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Conditions and Diseases > Parkinson Disease Forum > What to expect Parkinsons
1/2 million Americans are diagnosed with Parkinsons. Click here for basic information and a definition of Parkinson Disease, a movement disorder of the brain. ...
Do doctors know what causes Parkinson's Disease? And who is at risk of developing the disorder? More info on risk factors here....
We outline the common symptoms of Parkinsons and list the types of movement disorders that accompany the disease. Plus, know when to seek medical help....
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Q: What to expect Parkinsons
asked by: psyverson on June 10th, 2008
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My dad was diagnosed with Parkinsons in the summer of 1999. He thought he had tennis elbow from playing so much and working so hard in his garden. It has been almost 9yrs and obviously he has gotten worse. At first he was fine, but as the years progressed his tremors grew worse. Also depressed by his lack of mobility he has gained about 35-50lbs, which is also not healthy. At 58yrs old he is now on Parkinsons drugs, but seems to have trouble sleeping normal hours and nods off all the time. His tremors, of course, have only gotten worse, spreading from his left to his right hand. My mother, his wife, passed away unexpectedly in late 2004; this of course greatly added to his depression. I'm writing to ask what it is I can expect from this disease. What can I expect to see happen to him? He isn't the same physical man I knew as a child, but he is the same man I have always loved, well except now he can't chase after me when I do something bad Laughing ! In all seriousness, I would just like some thoughts and experiences you all have gone through.

Thanks,

Pete
New Orleans, LA
USA
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Dr. Nikola
replied on June 11th, 2008
Doctor
Parkinson disease is incurable and progressive disease so, unfortunately, you can expect that his condition will get worse. He will probably need someone to take care of him because in time he won't be able to do any usual daily activity (going to bathroom, eating etc.).
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psyverson
replied on June 11th, 2008
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I fully understand
I do understand his condition will worsen, but what ends the life of people with Parkinson's if not Parkinson's?
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Dr. Nikola
replied on June 12th, 2008
Doctor
People suffering from Parkinson's disease when become completely imobile and lie in bed all the time usually dies from lower respiratory infections (bronchopneumonia) combined with heart failure.
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jeanpeirre
replied on June 27th, 2008
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Assistance with PD
That doctor's reply is a real ray of sunshine! My wife has PD. We searched the web and went to China for stem cell treatment. She is much better but has $40k less in her bank. To reduce intake of the usual medications which have a reducing effect over time, irrespective of the disease's progression, we found neurotransmitting balancing on the web. (D5 , D5 40%). She now takes a tiny amount of Sinemet along with capsules which balance the neurioransmitters in the brain. All is not doom and gloom. Search the web. You have nothing to lose but may regain part of your father.
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cassandra2
replied on August 18th, 2008
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hello..reply message.
Sorry to hear that your father has parkinson's disease..it is a slow eating disease basically that eats your body up..like the nerves and everything. My grandfather currently has parkinsons disease and has had it about five or six years already and I mean from the beginning until now he has compltely went down hill. He does take these medications for parkinsons disease to help him live his life..you know he takes them like six times a day to help him be able to do the things that he wouldn't be able to do without the pills but they don't always work..of course because he doesnt like drinking water and in order for the pills to really take effect good, you have to drink a lot of water. When he doesn't have his pill in him (parkinsons disease pill) he needs help getting off the toliet, getting out of a chair, cutting up his food...my grandmother has to give him a shower because we don't trust him in there alone because he already had one fall in the shower a few months ago so basically it is a sad slow eating disease. I hate to depress you with this message but I am only telling you the truth based on my experiences. Right now there are no cures for the disease but of course they have the pills to help the patients be able to live a little better and do the things they love. In the end..They say that parkinsons disease patients will just completely shut down..and they will become wheel chair bound but thank God my grandfather hasn't gotten to that point yet and I hope he never does. Please keep in touch and let me know how your father does..I don't know if you heard but there are special like utencils for people with parkinsons disease and all that stuff so if you want to check into that..that could help a bit. Also a caregiver would be something to look into.

Take care, best of luck and God bless..
Keep in touch!
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desdemona222b
replied on April 6th, 2009
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I'm really sorry to hear about your father. My mother had PD Plus and as the doctor said, she gradually became a complete and total invalid requiring round the clock care. Some resources say Parkinson's isn't fatal, but I disagree. She was finally unable to swallow, but Dad didn't know that was what was going on at first because she was unable to talk or write. She then developed pneumonia and had a heart attack. We lost her on March 7.
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curlyhead
replied on July 6th, 2009
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My mother also has parkingsons. She is in her low 50's and was diagnosed 8 years ago. She still has young children living at home. She also has trouble sleeping at night and therefore many times takes naps during the day. Her ability to do housework is limited so she hires alot of help for that. She does what she enjoys doing which is writing, counseling and lecturing small groups. She is still driving well. From what i hear if one gets it young then it progresses slowly. I do sometimes worry about the future but worrying does not help much unless it leads to action to help the situation.
My grandmother who is 77 was diagnosed with parkingsons the same year as my mother( her daughter). She managing pretty well also. She lives at home with her husband and has minimal household help and does not need any help with self care. She is also still able to drive.
I think emotional health is an important factor in helping keeping it at bay. Find something that your father could do with parkingsons that could keep his spirits up. Maybe volunteering some where.
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conniemacaroni
replied on September 17th, 2009
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Last Stage of Parkinson, to Dr Nikola
Hello there,

I'm sorry to hear all these sad stories. Parkinson is NOT a virus NOBODY dies from Parkinson but for anything else, I read that persons wih PD forget how to breath, swallow and other primary functions. My father has parkinson and he's now in personal care 24hrs, he needs help to eat, shower, dress; he's in wheel chair but can't be long he prefers his new hospital bed, etc. He even had two visits to ER for pneumonia and got an UTI but he's suffering very much, Dr Nikola: you think my father could live this way for may years..?? Thanks
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