I feel for you as I know exactly what you are going through. I am going through this but it has also started in my arms as well, I just went for a sleep study last night but had to leave because I was in so much pain and wasn't able to take the pain relievers that make the symptoms a little less painful. I believe that I have much more than RLS but have yet to find any answers. Have you tried the new medication Requip for RLS/ I know a lot of people that have gotten much relief from it. I took it and all it did was not help my symptoms and make me feel like I was on fire. But like I said everyone else that I know that have taken this have full relief from their symptoms. There is also a medication (that of course didn't help me that is for parkinsons that helped my husband. Have you talked to you doctor about it? As him if there are any meds that may work for you. I am sorry that I can't help you any more but I do wish you relief and peaceful sleep soon.