Hi All I have been ill for nearly 3 yrs, i have posted on here a few times as wondered if i had MS or MG but my GP is sending me to a neuromuscular consultant in a few weeks time and the condition neuromyotonia or isaac's syndrome and some know it has been considered can anybody give me advise on this condition or anybody who has it i loved to mee... more

Hi

Thank you for your reply. i am going to queens square to see a dr kullman who deals in MG and other auto immune and neuromuscular disorders but its not till end of August i hope i will get some answers then.

how long did it take for you to be diagnosed?

sam

Bless him Me and my husband have a strange relationship he left last year in august and we have been living apart for a while now first things were bad between us but now we are best of friends again and i have learned to deal with my illness better and this in turn has helped our relationship through out everything i have always maintained a good... more