I was skeptical of marfan syndrome ever
since i began reading up on the disorder.
It seems that i have more than a few of
the symptoms that coincide with the
disorder, but i don't want to jump to any
conclusions or anything.
I am over 6 foot and weight aprox 135
lbs.
My arm span exceeds my height by several
inches.
My chest caves in a little bit on one
side.
My lower half is significantly larger than
my torso.
I have a very lanky body type with long
fingers etc.
I am somewhat flexible and have a long
face with crowded teeth as well.
I don't have the best posture either.
I am asking if I should seek an
appointment with a doctor or not, because
I am not too keen on the subject.
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Llewellyn
Extremely EHEALTHy
Joined: 21 Jan 2007 Posts: 1743 Location: NY
Posted: 06-26-07 21:07pm
Marfan Syndrome has interested me for
years.
I know that going to the doctor isn't much
fun for most people, but is there another
reason that you are not keen on going?
Many people have Marfan Syndrome-like
characteristics without having enough to
officially be labeled with Marfan
Syndrome. However, I would say it's
something worth looking into since people
with Marfan Syndrome can have some serious
issues such as heart conditions.
well there doesnt seem to be any cure or
treatments except regular check ups and
monitoring of conditions. Ill prob ask my
doctor next check up, and I smoke
occasionally so that's probably something
i need to stop. thanks
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Best Aunt EVA
New User, Becoming EHEALTHy
Joined: 14 Jul 2007 Posts: 27
My Story Posted: 11-23-07 21:07pm
I just found out that I have Marfan's
syndrome.
I was adopted at age 9months, and the only
medical family history we knew was that my
birth mom was a nut and that she was tall
and skinny
I've complained about pain since I first
learned to talk- before that I would cry
(haha sorry mom)
then... they tried telling me I was crazy
I quit playing basketball at 13 because of
pain, not being able to breathe,
dizzy/fainting. I was diagnosed as having
anxiety and being depressed. I slept a
lot.
after I graduated I complained again. told
me it was anxiety, and I was then sent to
about 5 shrinks- but none of them thought
I was depressed or had *real* anxiety (I
do have some though, which I now know is
caused by my heart)
all the while spending thousands and
thousands of dollars on medical bills
I'm 22/f, 5'8" 108lbs. ok, long fingers
and toes. joints problems, pain, my left
leg at the ankle is crooked, I'm "double
jointed", have a flat face sort of, small
lower jaw, heart problems, bad posture
(crooked spine too, just never followed up
by a doctor so I dont know the degree)
I've been screwed. they're lucky I'm not
money hungry haha
