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Conditions and Diseases > Cystic Fibrosis Forum > Children With Cystic Fibrosis
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Q: Children With Cystic Fibrosis
asked by: Ksavage on July 10th, 2007
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Hi,
I would like to ask a few questions if you don't mind.

My daughter is 22 months old and in Mother's Day Out. There is another Mother there that I have known casually for about 7 years. We were talking yesterday and she was upset and said that her 2 year old had just been diagnosed with CF. It was very upsetting and I was not sure how to react. Do I ask questions about CF and other problems that he has been having? Or do I just listen when she needs to talk? We live in a very small town and we seem to run into eachother a few times a week.

I do not want to seem nosey, but I do not want to be upsetting to her by not talking to her about it. I do not feel we are close enough for me to do or say anything more than I am sorry and a short hug. I think it is that I am so uncomfortable with the whole situation. I just have no idea really what CF is and how it damages the body. All I know is I think it is a breathing disorder.
As soon as I finish this post I will do a search for CF and see what I can find out there.

How do the parents of a CF baby (no matter how old) like to be treated. My heart goes out to this Mom, and I really want to be there for her, but I just don't know how to be. As I said before we have a ver casual relatinshp and it never goes any further than a "Hello & How are you".

Thanks for any help and advice.
Kim
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woahxx
replied on December 1st, 2007
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hello.
I'm 15 and i volunteer at my local children's hospital. Through this my mom and I became really close with a family with a girl with CF. The girl, Paige, passed away about 6 months ago. But when I was there with her family (before she passed) I think my mom and her mom would just talk about about normal things, CF sometimes. Your friend is probably going through a very hard time so when she sees you, she'll probably try to act like nothing is wrong because she wants a sense of normallacy restored.
Just let her know you're there for her and act normal i guess is my advice.
sorry for the sob story.
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