptoms started the end of her Kindergarten year after being on antibiotics almost her entire school year for ear infections, 1 bladder infections and some other type of infection. I've been reading too where overuse of antibiotics can cause an inbalance of the good bacteria in your digestive system. Interesting!!!
Google on these two items - I wish you the best of luck and hope you find something that will help your daughter!
Mom in Missouri

For any of you who had children diagnosed at 2 years old or earlier, how was your child treated? My daughter is 2 and just diagnosed with Chron's disease. She would have been diagnosed at 10 months, but the feeling was she was so young that a Chron's diagnosis was unlikely. Now with a second series of scopes (endoscopy and colonoscopy) the Chron's diagnosis has been confirmed. Since Chron's is so rare in children this young, it seems there is no standardized treatment. Any experiences which can be shared will be most appreciated!

Hi, i am a chrones sufferer and have been since 1981, my heart and thoughts go out to you and your little girl. I wouldnt wish chrones on anyone especially a child. Please feel free to message me any time as i would love to help you in anyay i can, please take care for now, Heather

hi i just came across this forum my baby at 3 months got lesions and ulcers in his mouth all tests were done it was thought to be the immune or neutrophils because both are low however he had his scope in london at 17 months they have not confirmed anything we were put on milk egg soya free diet which we did but no difference he needs to have an other scope to rule out things still battling no vomiting or loose stools but when the ulcers are getting flared up he goes off more than usual. he has a lot of esinophils seen in the gi scope is this common in crohns sorry i am not a help to view my sons ulcers yoy can google suryaa singh trinidad newsday clink on NEXT under the photo of his grandma and dad and the picture of the ulcers are there. if u guys have any info plz contact me thanks

My 12yr grandson was diagnosed with Crohns 2 years ago because he wasn't growing (failure to thrive). He is the size of most 8 yr olds. Is there a point at which he will not beable to grow (say if he goes through puberty before he is helped with meds)? Not any discussions on this aspect of Crohns. My heart breaks for him - please reply with any information if your child has experienced this.

My son is 2 years old and was diagnosed with crohns a few months back. This is the first site I've found with such young kids with crohns in common. We don't feel so isolated now. He never had a solid BM growing up and was on the lower end of the growth chart, but nothing to be concerned with other then the loose stool. After several tests of all kinds we finally were told to go see a GI doctor who quickly wanted to do the colonoscopy and endoscopy, which obviously gave us our answer we were looking for. He is doing better since, however now he is getting spouts of constipation and he is taking stool softeners to help. Sad to go from one end of the spectrum to the complete other side. I am curious about the future and hope that he stays out of the hospitals with no pain. We have been lucky to have found such a wonderful doctor who made the whole procedure seem easy. I would recommend any mother or parent in general to follow their instincts to keep pushing for answers.

I have a 2 year old just diagnosed with Crohns. We did have known he had inflammation for some time, but finally got our prometheus IBD results back (simple blood test) positive for Crohns. We have not started treatment yet, but am very eager for our next appointment as he is in alot of pain.

My son has a similar problem. He has constant diarrhea with chucks of food ever since he was born. the most it has last is a whole month. I recommend for her to get a colonoscopy. My son is now 20 month old and he had a colonoscopy at 16 months thats were we found out it was an allergy going on the inside. Make sure you go to a pediatric GI for it to be done.
I as a mom was very hesitate at first with the procedure but it gave me a big relieve after.

I was personally told by my sons GI the youngest he has found crohns disease is 4 months.