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Conditions and Diseases > Lupus Forum > Tumid Lupus / Panniculitis
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Q: Tumid Lupus / Panniculitis
asked by: JennNJ on January 30th, 2009
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I was just diagnosed with Tumid Lupus & Panniculitis by the dermatologist after a skin punch. I am going back to the Rheumatologist next week. I have a big reddish brown patch on my chest into my armpit that is constantly sore and itchy. I am constantly tired - if I don't do what I need to do while I have the energy, I don't know when I'll have it again. No other real symptoms though. No achy joints, hair loss, etc. I'm a little afraid going into this - anyone out there been dealing with this for a longer period of time? How are the meds / symptoms long term?
Thank you,
Jenn
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Johnjohn346
replied on February 11th, 2009
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tumid lupus
I was diagnosed with tumid lupus, but don't have the fatique symptoms or anything else except red patches that are severely itchy on my legs. The doctor gave me a prescription for Temovate cream, but nothing else and said not to worry to much. Does this sound right to others?
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JennNJ
replied on April 22nd, 2009
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More testing...
Thank you for responding! Don't know if I'm not in the right forum or not - having a tough time finding an active forum.
My "rash" looked more like someone punched me in the chest & left a big bruise - it's cleared up some with the prednisone but hurts sporadically. I have the itchy yucky stuff on both of my upper arms & the temovate cream. I just had a 2nd biopsy - so creams won't cut it because it's too deep. Prednisone has helped some but there's other stuff going on too. I do now have the achy joints along with the fatigue.
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xjuggernaughtx
replied on August 13th, 2009
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Tumid Lupus
I've had Tumid Lupus since the year 2000, and it's been very frustrating finding good information about it. I have the tiredness that comes from Lupus, as well as frequent headaches, intermittent joint pain, and discoid-like scarring on my face and back. I've found that doctors don't really know very much about Lupus in general and almost nothing at all about Tumid Lupus. Make sure to see a specialist, but unless your Lupus symptoms are very bad, that isn't a lot of relief. The drugs that control Lupus are very bad for your renal system, so they generally only give them to people with moderate to bad SLE. I know that's not very encouraging, but it's what I've experienced.
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