Multiple Sclerosis Forum - Need Answers about Multiple Sclerosis

My name is Melissa. 17 years ago I was scalped while riding a go kart and almost died twice. I was in and out the hospital for about a year with nine different surgeries, including having a hole drilled through the top layer of bone in one place on my head. Don’t ever do that it hurts all the time like a ice pick being hammered in your head. I started having all kinds of problems with muscles, coordination, eye problems- lots of jerky movements when I stand up I would be dizzy and have to sit back down or fall down my whole body would go numb and I get migraines where I go throw up. So a year later, they put me through all the test and then finally a MRI, they had put me in the hospital over night the night before. They had left my chart in the room and inside it there were instructions on how to deal with MS for me and my husband.

The next day I went to have the MRI, it was freezing in there they wouldn’t give me a blanket I was shaking the hole time. They did the test on my head. A neurologist came to the hospital and did a bunch more test telling me to do certain things and I couldn’t curl my toes under no matter how hard I tried pretty weird. He wanted me to make an appointment with him on the following week. And I waited for a week to get the results, I got the results they were negative. I never went to the neurologist, I figured, Oh I must just be a whimp.

I hit my head on everything cabinets getting in and out of the car door knobs I have no feeling of what is near to my head or I’m an fool. A couple of years ago I lost a piece of bone out of my head and that hole hurts all the time also. I think I had hit it on the closet try to get something off a shelf. The area was swollen for about 6 months and then a piece of bone worked it’s way out of the skin. I don’t really like going to doctors so I didn’t go.

Through the years I have had problems and the older I get the worse. I am 43 now and lately things are not good. I started having eye movement pain, and then I was sitting at work and al of a sudden a black curtain came over my eyes for a split second and then double blurred vision. I tried to stand up and felt dizzy and sick so I sat back down. My eye were out of control and felt like they crossing and trying to jump out my head. This lasted for about 4 minutes. Then I started seeing the colorful spots- a blurry oval with color around it.

The eye problems continued for a week not even being to sleep at night because when I would close my eyes it was like I was fighting to keep them closed and my eyeballs felt like they wouldn’t quit moving it felt like they were just rolling around in circles uncontrollably. Then the restless legs at night is a problem too. I went to the eye doctor for full exam. He said my eyes look good just a few floaters in the right nothing major. So he said get a thyroid test.

I was sitting on the couch watching TV and suddenly got several sharp pains in the upper right side of my head felt like someone hit me about 4 times last about 1 min each and then my arms and legs felt like dead weight, I layed down on the couch and fell asleep for about an hour and a half.

Last Saturday May 26th I went to help set up for my daughters wedding I sat down for a few minutes and when I stood up I felt dizzy things started to turn black so I sat back down then my legs started to feel real shaky and could hardly walk. I wrote it off as being nervous about the wedding.

Then Sunday May 27th I woke up and could hardly walk my legs hurt so bad. Then Monday night I noticed from my knees down to my feet were swollen and the muscles were tight and cramping and felt like they were ripping apart and you could watch my muscles jump. This lasting for about 4 days most of the pain is gone except for my hips knees and some pain in my lower legs and lower back when I move certain ways.

I have been constipated for about 3 weeks and I go pee about 20 times a day when my bladder is almost full and I start walking I start having pain above my pelvic bone and then I HAVE to go pee not painful until the very end of the stream. I get up about 2 or 3 times a night. Or be in pain when I get up at 6:30AM and can barely walk to the bathroom. Well I am not constipated now Wed May 30 I got the poops about 6:00 PM and it lasted till about 11:00 amodium didn’t help.

I have never even had heartburn, Now every time I eat about 15 min later my whole stomach and intestinal region starts cramping up and feels like it is on fire that last for about an hour. And I get the hiccups at the drop of a hat several times a day every day. From day to day and minute to minute I don’t know what is going to happen next. This is a book sorry it’s so long. I guess I wanting to know should I pursue the thyroid thing or mention the MS thing to the doctor?
I need an opinion.