I have an 8 year old who was diagnosed with Bicuspid Aoritc Valve 1 1/2 years ago. We "stumbled" upon the diagnosis after he had an "episode" one day. We were downstairs, preparing an early breakfast one weekend. I faintly heard my son (who was 6 at the time) wimper "Mom", then boom. He went down in the upstairs bathroom, I arrived about 5 seconds later, he was laying there, lethargic in a pool of urine. I scooped him up, changed his clothes and sped off to the hospital ER. When we arrived, they immediately gave him fluids and checked blood levels. Gave him a few tests and more or less observed him for a few hours. I begged for them to call our Pediatrician, to no avail. We were sent home with no answers. I took him to our Pediatrician the following morning. He was unsure of what had happened, especailly since he hadn't seen him in this state. He ordered a heart test, I'm not sure which one it was, but kind of an ultra sound on the heart. That's when we found the Bicuspid Aortic Valve. We never really found the root of the other issue though. Last night, I found a small lump on my son's neck. I took him to the Pediatrician today, he said most likely the lump is a lymphnode and not to worry, but he was concerned with my son's bed wetting getting worse, the fact that he's falling asleep in school etc. It seems as though all of a sudden, he's changed. There is no explanation for it. Our Pediatrician has ordered an EEG to see if there is evidence of seizures. Is it at all possible for Bicuspid Aortic Valve to cause seizures? I have such an odd situation here there are so many things that may or may not be related. I'm confused! Help!! Someone!! He's my little man..he needs to be ok and we need answers. If anyone can offer help, please do so. Feel free to email me directly as I'm not sure how often I'll check this forum.

Angel