Hi viki i was diagnosed with jme when I was 19 - i'd actually had it since I was 17 but I thought the jerks and twitches were nothing to be concerned about until I had a grand mal seizure and then I went down the road of being tested for epilepsy and the result of a sleep deprived eeg came back as jme. I take epilim (sodium volporate) to contro... more

Hello annette i tried taking topmax and got to 100mg per day but had to come off it. I had bad side effects and was told they would just get worse if I stayed on it. I lost my appetite, lost weight, had spells of nausea and dizziness, I would lose my balance, had modd swings and would burst into tears and wouldn't be able to stop crying over t... more

Actually I have found more info on this type of epilepsy which says it can start at age 8 - think it may be of interest to you: juvenile myoclonic epilepsy can develop between 8 and 26 years of age, but occurs mainly between 12 and 16. It is characterised by myoclonic episodes, or jerking motions, which mainly affect the upper limbs. Conscious... more