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Total hysterectomy for abdominal adhesions ?

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is a total hysterectomy neccessary for abdominal adhesions
meeka44 1 hours and 5 minutes agohas total hysterectomy helped anyone? I was told adhesions have wraped around my bowels and other female organs, I had an large vertical abdominal incision for an appendectomy with complications 30 years ago, 7 years later I had to have corrective surgery, had severe abdominal pain during sex, began with only a laparoscope, but once inside found uterus turned self inside out (yes this is the truth, docs never believe that part) bladder was upside down, tubes & overies filled with cysts, I have had trouble all my adult life with female organs, 8 years ago had a laparoscope to remove severe adhesions, periods have gotten extremely painfull over last year, 12 weeks ago, I was urinating & had the worse pain ever covering this scar (twice cut) and a severe tugging, pulling burning feeling on my belly button (inside) and a pressure type feeling on my abdominal wall, has any one felt this before? OBGYN said I now have endometriosis as well, but a surgeon must remove the adhesions she says because after reading all past medical records she said adhesions wrapped around bowels & she feels that''s what is causing tugging feeling, also my uterus is adhered to the abdominal wall, not in correct position, so she (OBGYN) doesn''t even want to attempt to begin to touch that type of surgery, (which I have also read a good OBGYN will refer you to a surgeon instead of attempting that surgery)I requested laparoscope assisted hysterectomy, or at least a horizonal scar instead which won''t hurt as much, she said no on all accounts due to the adhesion bowl wrapped issue, I have read many post on many complications with the bowels & bladder & returning adhesions post hysterectomy (which I can''t have vaginally because I have never ben able to have kids because of all these female problems) I am now in a panic and scared to deat, can someone please help me and offer me some security or at least some suggesstions, or at least let me know if you had less problems & felt better after a total hysterectome, or got more adhesions? I am very traumatized by all I have read and I need help, can I refuse, or will it just complicate matters if I suggest only adhesion removal, is a hysterectomy neccessary with my mess inside my body? will it help or will it make things worse? someone please help me I am scared to death, please help so I can stop crying

Meeka
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replied May 5th, 2010
Community Volunteer
Hi Meeka44 and welcome to ehealth: I have had a wonderful experience with a full Hysterectomy at the age of 47...This was when they kind of "emptied me out"..They operated to take out my Uterus because of my fibroids or endometriosis and ended up taking my ovaries at the same time...My OB-GYN told me that he could see the possibility of problems in the future so he took the ovaries too...At the time I was too sick to care and it was only later that I was to learn that this had anything to do with my sex life...Thinking back on this, once I realized that I was still a woman and had all my "important" parts, I forgot about it and did my thing...Had nothing but a Premarin pill...Seriously speaking, no regrets...All went well...

Looking at your problems I see where you have hardly any choice but to have this done...When you have endometriosis in other areas, this will spread...It can attack other internal organs and unless it is cleaned out you will suffer...Now add the problem with your Uterus and again you are speaking of more endometriosis in the works...I have not regretted any part of having my Hysterectomy at that age...In time I felt great and I, too, was stitched from the belly button down to the crack near the hairline...Hurt like heck healing, but part of life....Don't hesitate getting a fine Surgeon to have this taken care of...Research him/her well...Go over each thing that they will do and enjoy life....I wish you well....Take care...

Caroline
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replied May 5th, 2010
Thank you. I'm just so affraid because I have had 2 belly button down incisions & that is waht hurt the most, but I have heard so many horror stories about afterwards women still getting adhesions & I am worried sick about it, I don't want any more surgery but I guess when the OBGYN wont touch it cause of the bowell issue, I would say she was a good dr. thank you for the response, how long did it take you to stop hurting in your incision, I know I sound odd, but that bothers me more than anything, because they say 6 to 8 weeks, but my last two took a lot longer than that to even begin feeling better, I was supposed to graduate in may with an MSW in social work, so if I am laid up all summer, I at least hope i can still graduate in December.
thank you, your response helped a bit.

Meeka
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replied May 5th, 2010
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Hi honey: I know they hurt, however, if the surgeon is far more able to do a thorough job in finding all the problems inside of us, then they are worth the pain...If you are laid up then so be it...Your health is more important...What you do now will affect you all your life...Take it easy if you have this done...Don't rush recovery...Just getting over the bloat involved in this surgery takes time...Don't and I say don't do any heavy lifting during this time...My OB-GYN would not let me push a vacuum cleaner for 8 weeks...I was babied and I believe that this has much to do with my recovery....Have all your insides checked over...If END is showing any signs have it cleaned out...I know of two women now whose cervix showed signs of this and it was left as it was...They both suffered for this hesitation by the surgeon...One has had it taken out and the other is going to...Our missing parts mean nothing...It's keeping us together as well as they can that do....Believe me, I have not suffered....Good luck and please keep us advised...Take care...

Caroline
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replied May 9th, 2010
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Hi Meeka

I had a hysterctomy at age 28. I had so many problems, with long periods, towards the end my periods were 3 weeks long with one week off. I was so anemic because of this and getting sick all the time. My biggest reason to have the hysterectomy was for the sake of my 2 daughters, as I hemmoraged after both births and requied blood trasfusion. I was given the alternatives, have another pregnancy with an 80 percent of passing, or opt to be happy with my children. At that time they left my ovaries. About 5 years later I was getting baseball size ovarian cysts requiring emergency sugery. At the age of 39 I had another cyst, at that time it took my gyn surgeon 8 hours to complete the surgery due to extensive abdominal adhesions. I did great after that, but scar tissue comes back and usually with in the first two weeks. I have read they have new techniques that can help with reducing adhesions after surgery. My opinion it is far more dangerous to avoid the surgery. Adhesions cause so many problems like bowel obstuction, twisted bowels, constant constipation to name a few. Personally I had laparoscopies and they never bothered me. But when I had the major surgeries the post op time for recovery took longer, but age has much to do with that. You are still young and should have no problems. The worst pain is always the first three day post surgery, and the hospital will make sure your pain will be mimimal or absent. Going home the worst pain is moving around because of the incision. Just carefully getting out of bed and not twisting can eliminate that. Also they will certainly send you home with pain meds that can help alleviate your discomfort. I understand totally that you are afraid. I am facing the possiblity of major surgery and am also scared at to the outcome. I ease my fear by studing via the internet to find out everything about the surgeries. It helps me greatly. I like to be in charge and equipped with the questions to ask my doctor until I make my final decision,
Hope this helps,
Cindy
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