Hi i have just got your message,How long have you had your diagnosis sounds like pretty recent ! i have had mine for 3 years although it was a long journey to get it at first it was thought to be a back problem then possibly ms and finally i saw a consultant and as soon as he saw me walk he said i suspect md i didnt know anything about it then but ... more

Hi its angie had any joy getting a diagnosis yet i've just come back from my specialist he only needs to see me every 9 months but is still waiting for results of the muscle that's being tested keep in touch

Hi my name is angie I am 37 and was diagnosed with limb girdle md in june last year it was a shock but it was obvious something was wrong my main problems are stairs and getting out of chairs.I can walk but with difficulty just joined the forum as thought it would be nice to be in touch with other md sufferers and find out more can any of you tell ... more