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Undiagnosed MS - need meds

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My step father has had MS symptoms for the past 18 months, the first MRI showed a few white spots on his brain but further MRIs have not shown changes therefore no diagnosis could be made.

Symptoms are all MS related eg stabbing pains, fatigue, dizzyness, general pain. Is currently on lyrica (Pregabalin) and endep (Amitriptyline) but they provide no relief.

Specialists won't prescribe any MS drugs as he is not diagnosed, how can he get and try these different types of medications, such as research centres etc? we are located in Australia, he is willing to accept any side effects from such drugs however specialists are unwilling to try them out.

Thanks
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replied March 3rd, 2009
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Generally if all other diseases have been ruled out and it seems that MS might be the culprit but no definate dx has been given...some docs will go ahead and prescibe MS drugs...while others will not.

If his current doc(s) are not willing to work with him may I suggest that he seek a 2nd opinion.

I know of no drug companies that will give medication without a prescription....
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replied March 4th, 2009
he has already gotten a second opinion, and all of them basically say theres nothing they can do, but surely theres nothing to lose by trying the drugs out?
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replied March 4th, 2009
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If everything else has been ruled out and all that is left at this point is MS and the doctors do not want to put him on any medication as they are waiting for a more definate MS attack or lesions, etc...

Why wait for MS to progress when there are drugs that can help...no cure, just slow it down.

Back to your question....they may be afraid that it is not MS and an MS drug may make matters worse....that I do not know.

I would go back to and discuss this with his doctor(s)...
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replied March 12th, 2009
Experienced User
undiagnosed ms need meds
my sister has diagnosed ms, she doesnt believe in nutritional deficiency to be a cause of bad health, doesnt believe in supliments. Me on the other hand, have suffered many of the symptoms that she endures but i have studied & persued nutrition like my life depended on it, i don't have the problems with pain(cramps & spasms) at the mo. as zygmister says the medics have to be careful they don't make matters worse - however my sisters specialist has recomended magnesium supliments to her. What we must remember is to be careful to gain balance between vitamins & minerals otherwise we can in ourself create other issues, I have seen studies on the relativities between ms & thyroid imbalance due to nutritional deficiencies or excesses.
Hope this helps, If there is some way to share what i know with you or anyone else i would be glad to do so.
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