Hi there. I understand the disorientation feeling. I would estimate that I sometimes spend up to an hour a day feeling like that. It's particularly bad when I go to bed at night, but only if it's dark (which is why I'm writing this at 3:27 am). I've found it difficult to describe too, even my optician doesn't understand it. I've only ever met 1 p... more

Hi, it's great to hear about someone else's experience, but I'm really sorry to hear that you're suffering from it. For me, it tends to be mainly when I look upwards, for example looking at a street light closely at the bottom and then moving up it to look at the top. That gives me a lot of dizziness and disortientation. But I do sometimes get it ... more

Thanks for the reply, my mum was actually diagnosed with this recently, so I've done quite a lot of research into it. At first, I thought I might have suffered from this too. However, the dizziness on looking up is very specifically when I'm standing up, rather than from the movement of tilting my head back. As far as I know, in my case it's cause... more