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mia
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146 posts since January 25th, 2004
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1918 views
Severe Foot Pain
Lupus on 06-20-2007
if this is auto-immune related two possibilitites come to mind: raynauds or periphrial nueropathy. when your feet swell and turn red are they also hot? If so, you might try putting them in cool water for a few minutes. Be careful, however or it could go the opposite direction and they could get cold and turn white or blue. periphrial nueropath... more
3462 views
Chest Pain And Lupus
Lupus on 03-23-2007
I was diagnosed in 1989 and have had vague chest pain for a long time. However, 4 years ago I awoke in the middle of the night with an elephant on my chest! I couldn't breath. I couldn't stand up straight. I could'nt even get my self dressed to go to the er! I spent 4-5 hours in the er, with them thinking I was a drug seeker. they ran thousands... more
30306 views
White Sore On My Tongue
Lupus on 06-28-2005
I have mouth sores like you wouldn't believe, not only ulcers but glossitis and geographic tongue. I have found you have to avoid spicy, citrus foods, mouth wash and most toothpaste. Crest has a new advanced sensitive paste that is great. Take mega b-complex 100% take twice the recommended daily amount because you probably are experiencing ... more
1105 views
Methotrexate, Anyone?
Lupus on 06-28-2005
I have been on it for 9 months now for exactly the reason you stated and because nothing else would get my lupus under control. The first few weeks were difficult with the nausea and photo-sensitivity, but i'm prone to these to begin with, so this may not bother you. Also, there are the pills and the shots. I got the chills and felt really ba... more
2887 views
Just Need Some Support From People Who Know..
Lupus on 06-09-2005
I've been diagnosed for 13 years and people still don't understand and they probably never will except here and in local support groups and your doctors waiting rooms. Take the oppurtunity to talk to people whenever you go to the doctors office or if you are waiting for blood work, you never know if you are going to learn something from someone s... more
1625 views
Disequilibrium, Pain Around Eyes And Nose, Sour Mouth, Help
Arthritis on 05-25-2005
Sounds just like ,me for years! First of all, she has sun sensitivity, also it sounds like she is dehydrated and has a b-vitamin deficiency that is causing geographic tongue and or glossitis. All of these are pointing to covert symptoms of lupus, but if this is all you have no doctor will take you seriously. First, you need to start writt... more
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