4 Year Old With Epilepsy And Myoclonic Seizure Posted: 09-02-03 19:12pm
Hi everyone, my 4 year old grandson blake
was diagnosed with epilepsy and myoclonic
seizure, he also has have many grand mal
seizures and he has adhd. He has not
had any grand mal seizures in a while.
How do you tell a 4 year old what is
happening to him, he know something is
happening after the seizure, the look on his
little face is just heart breaking. He
is taking depakote sprinkles for the
seizures and guanfacine for the adhd.
We are unable to find out to much about
myoclonic seizures, if he will out grow
them, he has anywhere from 10 to 70 aday
if any one know anything about it. I
would be very grateful.
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annette
New User, Becoming EHEALTHy
Joined: 14 May 2004 Posts: 5
Posted: 05-15-04 22:17pm
Hi I am 41 years old and have had epilepsy
since I was 28. I had two grand mal
seizures then, but have had not had any
since. I also have myoclonic seizures.
I can have 3 in a minute or none for a
week. Sometimes I have them when I am
getting ready to go to sleep and sometimes
I am woken from my sleep because I am
having them. I just wait for them to
stop, then go back to sleep. Your
grandson may not be able to describe what
they feel like, so this what I tell people
what mine feel like you know when you are
dreaming that you are going to fall off a
cliff and you jerk to wake up, combine
that with a shiver when you are cold and
that is kind of like it. They don't
hurt. I can tell when I am talking to
people when I am having one because I
think I have a pause in what I am saying.
Hope I have helped a little.
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Kathyalison
Experienced User , Rather EHEALTHy
Joined: 01 Apr 2004 Posts: 64
More Info Please Posted: 05-19-04 01:29am
Hi,
i have petit mal but have also experienced
grand mal seizures. I don't know a lot
though about myoclonic seizures. Can you
describe them to me. I'm going through
drug changes etc. Right now and want as
much info as I can get about what people
experience. Thanks!
Kathy
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MIA HEDRICK
New User, Becoming EHEALTHy
Joined: 17 Nov 2005 Posts: 1 Location: seattle washington
Re: 4 Year Old With Epilepsy And Myoclonic Seizure Posted: 11-17-05 20:57pm
summernights
wrote:
hi everyone, my 4 year old
grandson blake was diagnosed with epilepsy
and myoclonic seizure, he also has have
many grand mal seizures and he has adhd.
He has not had any grand mal seizures
in a while. How do you tell a 4 year
old what is happening to him, he know
something is happening after the seizure,
:( the look on his little face is just
heart breaking. He is taking depakote
sprinkles for the seizures and guanfacine
for the adhd. We are unable to find
out to much about myoclonic seizures, if
he will out grow them, he has anywhere
from 10 to 70 aday if any one know
anything about it. I would be very
grateful.
hi my name is mia and I am a mother of
four. And when my oldest son was 4 years
old he has a clonic tonic seizure and soon
was diagnost with myoclonic seizures. He
is 10 years old now and has been seizure
free for 3 years. However he eeg's still
show signs of seizure activity. I was
told by the doctors that 95% of children
with myoclonic seizures will out grow them
by their teens. I have read that children
that have other factors such as myoclonic
with other types of seizures may not out
grow them. Some with out grow the
myoclonic seizures and go on to have
different types of seizures later in life.
I did find that the information on
myoclonic seizures is very brief and
getting information from doctors is like
pulling teeth. I may just have had a bad
experience. But I felt like my child
became a lab experiment with no answers.
After every thing my family went through I
feel my son was luck. I hope your
grandson is luck to and can someday put
his seizures behind him.
the look on his
little face is just heart breaking. He
is taking depakote sprinkles for the
seizures and guanfacine for the adhd.
We are unable to find out to much about
myoclonic seizures, if he will out grow
them, he has anywhere from 10 to 70 aday
if any one know anything about it. I
would be very grateful.
