Hello,
i understand that you cannot diagnose
medical issues via email, but I am
searching the internet for information
after 6 years of struggling to find the
cause of my sons exercise induced
headaches.
He is an otherwise healthy 9 year old,
with no issues at birth. Since he was 3,
any exercise (especially outdoors on a hot
day) brings on an excruciating pounding
headache. As a toddler he would say that
his head was "beeping". His face becomes
blotchy and one of the times that the
school nurse was able to take his
temperature during an episode, hit body
temperature was just over 100 degrees. He
appears wiped out after these "meltdowns"
and depending on how quickly we can douse
him with water and cool him off, he is out
of it for a period of time.
We have seen neurologists, heart
specialists, any number of general
practitioners and even specialists in mito
chondrial disorders since the symptoms
seemed to be a match. Heart tests, cat
scans, sweat tests, blood tests and even
muscle biopsies have returned no
abnormalities.
We are at a loss and doctors that we deal
with have told us at this point he needs
to live with this condition, which I feel
is unacceptable. If there are any avenues
that you think I may have missed I would
greatly appreciate any assistance.
Regards,
thomas j. Hannigan