I am 42 yrs old, and diagnosed with a myopathy 11 yrs ago. My question is this.... I have had symptoms since early teens of a muscle disorder, and now am trying very hard to type the condition I have. I was told at one point it was possible lgmd, now they are thinking it isnt, but was told it is a form of muscular dystrophy. How were you di... more

Hello everyone, I just found this board, and was wondering if you all could give me some insight. Let me explain... I have been dx (11 yrs) with a "myopathy of unknown etiology" in 2003 a neurologist I visited thought it was possibly lgmd. I went about my business and daily life trying to get thru each day the best I could...But my sym... more