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Pseudotumor Cerebri Papilledema

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Medical Questions-> Health Forums -> Vision and Eye Disorders -> Pseudotumor Cerebri Papilledema
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lovemybubbalou

New User, Becoming EHEALTHy
Joined: 11 Jun 2007
Posts: 3
Location: MI
Pseudotumor Cerebri Papilledema
Posted: 06-11-07 21:54pm

ok ive been diagnosed with this after many many tests done.and basically i jsut wanna know wat it is.like i get that my optical nerves are swollen but i dont get hwy or if its causin other problems.the neuroligist is all technical nad frankly i didnt graduate with a phd so i need someone to dumb it down for me some.so basically im jsut curious wat it is and such.i try and look it up and its all too technical.

also wats the treatment.i read things like routine spinal taps and a shunt.i dont know if i can handle that.im only freakin 21.i wanna be able to be normal and play with my son and any future children and i dont know how id be able to wiht a hsunt in my head.


thx so much
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shelly4177

New User, Becoming EHEALTHy
Joined: 20 Oct 2007
Posts: 4
Location: ,
There Are Other Options
Posted: 10-20-07 09:21am

You can take meds for it too. Shunts are usually a last resort kind of thing. Spinal taps are used but have to be done often from what my doctor says. Monthly. I take Diamox time release and it works great. If your doctor isn't answering you questions you should really try to find a new one that will.
Shelly
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lovemybubbalou

New User, Becoming EHEALTHy
Joined: 11 Jun 2007
Posts: 3
Location: MI

Posted: 10-21-07 21:46pm

thx so much.since making this post i've sat down and talked with him and such.i'm luckily not hemorhaging or anything so he put me on diamox one in the morning nad 2 at night nad then also pamelor and anaprox for the migraines whenever i have one.he says i dont need spinal taps right now.i had one to diagnose it but otherwise i dont need one hopefully.he jsut gave me the medicine nad said hell see me in three months so we'll see how that goes.my only worry now is pregnancy.i want to be pregnant around next may if im not already this month(yes i did stop takin them until i know for sure).is this soemthing ill have to take forever?i try asking him but he acts like im the worst sinner in the world or something.
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shelly4177

New User, Becoming EHEALTHy
Joined: 20 Oct 2007
Posts: 4
Location: ,

Posted: 06-04-08 07:44am

You can get pregnant if you want but you need to do with this your OBGYN and Neuro on board. They will have to tell you your options and what you need to do.
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