Having been diagnosed with Mono 3 wks ago (onset probably July) and finally looking into forums, I am quite struck by both the wide range of Mono symptoms, the commonality of certain symptoms, and the lack of âofficialâ information.
For instance, this past week I have had debilitating dizziness/lightheadedness that I couldnât describe â until I found a post here (canât remember who): "lightheaded almost, dizzy sort-of, but not really... as in I'm not actually dizzy." Perfect!
However, this symptom (which not everyone experiences) is not listed in the official literature, and until I started looking into the forums, I had been panicking that my real problem was some other undiagnosed terminal illness. But I am reading âdizzinessâ posts all over the place.
It is very helpful to me to hear the varied experiences of the posters here. There are many myths about Mono: you CAN have it more than once; older people CAN contract it (I am 49, and have seen many other people in their 30âs thru 50âs posting); depending on the person, certain âtypicalâ symptoms may NOT present, i.e. sore throat, fever, rashes, while other symptoms DO.
And if I hear one more junior-high-humor-quip from my friends about it being a âkissing diseaseâ Iâll scream (if I have the energy.)
Hi. The one thing I have noticed about mono/epstein barr virus, is that the symptoms vary greatly from person to person. I, like you, contracted Epstein Barr later in life. I got sick a little over a year ago and was 40 at the time. I did not actually have "mono"-type symptoms. No sore throat, no swollen glands, no fever. What did get was a lot of neurological symptoms. I had numbness and tingling in my legs and face, sensitivity to light, eye pain, over-all muscle weakness, (although much more prominent in my leg muscles) fatigue, and the dizziness that you are describing. I am much better now, but have had a couple flare ups over the last a year. My doc says that at our age, it can take 2-4 years to be 100% normal again. I hope it doesn't take me that long!
I am 41 and waiting for my blood test results. Physicians assistant in my doctors office said I sound and feel (glands and spleen) like a classic case of mono, doctor said he doesn't think it is because of my age. So discouraged right now. I hate the fatigue and exhaustion. It's so not like me to be like this.