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Q: Has Anyone Tried....
asked by: Morton65 on June 23rd, 2007
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Hi all I've been browsing your forum for a few weeks now and must say of all the places for TMD/TMJ I've seen this is a great one. I have some questions about treatments people have tried, but let me give you a bit of background first so you have an idea of where I'm coming from.
I was diagnosed with TMD back in November after having the condition worsen over the course of 4 years. I used to get muscle spasms in my back/shoulder on the right side, then began getting tingling in my hand, then my jaw started to pop. I'd get headaches every now and then and sometimes i would get dizzy or get a feeling like when you stand up to quick. A couple years ago when I complained of this they did all sorts of tests on me discovered I'd had mono (not even what they were looking for lol) and tested nerve damage, for fibridmyalgia, lupus and all kinds of other things, they couldn't find anything, but put me into physical therapy anyway which helped when i could pay for it (I was in college and planning a wedding at the same time, plus my mom was sick). I eventually gave up thinking it was something I would just adjust too and I was getting older Very Happy
The worst symptoms ca,e last year when I finally decided to get all my dental work done, i had gone a couple years without insurance, and have a horrible soda habit. By August of 06 things like having a root canal started taking me out of my job for a week or more. I worked in a call center (which was propably a really bad idea for my jaw lol) - which I left in march because of stress and stress on my jaw. Anyway, once they actually figured out the problem, i went on heavy pain meds which actually really helped but left me in a stupor. They put me on FMLA through work and I had excellent insurance that covered TMJ/TMD. They fitted me for a night guard and with in weeks I was off of the heavy medications and wasn't taking the 8 -16 Ibuprofen I'd been taking. The symptoms all started getting better and I felt great, till about a month ago. I haven't changed anything I currently do in terms of when I got the mouth guard my died began to include more soft foods but I wear it 24/7. I also go back monthly sometimes more often for checks on my guard to make sure my bite hasn't changed. I'm not sure why all of a sudden it seems to be getting worse again (still not nearly as bad as it was, but not as great as it was either). My husband and I want to start planning for kids so my TMD DR is pushing for me to go see an orthodontist to try to get this taken care or. I don't want braces. I don't think they will work if the biteguard isn't working. I've been doing research and am beginning to try some alternative things (including some mentioned on this board). But I was curious if anyone had had luck with a change in diet that eliminated excess sugar/caffeine/salt. This is healthy anyway and I've seen cites recommend it, but no one comment on how effective they've found it. Same with exercise, like normal aerobic exercise or light weight lifting, especially with excersises for posture. Actually i've heard great things about improving posture lol, but not about general excesise and if it helps or changes in normal diet when it comes to sugar/caffeine changes. Any help would be appreciative if anyone has information on alternative methods such as diet/excersise and things not involving medication or braces. I will get braces if it becomes a must, but I want to make sure it can't be managed through other means first and my dentist just kinda threw a mouthguard at me. It did help muchly, but now I realize pain may have made me rush into things Shocked Sorry for the long post Wink
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catswold
replied on June 23rd, 2007
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Hi Morton65,

I'm sorry to hear that your pain has gotten worse. I'm not surprised to read that you were diagnosed with mono. Somehow, mono and TMJ have been linked, but I have no idea why. I know that when I am in pain, I am exhausted all the time with swollen glands. That seems to be a common complaint.

I'm also not surprised to hear that your TMJ symptoms got worse after you had a lot of dental work done. Keeping your mouth open wide for a period of time can over-stretch the ligaments that work with the disc and even displace the disc. Also, another strange common problem I read about is root canals and increased TMJ symptoms. I haven't had any big problems there but it is extremely important for the dentist to make sure that the remaining tooth/crown fits into your bite. If just a little bit off, it will cause havoc.

Regarding our diet - I do know that we TMJ sufferers should not have any caffeine. No caffeine! I have eliminated both caffeine and most processed sugars this past year from my diet. My TMJ has been doing well, but I also made a lot of other changes so can't say how much the diet helps. I do feel healthier, tho. I never really think much about salt other than using as little as possible because it can affect the blood pressure.

Braces. That is a hard decision. I personally think you are right in that if the bite splint isn't eliminating the pain, how is permanently changing your bite going to help? You might want to consider going to a different TMJ specialist (even more than one) to get their ideas, etc. I have been impressed with Functional Jaw Orthotics which start out with bite splints. Phase II can include braces but other bite corrective measures also. Neuromuscular dentistry is also very helpful. You might want to do some research on these and see if you can find these types of dentists and make appointments with each kind.

I can't imagine having TMJ and starting a family. Estrogen affects TMJ, but I haven't gotten that cleared up in my head yet as to the hows and whys, etc. I think you are wise to try and resolve your TMJ issues (or at least get some control over the pain). Good exercise should be good for your TMJ and body as long as you don't put undue stress on the TMJ joints. Doesn't exercise help our bodies become more pain tolerant? When you jog or weight lift, you might want to wear your bite splint so your teeth never come together.

It doesn't sound like you have rushed into anything too quickly yet. Bite splints are a very good, effective (reversible if necessary) treatment plan. It's the next step that can be difficult. I hope and pray that you will find that next step.

God bless...
Carol
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TMJWorld
replied on June 24th, 2007
Extremely eHealthy
Hey
first off welcome to the board. we will do all that we can to help.
secondly it gets better. if you need anything let me know. Im right here to help
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Morton65
replied on June 25th, 2007
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Ok so if cutting back on sugar/caffeine can help, which seems to be what a lot of research says and I say what the heck if it can save me hundred of dollars in mouth guards or thousands on braces... however I'm a suger addict lol. I've cut back a lot on caffeine but still have it daily... any tips on kicking it LOL Shocked
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TMJWorld
replied on June 25th, 2007
Extremely eHealthy
Hey
cutting back on caffien and sugar wont kick tmj but it will help your over all health. sugar isnt good for you(im a chocolate addict so i know how hard it is to give it up.) It will give you more strength and help to fight tmd. you wouuld feel better over all. you may still have to buy splints etc(personally id stay away from braces) but youd have a better chance of getting better by eating healthier.
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