I just wanted to say "Congrats" this form of cancer is eating people up every single day. I felt very moved when I read your story and I hope you would please read my mothers and tell me if you have and suggestions on anything.
My Moms Battle with Colon/Rectal Cancer and a permanent Colostomy
My mother is the greatest, and I am here to tell you why..........
My mom is now just turned 60 in March, and her life in just the past 6 years has been worse than a life time of anyone elses bad days.
August of 2003, she was out of state visiting one of my brothers and she had a blockage. Didn't think anything about it until she got home and when to the doctor. He sent her to an Oncology doctor to have some tests taken. The doctor that she was sent to did a colonoscopy and found 4 palaps. They told her after the procedure that they removed 3 and the fourth one was irritated and red so they couldn't get to it. However, they would keep and eye on it and in 6 mo they would do another procedure. Well in november she was taken to emergency because she was blocked again. Come to find out that 4th palap was inlarged to the size of a red potato and stage 3 colon rectal cancer. This is where the surgeries began. She was sent to an oncologist at the University of Michigan Hospital in Ann Arbor to have the surgery taken care of there. The surgery was done in Feb. 2004 and it was a colon/rectal resectioning with a non reversible colostomy. So for the rest of her life, and she was only 56 years old, she would have to deal with changing and everything else that goes with a colostomy. She then went thru a 12 week course of Chemo-Therapy and then a 6 week with radiation and Chemo, and then a 12 again with just Chemo. Almost a year after the surgery she was finally thinking things would come back to normal. Wrong!!
In Jan. 2005 she had a hernia repair done behing the stoma for the colostomy, and then was told she was in remittion. We were hopeful at this time. In September of the same year she was told with a PET scan that the cancer was back and growing and spreading. So we went thru more Chemo, this time it was agressive chemo and it made her really sick. Then in Nov 2006 she had another hernia repair and my uncle passed with esophagus cancer. This caused her to finally get mad. Her spirits were awesome thru all of the above until we lost him. He had been diagnosed only 2 months prior to passing and this was her big brother and it really put her in a state.
She stopped all treatment because she just decided she wanted quantity of life not quality. In August of last year she was doing great she had started to drive but still there were side affect she had to deal with like not feeling her feet they wer numb, not being able to touch cold foods it made her freeze. It all started to get better, then she was on her porch and slipped on a wet spot and went down wrong and broke her hip. Had hip surgery and has not yet fully recovered from that when in Feb of this year she had her 3rd and final hernia repair. About 3 weeks ago she thought the colostomy had broken no big deal happens about twice a month, but when she went to take care of it, the problem was not the colostomy, but the incision from the hernia repair had opened. It was full of infection, puss, liquid and who know what else. Now for the last 3 weeks my father has had to pack her wound and help her take care of an open wound. Now she is depressed and starting to give up. She is weak, cold, and wetting the bed on a daily basis. I am scarred we only have a short amount of time left with her and I am trying to be strong for her, my dad, the family and the kids and don't know how much more I can handle.
This is my mom story, what I am worried about is the depression and the giving up any thoughts or suggestions you may have would be welcome.
Thank you