kayakmom
Experienced User
247 posts since June 21st, 2004
Experienced User
247 posts since June 21st, 2004
kayakmom's posts
Talk this over with the neurologist, but do not be surprised if he does not want to go along with your plan.
Have you ever had a long Video EEG?
My son was taken off medication for a time during a misdiagnosis and it caused seizures to become more difficult to control. I know that the side effects from the medications are very hard to cope with a... more
I am so sorry this happened. Have you had any tests like an EEG after your seizures? It sounds like a seizure. Having tests are very important to see what is going on.
Anxiety afterward is not uncommon. Your brain is misfiring neurons and the mixed up messages can cause confusion and make you feel anxious and afraid. Of course feeling out of cont... more
Have you tried any of the diets? They have some success for adults on south beach or atkins for seizures. They also have the vagus nerve stimulator that helps some who have epilepsy.
I am sorry that none of the meds seems to help at all. There are a lot of meds out there, but all have a lot of sides.
I am sorry that none of the meds seems to help at all. There are a lot of meds out there, but all have a lot of sides.
I am not sure how old you are, but consistancy of use of epilepsy medication is extremely important. You need to speak with your neurologist and take the medication exactly as perscribed. Discuss any problems with him or her. It does take weeks and sometimes months to get used to these meds.
I take topamax for migraines and know it can take a ... more
Thanks for explainging more.....Have you looked into any of the newer ones like neurontin, possibly lyrica I have seen a few try for some generalized seizures, zonegran is sometimes used for generalized seizures ( my daughter was one of them), felbatol is used for some as well....Seems like the list is so much shorter for generalized seizures than ... more
So I am not clear from your post. It does not sound that you were diagnosed as having seizures. It is possible to have seizures even if the eeg is clear if you did not have a seizure while you had the eeg. Eeg is just a short period of time. Ct can and mri is frequently normal even with someone who has epilepsy. Epilepsy is just a term which m... more
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