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kait77
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13 posts since July 29th, 2005
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9617 views
Blood Clots (dvt)
Lupus on 08-29-2005
I do not nor have I ever had dvt although I am at some risk for it. When I was last pregnant my original rhuemy said I should be put onto lovenox (sp) as it was easier to monitor and adjust. I do not know if this will help but figured maybe it might since most people I have spoken with are put on cumodin (sp). I wish you luck and hope that a hap... more
1717 views
Lupus Nephritis
Lupus on 08-29-2005
If you can not afford the medication and it makes you to ill to continue anyway call your doctor immediately! There are alternatives and furthermore many pharmacutical companies will give you the medicine free or at very low cost if buying it is a financial hardship. I am including several links that may assist with the costs. If you are in the ... more
1099 views
Celebrex And Vioxx
Lupus on 08-29-2005
Personally I was extremely dependant on vioxx before they pulled it off the market- I took 50mg a day and was able to function at about 75% of my former level (also on plaquenil at the time). Unfortunately the same time vioxx was pulled my blood work suddenly turned neg and my dr un dxed me and pulled the plaquenil too. I spent a year trying to f... more
3755 views
Sitck With My Instincts??
Lupus on 08-29-2005
Has your kidney function been tested? Protien in urine is not good and neither is wbc in urine. Your doctor sounds like he doesn't have a clue what he is dealing with and thus is assuming since the tests that were run are normal nothing is really wrong. Hopefully the dermy will do a skin biopsy- tell him/her about the ulcers in your mouth too. ... more
1047 views
Pregnant With Fibromyalgia And Connective Tissue Disease
Lupus on 08-29-2005
I know that for years patients who have received transplants (usually a kidney) have taken imuran without any apparent bad effects on pregnancy or the baby. I know about the imuran because my rhuemy put me on it last week and explained the issues involved to me. She also made the point about pregnancy due to my age. I personally can not have ano... more
856 views
Please Help
Lupus on 08-16-2005
You need to keep a symptom log and also log your temp at least 3 times every day. If you get rashes take pictures. If your toes turn purple again have your husband take a picture or ten. Doumenting everything will help the doctor figure out what is wrong. Never ever again fail to tell your doctor of a symptom no matter how small or insignifican... more
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