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What can cause recurring leg pain?

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Hi, I have a really weird problem. I have pain in my legs, it never goes into my feet or above my thigh but it can be either in the leg area or the thigh area or both and it can be either leg or both. It comes and goes at random times and lengths as well as strengths with no discernible pattern. My doctor is unsure what it is, but has refused to prescribe me pain killers (over the counter ones like tylenol, aspirin, and excederin haven't been effective at all) and is referring me to a physical therapist. The pain can be anything from ignorable, to strong enough to wake me up at night. It doesn't matter if I'm sitting down, have my legs laid flat or not, or if I'm walking--the symptoms are not modified and this makes me wonder if a physical therapist can really help with this. Is my doctor directing me correctly, or should I consult a pain specialist or something?
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replied July 9th, 2009
Response or lack thereof to physical therapy can help in diagnosing pain syndromes, so I'd see the PT. Your symptoms are indeed a bit unusual, the absence of position or exertional components suggest neuropathy. Useful tests to consider, beyond the basic chemistry and blood count, are CRP and 25OH-vitamin D levels. CT or MRI of your lumbar spine would identify spinal stenosis and nerve conduction velocity and EMG would help rule out (hopefully of course) neurodegenerative diseases.


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replied January 13th, 2010
I have the same thing - have had it since very early childhood (about 4 yrs old) and I'm now in my late twenties. 2 Extra Strength Advil usually gives me relief for about 8 hours but I really don't like taking pills twice a day just to be able to function. My doctor just said, "if the Advil works, keep taking it" although she did have me tested for MS eventually.
No idea what causes it - it's very frustrating! Feels like a burning cold deep in the bones.
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replied January 25th, 2010
Me too!!
Caireann wrote:
I have the same thing - have had it since very early childhood (about 4 yrs old) and I'm now in my late twenties. 2 Extra Strength Advil usually gives me relief for about 8 hours but I really don't like taking pills twice a day just to be able to function. My doctor just said, "if the Advil works, keep taking it" although she did have me tested for MS eventually.
No idea what causes it - it's very frustrating! Feels like a burning cold deep in the bones.



i can't believe i stumbled across these posts. i've thought i was the only person who experiences pain like this! it's similar to the feeling of 'growing pains', yes? that deep, almost intractable ache in the bones of my legs. mine has become a constant, 24/7 thing. though mine started out just in my lower legs/thighs, it has since moved to the tops of my feet and my hips. i wish OTC pain meds could reduce and/or control mine, but i am really glad that you're able to get relief. nowadays, it's not just that; i have been diagnosed with fibromyalgia (kind of a "well, your symptoms are similar and since we can't find what could be causing all of this, it's most likely fibromyalgia.") and small fiber neuropathy (confirmed via skin biopsy). i also have hypothyroid, but am not sure if it plays a part in all of this.



it's kind of random, and i don't wish pain on anyone, but i am so glad i stumbled on these posts. for so long i have tried to explain how it feels but am usually met with blank stares and a feeling that i'm a weirdo. i hope that you will be able to continue to manage your pain and live a wonderful and full life. good luck!

also, if you want to talk, feel free to message me^.^
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