Vaso Vagal Syncope

I was diagnosed with vaso vagal when i was 4 years old. I am now 23, when I was young I used to have seizures until they diagnosed me with vaso vagal. I was put on florinef & a salt tablet. When I turned 18, my adult cardiologist took me off both pills, his beliefs were I shouldn't be on any drugs at my age even though I am hypothyroid and taking synthroid. To this day I only have the blood pressure of a 5 year old, my average is 90/50 when I should be in the hundreds. I have not had many issues since being off those meds since my daily salt intake is quite high. But lately I have had that dizzy, lightheaded feeling for no reason. seems to come and go all day. I know how i feel when i am about to pass out and it is not the same feeling, nor do i get shaky or weak in the knees. Any ideas why I am having this constant feeling?