I was skeptical of marfan syndrome ever since i began reading up on the disorder. It seems that i have more than a few of the symptoms that coincide with the disorder, but i don't want to jump to any conclusions or anything.
I am over 6 foot and weight aprox 135 lbs.
My arm span exceeds my height by several inches.
My chest caves in a little bit on one side.
My lower half is significantly larger than my torso.
I have a very lanky body type with long fingers etc.
I am somewhat flexible and have a long face with crowded teeth as well.
I don't have the best posture either.
I am asking if I should seek an appointment with a doctor or not, because I am not too keen on the subject.
I know that going to the doctor isn't much fun for most people, but is there another reason that you are not keen on going?
Many people have Marfan Syndrome-like characteristics without having enough to officially be labeled with Marfan Syndrome. However, I would say it's something worth looking into since people with Marfan Syndrome can have some serious issues such as heart conditions.
well there doesnt seem to be any cure or treatments except regular check ups and monitoring of conditions. Ill prob ask my doctor next check up, and I smoke occasionally so that's probably something i need to stop. thanks
I was adopted at age 9months, and the only medical family history we knew was that my birth mom was a nut and that she was tall and skinny
I've complained about pain since I first learned to talk- before that I would cry (haha sorry mom)
then... they tried telling me I was crazy
I quit playing basketball at 13 because of pain, not being able to breathe, dizzy/fainting. I was diagnosed as having anxiety and being depressed. I slept a lot.
after I graduated I complained again. told me it was anxiety, and I was then sent to about 5 shrinks- but none of them thought I was depressed or had *real* anxiety (I do have some though, which I now know is caused by my heart)
all the while spending thousands and thousands of dollars on medical bills
I'm 22/f, 5'8" 108lbs. ok, long fingers and toes. joints problems, pain, my left leg at the ankle is crooked, I'm "double jointed", have a flat face sort of, small lower jaw, heart problems, bad posture (crooked spine too, just never followed up by a doctor so I dont know the degree)
I've been screwed. they're lucky I'm not money hungry haha