Welcome to ehealth!
You will get better responses if you post a separate thread, so I split it from the older post.
I'm sorry to see that you have had such a problem finding help for this pain that you have been experiencing. Have you seen a neurologist for this problem? It sounds very similar to a nerve problem that I suffer from. The nerve starts at the base of your skull then travels up the back of your head, then feels all most as though it goes straight through your head to your eye(s). The doctors might want to consider putting you on some nerve medication like lyrica or something similar.
I hope you are feeling better soon!