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Conditions and Diseases > TMJ Forum > Tmj From the Age of 8
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Q: Tmj From the Age of 8
asked by: Chillout2 on July 10th, 2007
Experienced User
Well I guess I should start from the beggining. ( sorry 4 any misspellings)
So it all started when I was about 8 years old, with severe jaw pain and clicking, it would lock open or shut, but would go away in just a phew short days. Ever since I could remember I was in an out of the hospital with severe head aches, but my Dr.s all said I was a hypochondriac. Evil or Very Mad
But by 7th grade my jaw locked shut almost complety, I had horable jaw, neck pain and horrable head aches, and I was finnaly diagnosed with TMJ.
The dr. gave me medicines that were very potent, but only slitely numbed the pain but eventually I was able 2 open my jaw again but the pain was still thier. year later Sad so rthen I was sent to physical therapy...didnt help. SO THEN I was sent to sum specialist who couldnt do anyting so he sent me 2 another specialist and after 4 months of being in constant pain I was finnaly called with an appt. So he perscribed new medicine ( DIDNT WORK) an on top of that a night guard...still didnt work, than a day guard was added to the mix, an do I have 2 say it, yah it didnt work. So then they sent me to get x-rays done to see how bad it was, and yah it was pretty bad. My jaw joints looked like they melted away, so instead of round little balls they looked like pointy bird beaks, I have degenerative arthritis at 16, I also went to a neck specialist to make sure it was coming from that, an it wasnt. So I finnaly last week was reffered to see an oral surgeon. Im in 10th grade now an my life has been ruined. I have a small sociol life cuz i dont want to go out an be in pain, I used to do modeling cant do it anymore becuase I cant deal with long days of activity. My family is tired of me complaing on a daily basis, I dont blame them. But the point is i have hurd surgery can make things worse, so i am wondering if its worth getting. I have been in pain for almost 3 years now, not 1 day without it, Im worried about losing everything. what do I do?
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TMJWorld
replied on July 10th, 2007
Extremely eHealthy
Hello There
First off we have to clear something up. To do this lets back up to the part where you said your life is ruined. Your life is not Ruined---not by a long shot. You have to take controll of tmd----you cannot let tmd take controll of you. If you let it then yes your life will be ruined. You are young. I have had this since I was born---I am a happy person enjoying life. Yes pain plays a very large part in my life but the people that know me dont even know I hurt. I dont let it get me down or keep me from doing the things that I love to do.

Ill say this up front---surgery is your last option. It can be a good thing but again ONLY as a last option. From the sounds of it you could benefit from neuromuscular dentistry---pm me if youd like and Ill get you the name of a good one in your area. I can garuntee you wont regret going to a nm dentist. I had no releif for 15 years of constant pain untill I went to nmd. The success rate is 99.9% .

There is hope at the end of the tunnel. I got there----you can too. However something that you really arent gonna like. If (and im sure that you are) loosing vertical opening you are gonna have to stretch yourself open. open as wide as you can and help yourself open further with a finger assist and hold it for 5 seconds. Do this 5x a day 5x each session---just think of the 555 deal from dominoes.

which brings me to another point. Keep your diet soft---no gum, bagels, pizza crunchy foods etc. baby that jaw but not to the point that your muscles atrophy---you do not want to lose muscle function.

I was also accused of being a hypochondriac. never fear. you arent alone. IM here anytime that you need me. email me or pm me anytime you need me ---Im here everyday except saturday. Ill help you all I can.Smile
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catswold
replied on July 11th, 2007
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Victoria,
I'm so sorry to read that you are having such problems and at such a young age. Did they ever discover why your TMJ problems started so early in life? Usually the jaw bones have not completely formed by that age. After having TMJ for 27 years and at the ripe old age of 53, I just now definitively found out I have DJD. But then, I am old and have had this dysfunction too many years. What do your parents say about all this? You should be seeing several different TMJ specialists of differing practices (neuromuscular, FJO, Gelb 24/7, etc.) And because one bite splint didn't seem to work doesn't mean that splints won't help. The right kind adjusted correctly should help relieve some pain.

Your life is no where near ruined, my dear, even tho I can see why you feel that way. You need to find an advocate to help you find the right kind of help (minimally invasive as possible). You have discovered at too young an age how many TMJ sufferers are treated by the medical field. It sounds like you are going to have to learn how to fight for the help you need as many of us TMJers have had to do. Do not give up. You are worth the fight.

If you need help in compiling a list of "specialists" in your area to give to your parents, please just ask and we will do all we can.

God bless you,
Carol
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