My mother was recently diagnosed with viral encephalitis, the typr and source of the infection unknown. The doctors discharged her from the hospital and haven't given us much guidance on what to expect and how to manage her full recouperation. Do I follow up with an Infectious Disease Specialist, a Neurologist or who? She has not been sleeping well at all and since her discharge 6 days ago she seems to be doing 'wrose' than she was in the hospital. She left the hospital with considerable memory loss(short & long term), and over the past few days, her memory seems 'worse', she is a bit more confused, especially with daily events (i.e. asking for breakfast an hour after she ate it) and hallucinations (during the night) are starting. I am not sure what's going on, if it's a result of the virus, lack of sleep her meds or all of the above. Which doctors is best to follow up with? Help!
Swine Flu, Viral Encephilitis AND Viral Meningitis
My mother is currently in a Florida, Jupiter Hospital and diagnosed with swine flu H1N1 (positive), viral encephalitis AND viral menigitis. Four Doctors (2 neurologists and two infectious disease specialits) have been aggressively treating her with steriods (deramethazone) and tamiflu. She was in ICU for 12 days before there was some progress with aggressive steriod treatment. The steriods reducued her brain swelling and she appeared to be getting better. They discharged her and she was ready to leave the hospital. Within hours, she relapsed, and the hallucinations and extreme headaches returned. Another MRI was ordered and the brain swelling was back. She was never released. We are going to air ambulance her,(charter a private medical jet) and get her back to our home hospital this Monday. We have another neuroligist that is taking over once we get her back home. We were told that there is no known treatment for being diagnosed positive with Swine Flu, AND Viral Meningitis AND Encephilits - ALL at the same time. She almost died. The CDC,(Centers for Disease Control) The Florida Health Department, FL State Department, and The Department of Veroligy are all being briefed on her symptoms and conditions. Other doctors in Texas are also involved - they have young patients that have Swine Flue and Encephilitis. My mother is 72 years old and was in PERFECT health before contracting H1NI. The specialists and the CDC do not know how to treat her and dont' know why or how the swine flu virus attacked her brain and her spine. Very rare. The docs ruled out Equestrian, Herpes, West Nile, Lines, Shingles and many other virus's. Need your help if you know of others that have the same complications or have comments.
Hi - so sorry to hear of your situation, I can imagine how terible it is. My mother ended up having some type of a 'relapse' too a few days after being discharged, but her repear MRI indicated the virus and swelling were no longer present. They never officailly diganosed her relaps, which was hallunications and more or less said it was related to the days she had with minimal sleep. She was treated with an anti-viral med dueing her initial admission which they stped after several days and determining that her strain of virus was not treatable by anti viral drugs. They also had her on antibiotics until they knew what it wasn't. Are they sure her meningitis and encephalitis were the H1N1 viral strain? Not sure this was much help, but I do hope your mother is well again.