i had a laporoscopy on the 31st, for my scar tissue on my tube and possible endometriosis, doctor wants to put my on lupron to put me in mennapaue for 6 months so my endo does not return quickly... but i am really not sure if i want to do that because i have been trying to concieve for 3 years now and i feel as though it will delay my trying. and i really can't afford to wait alot longer.... i am 36 and i have a five year old step-son and i would like him to have a brother or sister to grow up with , it is just so frustratting.... i have a follow up on the 18th so i guess i will see what the doctor has to say and take it from there.... what to do?
I would talk to your doctor if I were you about your concerns. Just so you know though, the scarring that you have can really make it hard to get pregnant and sometimes cause ectopic pregnancies. You may want to take your doctor's advice.
I was on Lupron for the same reason about 3 years ago. It was a hard thing to go through but I can say that it did help. However, I now am having a hard time getting pregnant and I am unsure if it has anything to do with the Lupron. I know that while you are on the treatment you can not get pregnant, or that is what my Dr. told me, but I would definantly ask your Dr. it is cause for concern. It is not as bad of a treatment as people make it out to be though. The night sweats are the worst! Hope this helps.
I have been on luperon for over six months. I was injected with a higher dose in march of 2008, I have suffered from speech problems, muscule pain ,insominia no sex drive, seizures, night sweats, tremors weight loss, dont use this drug please ,
Everyone is different I dont think it is fair to scare someone from using a drug that may be their last hope, last resort. This is my last chance at living life and having some relief of constant agony. I am willing to try whatever may take even half of my pain away. I go through tremendous stabbing pain, muscle pain,hemoraghing, back pain, vomiting, headaches, unable to walk at times or sleep at all. I have only had a headache & hot flashes from Lupron which I'm used to anyways from the drugs I was on. I have found ways to aleviate the side effects from the drugs and I am willing to try this Lupron Shot. I am in dire need of relief. I understand the risks and I am willing to go ahead with it. I am sorry that you have suffered from the Luperon but I hope it works for me! I am taking a small dose for the next 12 months.
I had the Lupron shot only once. I never felt so much pain when the shot wore off 3 months later. Just lousy I felt and so much pelvic pain coming off of the injection. I had to transported to the emergency room, like the other member stated stay away from it if you can.
I just wanted to thank all of you for all of your helpful information. I have an appointment on Thursday to get on the Lupron shot for my endometriosis and Ovarian Cysts but now I think I'm just going to go on the pill for a while. Thanks again for talking me out of it, without really even talking to me.
I had the opposite experience with Lupron. It is a godsend to me. I have stage 4 endometriosis. 3 weeks after my first shot i had terrible pain. My Doctor discover a Hemorrhagic Cyst. She gave me pain medication for it and wanted me to come back in two weeks so we could ensure that it was shrinking. She also said it should take 8 weeks to go away. When I went back in two weeks the cyst was almost gone because of the Lupron.
Yes the hot flashes are miserable, but my doctor gave me norethindrone and that minimized them.
Everyone's bodies are different, but I feel the lupron gave me my life back. I have more energy, don't need to use the restroom near as often, I don't have pain during intercourse, and most importantly I am nearly pain free. I know it is not a cure but over 60% of women who use lupron are symptom free for 5 years later. That is worth hot flashes and night sweats for a year!
I would have to agree with kiwi_reder.. I'm 24 and have so far gotten 4 of the 6 injections of lupron (once a month). My doctor was doing a laproscopic surgery to remove a complex cyst (endometrioma) off my left ovary when he found I had stage 4 endometriosis. He said if I wanted to have kids and if I didn't want to have surgery again in 6 months, he highly recommended the lupron injection. He also put me on norethindrone to help minimize the side effects of lupron. I also did my research (being a nurse) and found out that taking a multi-vitamin, omega 3, calcium and vitamin D once a day helps with the side effects and long term effects of lupron. I have only had night sweats, hot flashes, feeling tired, and a few headaches from time to time. From what I have read, the people that have the bad experiences from lupron are the ones that really don't need to be on it. Don't let all the bad reviews about lupron scare you away - it has helped me tremendously!
After reading all your comments, I just want to add to the forum that everyone's body is different. I just completed my 6 months therapy for severe bleeding x 60days with a 5cm fibroid and lower pelvic pain while out in the battle field. In one month my hematocrit went from 38 to 30. When I was medivaced to the nearest treatment facility, my hematocrit dropped during the flight and had dropped to 29. I almost depleted all my iron. The doctor told me that it was to dangerous for me to be with my unit because I lossed a lot blood and that if i continued to lose more blood I would have to go through a blood transfusion. I was alone and frightened. My friends and family were not there to support me. I cried and cried but this explained why i was very tired and had extreme weight loss, and all my buddies now know why I ate ice for breakfast lunch and dinner everyday for 7 months because I had become severly anemic from the blood loss. I just want to say Lupron saved my life. My OBGYN explained to me the side affects but really I didn't experience a whole lot but maybe loss of appetite, fatigue, some depression and maybe one or two episodes of hotflashes. At first when she told me that I was going to have a temporary menopause even knowing my concern for conceiving but that was the only way I was going to be able to survive deployment and to bring me back home safely; I cried and I was scared because once I took the shot, there was no going backwards. To hear the word menopause and I'm only 42 years old. I thought OMG, I'm still young for menopause but I took the shot. They monitored me for one more week and then I returned back to my unit with alot of support from friends and family. I am back stateside and I just completed my shot on 08APR2012 and I want to have a baby before I have to go back on deployment. I am greatful for Lupron for giving my life back. It's ironic that I lossed a lot of blood on deployment and that almost end my life and combat didn't. Now I'm just trying to find out what my next step is after LUPRON so that i can continue with my life as it once was and maybe with a baby in my life. So woman to woman, I want to tell you, talk to a physician and find out all your options and resources. It's a hard battle to go through but in the end once you make that decision you will find how much easier it is to continue your life as it once was.
After my operation for adenomyoma, i was given a Lupron shot which lasted for 3 months. On my first mmonth, I hardly felt anything except that i didn't have my menstruation. On the second month I started feeling the hot flashes. It could get bothersome at times but tolerable. The hot flashes continued on until the 3rd month. i didn't get the severe side effects. I don't know if it's because of the age (i'm 33) or i din't have it long enough. I was supposed to get another shot but I opted not to and try the natural progesterone cream instead. I have tried it for two months now and my menstruation has been pain free. The thing is, I'm not sure if it's the natural progesterone or the Lupron that's taking effect.
I had my 3rd laporoscopy for endo 6 months ago (2 years prior and 5 yrs prior to that)and have been getting a shot of Lupron every month for the past 5 months. The side effects have been very difficult..nausea, hot flashes every 1/2 hour, muscle pain and some days depression. But I'm willing to go through in hopes my body will be prepared for easy conception. My doctor recommended Lupron to have all the endo completly cleared. For me, Lupron does keep the endo away longer. I learned this after the second surgery. When I had my first operation I took Lupron and didn't have endo for 5 years, then the second time it came back I decided not to take Lupron because I couldn't tolerate the side effects the first time but then the endo came back just after 2 years.
Now that I have been married 1 year and ready to conceive, I'm not taking a chance again and doing everything doctor recommends.. I just finished my last shot of Lupron and waiting for my period and then will start trying. Its a painful process but I'm sure it will all be worth it.
I've just had my first shot of Lupron (one week ago to be exact) due to endo, tubular disease, and seem to have exhausted all other options so far. I just went for a consultation and ended up having it there and then without being given all the info.
I have just begun to bleed and feel awful, lots of pelvic pain, nausea, night sweats, hot flushes, and either very tearful or angry. Finding it all very difficult as i am not at all like this. They have told me that this will all settle after a couple of weeks. Has anyone else bled whilst on it. Just hoping it doesn't get any worse! I have been given some patches (think you may call them sims? I'm English and there seems to be less information available over here, seems to have become the 'in' treatment though?) but cannot use them until i have stopped bleeding.....
I had a good experience with Lupron for 6 months. I've been off for 1 month and the pain is back so back to the Dr. I go to see what to do next. I haven't had surgery, just the Lupron and it definitely worked while I was on it, but the endo is back now that it's gone. Looking into adoption because my body just may need to be on hormones until menopause to keep the endo away.
Hi I am 24 and two months ago after over 2 years of trying to conceive (and no luck) I had a Laparoscopy preformed,. I had high hopes it would fix any problems I may have had, little to find out I suffer from Endometriosis, Andenomyosis, Pelvic adhesion, Cyst on my left ovary, and I had a right fallopian tube that was completely blocked. The only thing that the Dr. was able to correct through this surgery was the fallopian tube blockage. For the others I suffer from he recommended Lupron Depot injections for three months to shrink my conditions. I was and still am very hesitant about this, I have read a lot of bad side affects and ways this drug can harm you, Also after trying for two years I feel like it will only delay our conceiving hopes even further into the future, because you have to wait at least 3 months post injections for the drug to clear your system (so thatÃ¢ï¿½ï¿½s 6 months alone). I have just recently purchased FertilAid an all natural supplement which I think I will give a try before deciding on any major treatments. I have searched the web trying to find posts of others who have suffered from the same conditions, and treatment proposed for possible hopes to conceive, So any input would be greatly appreciated. Good Luck to all TTC.
I have been on the shot for almost a year now...I hate it! I go back in August for another shot and Im not sure I want to get another one...Im only 18 so Im not looking to get pregnant, but I have hot flashes every 30 mins maybe? and I have gained 40 lbs being on it, Im very pissy to people and have a short fuse plus I have horrible head aches, the pain has gone away yes but Im not sure that all the side effects are worth it anymore... how long will it take me to have a baby since I do have endo? Please help! =]
I just finished a 3 month shot of Lupron, so I don't know if it helped my endo. But I actually felt great during the 3months-- barely any hot flashes at all. I felt calm, no mood swings, and most importantly, no pain. I guess it really depends upon your own body and how your body will react. I just hope this helps me get pregnant now!
I must say that this works. Iwas diagnose with edo 12 years ogo. About 6 years ago, I had the lipo surgery. I did everything after that lupron shots and clumid. I was fortunate to get pregnant after 2 long months of lupron and 3 tries of clomid. i currently have a 2 years old daughter.
I am back to square one trying to have another baby, but it is so fustrating. Like my husband always told me, be patient and it will happen.
27yrs old Laparoscope Unable to have kids for four yrs: I completed 5 months of Lupron injections to try and help my edno pain. The bleeding during the first month bothered me, but was not painful. Side effects that followed- major hot flashes, mood swings (crying wanting to die then to screaming in anger at my loved ones), stopped exercising (no energy), memory loss (bills and work suffered), hair loss, dry itchy skin, loss of libido (hated my husband), trouble sleeping, dry mouth (really bad breath), and the most scary one was the way I would bruise with the smallest bump. I hope this covers all my side effects.
Ten weeks after my last shot I started my period again with all the pain coming back. I'm very upset that I suffered so long with such a disappointing outcome. The endo diet is my next hope.
i have been TTC for five years now and last december we tried to see if my tubes were blocked but the doc couldnt enter my cervix so she did lap and found out i had lots of endo, my ovary was completely pressed down and my bladder was attached to my uterus. after the surgery she put me on lupron i did the two injections six month treatment. i had some mood changes and lots of hot flashes but all tolerable. the first month i got off i did a course of birth control and the time of my periods i had just spotting. my doc got me on Femara to make my folicles big but i did my 14th day ultrasound today and she said no folicles looked big enough. next month im going to take a stronger dose of Femara and put on the estrogen pack. and hopefully something will work.
I'm on lupron I love it I'm not in any pain no mood swips lack of sex drive my hubby wants me to leave him alone! Lol I got my last shot this month so not doing bc before I do ivf. Sorry for you ladys that bad experience but thought it was the best! Before I tarted on the shot I was moody always tired and didn't want sex! Now all that turned around! Lol weird
Hi your before lupron symptoms sound just like me. Do you mind me asking your age? I'm 24 and my doctor wants to put me on lupron for 3 months. I have stage 4 endo and my surgery for it will be right after my last shot. I am hopeful that my side effects will be similar to yours and hopefully my husband and I will be able to start a family.
I am 17 years old i got admitted 2 the hospital for a abscess in my left fallopian tube for a week they let me go i was in so much pain they finally after 2 years of complaining that something wasin't right they did a lap and found the endo they burnt it out and not even a month later it grew back i have a two yr old son and am in severe pain every day the doc want's me to get on lupron but i am not sure he told me i only have 1 year to have a baby after that i am not gonna be able to i am not sure what to do i need help please someone give me advice thank you
HI I am on lupron and it is not working. Anyone heard of that? I was at 60 and needed to get to 30 to go on menapor shot for invitro. Instead I went from 60 to 120. My follicles are still growing on lupron. Im so confused. Please any infor will help.