Vulvar Lichen Sclerosis

Hi everyone,
I was diagnosed with Lichen a few months or so ago. I have been doing as much research as I can and trying out different things to help it from worsening. I have come across questions along the way. Most websites say generally the same thing.

My history- I was told I have mild lichen. The main symptom was being very itchy. My skin didn't start discoloring until about a month before my biopsy and only in a small spot. I used clobetasol (sp?) for almost 2 months. I feel I have it under control for the most part (as far as I know). I just have little itches here and there. I still use the cream about once a week or so.

My questions:
I am absolutely terrified of losing my vulvar area and sexuality. I am not able to find clearly why the vulva area shrinks and whatnot. Is it due to so much itching, which in tern causes it to scar, etc? Or does this just occur naturally? I just don't understand. Is the main goal to prevent from itching so it doesn't cause further complications such as cancer and shrinking etc? Can the degree of lichen change with a major flare up...for example someone have very minor lichen and then a major flare up occurs which makes the person have severe lichen?

I am only 24 years old. I am wondering if anyone has had this for a long time and has been able to manage it and keep a normal sexual life, etc? Or am I doomed?

I am trying to do as much as I can to control this. I don't know if it's a lose lose game or if many people are able to control this. From what I read from people, a lot of it makes me feel like the future doesn't look very bright in that sense, but I keep the hope!

Please help!