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Conditions and Diseases > Urinary and Bladder Disorders Forum > Urinary retention and Interstim device implant
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Q: Urinary retention and Interstim device implant
asked by: DS on June 29th, 2009
Experienced User
Hi all

I was just wondering, as I have severe chronic urinary retention, if any of you have had the Interstim Medtronic implant device for this particular condition and also if any of you know any hospitals or consultants in the UK that actually perform this procedure as I am desperate for treatment and self cathing is definitely not for me - it's too painful and inconvenient.

Many thanks for any help or advice any of you may be able to offer.

Kind regards

DS
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garfieldgal
replied on June 29th, 2009
New User
Please post whether you are a male or female - help for your condition may be gender related. tks.
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DS
replied on June 30th, 2009
Experienced User
Hi, garfieldgal. Smile

Thanks for your reply.

I am a female.

Kind regards

DS
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hooverio
replied on August 21st, 2009
New User
You need to be referred to the National Hospital for Neurology and Neurosurgery at Queen's Square - if you are diagnosed there with Fowler's Syndrome you may be eligible for an interstim implant. http://www.ion.ucl.ac.uk/fowlersyndrome/
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DS
replied on August 21st, 2009
Experienced User
Hi, hooverio

I saw the professor of uro-neurology there but she did not know what to do with me and only suggested taking my indwelling catheter out. She said that my health problems are too complex for her to deal with...

She has just discharged me without testing me for fowlers syndrome and does not want to see me again unless the lumbar puncture results come back negative.

To be honest, I do not understand her logic as she could still treat whatever bladder retention I have with a neurostimulator even if the lumbar pnucture does show something?

I am real confused...

I would definitely not want to see her again as it was pointless in my opinion. They must think I have nothing to do...

Is there anywhere else better that treats patients with more respect and is up-to-date in treatment options?

Kind regards

DS
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