I am confused about my diagnosis of timid lupus. In April I starting with a neck which was contained primarily to my breasts. After 3 rounds of steroids I was referred to a dermatolgist. He immediately took a biopsy and blood work. The doctor called me and told me I had a form of lupus which affects the sick. He made me an appointment with a rheum. doctor at cleveland Clinic. (Before I went to that appointment more blood work was completed and he felt I had timid lupus.) My first appiontment went fine at the clinic they did more blood work and found the same results. I was up on Plaq. 200 mg and asked to return in 3 months. When returning I saw the same doctor (I believe she is a Junior doctor) but she was paired with a different "senior" doctor. After her exam she went and got the other doctor. He basically came in an verbally attacked me for wasting his time. He stated that the only true lupus is systemic and I just have a rash. I think he was upset because when the other doctor asked her many questions I had mentioned a change in my feet. Primarily, my small toes being, on both feet, being painful and swollen at times. What was fun was after the senior doctor insisted I did not have any form of Lupus he wrote out a order for a dermatology appointment with the associated diagnosis of systemic lupus erythematosus and ordering comments of tumid lupus. He also stated that plaquenil does not help my condition and I should stop taking it and I did not need another appointment with rheu. when he left the room the other doctor stated that they have seen alot of succeed with the usage of plaquenil for my condition. She also insisted that I make a return visit and call immediately about any changes. I am very confused about my last visit. (The senior doctor also stated that my other symptoms are coming from my hypothyroidism but the endrocrinologists says it is the lupus.) I now have appointments for both endcrinology and dermatology all in cleveland so that can all battle who should treat me!! Does anyone know why this has become so difficult??