Hi. My baby is 7 mths old and until he was 4 mths old had had no real problems apart from reflux. It began with seizures and involuntary movements which became more and more frequent. The seizures are being controlled with meds but the involuntary movements cannot be controlled. When Seth is awake he is moving continously and can only get respite from being asleep which has to be induced by sedation medication. He has no development and is like a new born baby. 10 weeks ago he lost the ability to feed orally and now has a gastrostomy. MRI scans have shown the brain has already started to degenerate but after every test possible we still have no diagnosis. We are devestated as you can imagine but having a diagnosis would possibly help us try and accept this situation. Does anyone have any ideas or experience with this sort of thing. We have nobody to talk to and are finding the unknown very difficult to deal with. We also have a 2yr old son Bailey who is fine.