I also might have an issue with possible elevated levels of mercury. I got a fairly large tattoo when I was about 18 that used a good amount of red ink in it, among other colors. I also have eaten an enormous amount of canned tuna and fish over the years. Partly because it was good for muscle building, etc. Started eating at least a can day when I was about 14 and went off and on for a little while, but it has always been a staple in my diet.
Lastly, I think that my body is very sensitive to things like medication, etc. The way my body reacted to the T cream and shots and the cortef, probably indicates something. Maybe my immune system is very sensitive or some other body system is very sensitive. Not sure what it is, but its important to point out.
My biggest symptoms: The number one issue going on for me is an uncontrollable appetite and constant hunger. I actually feel hungrier right after I eat sometimes. I noticed a few food allergies starting to develop several months ago, so I have cut out various foods, but it still did not make a difference. I have eat every few hours or I almost feel sick and cannot function very well. This has been going for a number of years and slowly gets worse every day. It feels like I am not absorbing any of the food I am eating. I am currently looking for the underlying cause of this issue and will really need your help figuring it out. I am hoping the test results I am waiting on will show something in these regards.
In a sense, I am virtually eating myself to death. I do workout a few times a week and eat healthy food, and this keeps me somewhat in balance, but my health progressively gets worse. I very rarely enjoy eating a meal and it is essentially just a constant hassel to eat all the time. Very mentally draining, especially when your health deteriorates by the day.
The second thing is finding out what is causing the pain in my head, neck, and spine and numbness in the arms. I thought at first it might be MS or something similar, but it is not. I had all the tests. I think it is somehow related to my gastrointestinal system, toxins, poor blood circulation, or vitamin/mineral defieciency. I think the fact that all these symptoms came back after taking one of the worst antibiotics for disrupting your gut flora, Keflex, is a very good sign that the stomach and my CNS symptoms might be connected. And from I read about water, it can dilute toxins in your body, and that is probably why I felt better drinking alot of it.
Next is a frequent urination issue. I have been going to the bathroom almost 20-40 times a day for the last few years. At least 5-10 times at night sometimes. I have however also consumed a good amount of water throughout the day, so endo's ruled d insipudus. The urination all the time is a terrible burden on my life. Can't really ever relax and always looking for a bathroom somewhere you go. And I was checked out by a urologist who did various tests checking for a problem, like restriction or bladder spazm and everything is fine. I think it has do with me probably having low T for so long I am losing sensation or something. I remember reading something I think Dr. Shippen wrote about when he said that alot of testosterone receptors are located in mens genital area and when he has low T, it is very common that he also has frequent urination as well.
Also, weight gain and weight is an issue for me. I am 6'0, 300 pounds and am overweight. It has profound effect on my health. Ever since the CNS symptoms started to happen, I cut out lifting and stuck with running. I could barely run well before this because of so much pain in my ankles, feet, knees, etc. I actually cannot even do sprints any more or jog that well because of plantar fascilitis. I do still push through it though and can barely walk normal for a day or two after working out, just because I have to keep exercising.
Lastly, is my T and energy level. Both are very poor. I am however focused on the other areas of my health first, because I think as I start losing weight, my T will go up and I will have more energy.
What I am suspecting: I think there is some serious issues going on in my gastronintestinal system and or with detoxification of toxins. I have to figure out the underlying cause of why I am so hungry all the time and cannot lose any weight or put on any muscle. I am not sure if it is an issue with my intestines maybe very damaged and they are not absorbing nutrients properly. Could possibly be an enzyme defeiceiny because my bile flow is somehow blocked or bile isn't being utilized properly. Maybe some kind of infection with candida/parasites/bacteria, that is robbing me of all of the imporant vitamins and minerals and signaling to my body to keep eating. Not sure here but this is my #1 focus as of now. I have completed a one stool test so far that showed I could possibly having a problem with candida. I waiting results of another stool this week that will show alot more information.
I am not sure what is going on with detoxification and its pathways, but I think mine could be very messed up right now. From understanding, alot of times people who are struggling with weight gain have alot of fat soluble toxins being stored in their body fat. And the process of the liver being overworked all the time just keeps fueling this process. I am interested in doing some testing to see what is going on here and possibly some trial and error with medications to see if something can work. However, I think the stomach has been addressed first, then come detoxification from what I have read. But in my case, they might be connected, not sure yet.
I am trying to figure out what is causing my low cholesterol levels. I feel this issue is directly connected to what is causing some of the underlying problems in my case. It could be connected with the bile and liver somehow. Or maybe the indirect result of me not absorbing food properly. I am not sure where it fits in, but know that its important.
I am trying to figure out what is causing the anemia and issues with RBC's. I also feel that this is connected to some of the underlying problems in my case. What I am having a hard time trying to figure out is why its happening. I am not sure if the iron and RBC's are getting used up from something in my gi tract. Maybe some kind of internal bleeding. Or possibly the levels are low because my body is trying protect itself by hiding the iron from an infection or pathogenic organism. Maybe a toxin like mercury is causing the anemia, but seems unlikely.
In regards to the pain I am experiencing in my head, neck, and spine and the numbness in my arms sometimes, I have at least ruled out a few things. At that is I don't have MS or any other neurological disease, and any other major illness that traditional doctors can find. I am suspecting a possible poor circulation of blood flow because my hands and feet get cold sometimes. And the anemia could be contributing the blood flow issue as well. Or possibly one vitamin/mineral deficiency or multiple ones. Or maybe some kind of toxin, such as toxins from candida/parasite/bacteria, or possibly an environmental or heavy metal like mercury.
Right now I am waiting on a few test results and looking for ways to control my appetite. I looked into possibly juicing fruits and vegetables to help with weight loss and detoxification while I am trying to figure out the underlying causes of my problems, and it seems like a very viable option. I am also looking for doctors that know about some of the issues I am suspecting and will be trying to schedule appointments with them in the near future.
The only thing I am a little worried about now trying to put these pieces together. After the T didn't work for me and the adrenal/thyroid medication didn't work, this an area where not too many people know what to do. There are some people such as functional medicine doctors and other integrative doctors that probably would be able to help and that is who I will be working with. The point is that cannot give up or will not give up. I know my situation is a difficult one, but I have learned alot and continue to learn and will not stop until I can regain somewhat of a normal life. As mentioned earlier, with all the good people out there willing to help and advances in modern medicine, there has got to be some way to improve the quality of my life.
If you can think of anything that might help me in any way or have any questions, please respond to the thread. I will post test results and progress as they develop.
This might sound like alot to try an fix and recover from, but I will do it. I have overcame so many obstacles in my life. This will just end up being one more and it will make me a stronger person in the end. Thank you reading this post.
Did you find the answer to your condition as I cannot find a post for it?
I too have very similar problems; The constant hunger pain, although it is no way hunger as i get this even after eating big meals, its like a hallow empty feeling like I have not eaten for days, I have this and other symptoms including Excess acid, loose bowel movement usually four times in the morning for years and inflated stomach also for a long time.My heath also seems to be deteriorating slowly, now getting numb fingers on one hand and sometimes toes both on same side of body. I also use the gym very regulary and have done for 12 years. Am on zantac which keeps the acid at bay but Its driving me crazy! If you have any ideas please give me a clue. Oh and Tested negative for stomach ulcer..
perhaps you have diabetes and/or hypoglycemia. what about a thyroid problem? have you talked to your doctor about these things? the weight control, frequent urination, and feeling sick if you haven't eaten in a few hours (drop in blood sugar maybe) sound suspiciosly like diabetes
Did you figure it out, are you better now? My daughter, 5 years old, has been having the same problems--insatiable hunger, weakness, no muscles in her arms, hair dry and brittle. She is obviously not absorbing her food, and has cravings all day long, she picks food off the floors whenever she can. Stool test showed moderate fungal and bacterial populations, zero immune function in intestines. She's now taking all sorts of supplements and her stool has improved, but not her hunger. How are you proceeding? I'm looking for any input here.
Yes, thyroid levels normal and her pancreatic function is fine as well. She tested negative for Celiac, but from what I read, these tests have high false negatives. I am thinking it is fungal/bacterial in the upper GI, and resulting in what they call leaky gut syndrome. I just don't know what to do about it! I'm following the protocol with a bunch of supplements like glutamine and berberine, vitamins, and limiting her diet--mainly avoiding grains and dairy and all sugars. We tried the Specific Carb Diet for a while too. At our wit's end here. Thanks for the input though.
I looked up "leaky gut syndrome" and it seems to be one of those "kitchen sink" kind of things that people put all kinds of symptoms and causes into. However, I'm not seeing "extreme hunger" in there anywhere....weight gain, malnutrition, and digestive issues, yes, but those are not the same thing. If it caused excess hunger, I would assume it would list that.
Does your daughter have trouble digesting the food she eats, in terms of bowel movements and things like that? Or is it just the hunger issue?
Have you talked to the doctors about replenishing her lack of intestinal immune function with probiotics and pre-biotics? I would be sure to get a doctor's guidance on this before you start giving them to her yourself, though, since not all of them are created equal and, as I understand it, some of the supplements have too many competing strains rather than complementary ones, and don't actually do much good.
If you haven't already, perhaps taking her to either a gastroenterologist or an immunologist would be a helpful next step. I think the key is to find a doctor who will really listen and commit to finding the cause of this problem. Of course, we all hope for that and is easier said than done. Honestly, sometimes I think there should be special prizes awarded to doctors just for giving a fig, you know.
I hope you find out what's wrong with your daughter soon and that it is manageable. Best of luck to you and your family.
WoW! Thanks for the quick response with useful information. I have never thought to post on these things, after 3 years of digging around on the web and reading others' posts. Strange to see there are strangers that are so available to help look for solutions and offer what all they know. Very comforting to experience. Thank you, and I sure will post updates here. I did take her to an acupuncturist last few weeks, and thus far have not noticed a change. She has been eating worse, so maybe it her habit is offsetting any potential benefits from the therapy. I did realize there are specific strains of probiotics for immune depleted people, and I did read that fewer basic strains are better than a myriad of them. I forgot which strains though. SCD diet does not permit any bifidus, which is difficult bc most yogurts contain that one.
Yes, digestion is troublesome for her. Loose greasy stool, difficulty going (takes up to an hr of just sitting, looking at books, every few days), bloating. Never any pain or discomfort though, which is puzzling. She is just constantly begging for more food. It drives all of us out of our minds crazy--because overfeeding her would be perpetuating her condition (assuming we are feeding the yeast and bacteria over thriving within her). I dont know which symptom is the worst about all her--the appetite or the malnutrition symptoms.
Thanks for listening. I will update.