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Conditions and Diseases > Chronic Fatigue Syndrome Forum > Who to see for chronic fatigue ?
What is chronic fatigue syndrome? We outline the medical definition, causes and risk factors for developing CFS in this intro section....
Symptoms of chronic fatigue are also common to other disorders. Learn to identify CFS symptoms and when to seek medical help here....
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Q: Who to see for chronic fatigue ?
asked by: nottellinnebody on January 9th, 2009
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I've have chronic fatigue since I was a pre-teen and I'm 23 now. It ruins everything. I miss so many things, I have no energy to enjoy anything or do the things that I want to do. I've dropped out of school so many times and I waste so much time sleeping or just laying on the couch.

I talked to my general practitioner and endocrinologist about it but they've run blood tests and are out of ideas of what to look for. Something is obviously wrong. But what do I do now to find out what? Who do I ask to see now? It makes me want to cry because life is so hard because of this (I already have enough problems without it) and I feel like it's never going to get better.
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kirbman1
replied on January 9th, 2009
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nottellinnebody
ask your doctor to run a test for Ebstein-barr virus or chronic infectiouis mononucleosis, you can also try to ask the doctors for a vitamin screening to see if you have any defficiencies, you could also take a B-12 supplement along with a lot of vitamin C and maybe an immune complex, you can also try some really dark coffee...keep me posted
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danielv
replied on January 9th, 2009
Advanced Support Team
You say that you have enough problems without this. Having alot of problems will do that to you. What's going on in your life if you don't mind me asking?

More often than not our emotional state influences our physical condition, and vice versa. It does not necessarily mean that you have some strange medical condition.

Feel free to write back.

Cheers!
Daniel
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nottellinnebody
replied on January 9th, 2009
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Kirbman, all these tests have been run and came back normal. Plus mono doesn't last 10 years. I try to eat healthy and I take a decent multi-vitamin. It's ironic but I don't react well to stimulants (coffee, etc.). I get shaky and very jittery.

Daniel, I've had chronic fatigue before things starting going wrong in my life and before I was even taking any meds regularly. I see a therapist and a psychiatrist and they both agree that this fatigue is beyond any mental disorder.

See what I mean? I've tried so many avenues for help but nothing pans out.
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bug6692
replied on January 17th, 2009
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I have the same problem with not being able to drink coffee, because it makes me feel awful(shaky,sweaty) You have some symptoms of fibromyalgia and chronic fatigue syndrome. I am 16 with an array of symptoms, and I am undiagnosed. They think I may have fibromyalgia, but they are not sure yet. Nothing has shown up on the bloodwork yet. I'm sure that they have tested your thyroid already.
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zigemyster
replied on January 17th, 2009
Moderator
Re: Who to see for chronic fatigue ?
nottellinnebody wrote:
I've have chronic fatigue since I was a pre-teen and I'm 23 now. It ruins everything. I miss so many things, I have no energy to enjoy anything or do the things that I want to do. I've dropped out of school so many times and I waste so much time sleeping or just laying on the couch.

I talked to my general practitioner and endocrinologist about it but they've run blood tests and are out of ideas of what to look for. Something is obviously wrong. But what do I do now to find out what? Who do I ask to see now? It makes me want to cry because life is so hard because of this (I already have enough problems without it) and I feel like it's never going to get better.


Have you had a sleep study? My daughter has chronic fatique and she had a sleep study and it was discovered that she was sleep surfing...not getting to sleep even though she thought she was sleeping. She is now 21. I don't recall the exact name of this but it is a sleep disorder...
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simonbest84
replied on February 9th, 2009
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This sounds horribly familiar - I too have been feeling like the above for about 4-5 years. Although along with the fatigue I suffer from constant dizziness. As you can imagine this is horrible.

I'm not so much posting to say that I can help - just posting to let you know that there are other people like us out there; the kind that have a medical condition that no one can/are unable to diagnose.

Cheers, Simon
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worrywart01
replied on February 9th, 2009
Extremely eHealthy
you said you eat healthy? diet can definitely effect this..eating healthy will give you more energy and excercise also helps...if you lay around all the time you're just going to feel more tired..get up, go for a jog or go to the gym..it gets you goin and makes you feel good
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Blulemon
replied on July 7th, 2009
New User
Please please people...
Telling her that getting up to take a walk will make her better is very old school. Yes there are many people for whom this will work. But not people with Chronic Fatigue Syndrome.
I have had it for almost 20 years. And before getting sick I was fit, in-shape, healthy and of a good weight. Then I came down with what I thought was flu....but it didn't go away. My GP told me she thought I had it. I was lucky to be in a city where there was a true specialist. After testing me for everything else, I was finally officially diagnosed with CFS and FMS (Fibromyalgia).
CFS is mostly diagnosed by exclusion, though you have to fall into the set of symptoms given by the CDC. You can go to their web site. Though there are better sites run by various advocacy and support sites.
Do more research and maybe you can find a Dr who specializes, or at least have information with which you can work together with your present Dr. If he/ she is amiable to helping you with your condition ..stay . If not , find a new Dr.
Good luck
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