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Still a Gallbladder Problem With Negative Hida Scan? (Page 1)

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Hello,
I'm a 27 year old woman who has been having severe URQ pain with horrible bloating and acid reflux. I had an ultrasound with negative results. No gall stones noted. Then, I have had one HIDA scan with a 60% ejection rate. The test still caused the same pain and nausea. I then has a colonoscopy done but still a negative result. I'm at my wit's end. I was put on aciphex and told that I probably had IBS. I was in the ED this past sunday with the same pain. THe ED Dr. said that it was most likely my gallbladder and told me to see my GP. She gave me Nexium, Lortabs, and Phenegrin (sp?) and set me up for another HIDA scan. I have been vomiting everytime I eat. I'm so afraid that I will have another negative scan and nothing will be done. I'm a CNA and work 12 hour shifts in a hospital. All of my nursing coworkers agree that there is definately something up with my gallbladder. I have already had to miss so much work because of this problem. Could I still have a bad gallbladder even with negative HIDA scans, ultrasounds, and bloodwork? I don't know what else to do. Here are my symptoms. I have gnawing RUQ pain when I eat. If it is something that has even the slightest amount of fat or oil, I throw up. Alot of nausea especially after I eat. The pain seems to be underneath my rib cage and radiates into my back between my shoulder blades. Severe bloating and acid reflux. Could this still be my gallbladder or something else? I don't think it is IBS. The only other explanation they have given me is Chrone's disease. HELP!!!!!!

Thanks
Painful in TN
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replied May 31st, 2007
Especially eHealthy
I would definately get a 2nd opinion, it sounds alot like gallbladder problems but also my dr told me that ulcers can cause very similar symptoms soi was given an endoscopy the day before my surgery but i already knew i had stones but they wanted to make sure i didnt also have an ulcer, since ulcers can mimic gallbladder pain. So maybe also request and endoscopy. My husbands going through similar things he is getting both the endoscopy and colonscopy done.
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replied December 21st, 2012
We have been to many doctors...They are saying they may just have to help him manage pain. They may never find out whats wrong. we will tell them to take his gallbladder out. hes not going to live with this. He has been tested for ulcers and has none..thank you very much for replying
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replied April 21st, 2008
How did it turn out?
I am having the same issues. I had a negative ultrasound and a 59% ejection fraction from the CCK Hida Scan. The CCK injection made me horribly sick and I ended up in the ER the day after. I am waiting to see a surgeon, but don't want to do it if it's not that. Can you have negative scans and still have gallbladder disease?
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replied December 21st, 2012
My son has an 85% ejection fraction. He now takes the 4 gram Cholestyramine powder in a drink before every meal and feels fantastic. All of his symptoms have gone away. The Cholestyramine is a resin that absorbs the excess bile.

My son would have nausea after after every meal. He was also eating A TON of food, and yet losing weight and feeling weak and exhausted all of the time. Anytime he exercised, it would make him feel horrible for days afterwards. He had a HIDA Scan showing an 85% ejection fraction. He also felt the same nausea with the CCK injection during the HIDA scan. And yet the radiologist report came back saying everything was normal. I was suspicious of this lack of diagnosis. My son had tried taking Creon in the past, with some positive results, though he had to keep upping the dose, because the Creon would stop being effective after a couple of weeks. We also had him try the 1 gram Colestipol pills with similar short term success. Then I remembered about how some people who have had gall bladders removed use Cholestyramine powder to reduce the resulting diarrhea, so I asked our doctor to give my son a prescription for it. It is the only thing that is working long term without losing effectiveness.

This is proof to me that an overactive/hyperkinetic gall bladder is a real diagnosis and can be treated successfully.
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replied December 21st, 2012
my sister had all negative scans and finally just told them to remove her gallbladder and it was rotten. Yes many people have said they have had that experience.
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replied April 6th, 2009
Pain in lower right rib
I just went today to get an HIDA scan. I do not know what the results are until tomorrow. I have pain in my lower right ribs and feel some in my back. I first noticed the pain when I was 19 shortly after I had my first daughter. It hurt a little and would go away for awhile. After I had my third daughter I was 25 the pain got a lot worse so I went to the Doctor. They said it was back problems and gave me meds. The pain went away but over the years the pains kept coming back and more frequently lasting longer. Now the pain does not go away and is stronger. I am 30 now and the only thing that has come up in the test so far was an enlarged bile duct in the liver. The HIDA scan guy said that the test does not always show there is something wrong with the gallbladder when there is. Another thing when I was getting the HIDA scan is the meds they gave me made the pain worse in the spot that hurts.
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replied December 21st, 2012
I dont know why its so hard for them to diagnose these problems
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replied June 16th, 2009
Frustrated
I'm dealing with the same thing. I've had x-rays, a colonscopy, and a HIDA scan. And I've had tons of blood tests. All the results came back normal. I'm physically and emotionally exhausted. There needs to be one gall bladder test that can check for disease, stones, and obstructions all at one time. I'm putting out around $200/month on Dr bills only to hear that they can't find anything wrong. I have all the symptoms for gall bladder disease. I'm going to a GI dr at the end of the month and demanding that we find the source of the problem. I'm getting desperate. I've heard of so many people who have had so many tests for their gall gladder that all came back clear and then still have their gall bladder removed to find out that it was indeed the problem. Something needs to be done about this. Too many people are suffering.
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replied June 18th, 2009
I have passed my ultra sound (no stones detected). Got my HIDA scan test results today and was told the ejection was 65%...now they are sending me to have an endoscopy done. I am so frustrated too. I am not a doctor, but it seems to me that the process of elimination is time consuming and painful. I still cannot eat and I have sharp pains under my right rib cage and my back (directly behind the pain in front). My question is has anyone with all of these same symptoms been diagnosed with anything other than a gallbladder problem? I don't understand why they can't just take the gallbladder out and see if any new symptoms come up...is that crazy? I am just sick of being sick.
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replied October 18th, 2012
Just wondering what your tests ended up revealing? I have similiar symptoms. I started having problems about a year ago. It started with pain on my right side just underneath the rib cage. It would come and go at first and then eventually got worse. Dr. ordered 2 different ultra sounds which came back ok...of course! He then ordered a Hida scan which revealed a healthy gallbladder....of course! He came to the conclusion I strained a muscle in my back...hmmmmmm ok! I dealt with this for about 8 months and couldn't stand it any longer. He then ordered another ultrasound and tests revealed I had fibroid tumors, believing that was the cause of all my problems....so he thought. Had a total hysterectomy and things were great for about 5 weeks then the pain started up again....grrrr! Dr. then ordered a CT scan which revealed gallstones. He told me normally they show up on an ultrasound and not a CT scan so I just had ANOTHER Hida scan done today. He wanted to confirm the gallstones before he takes my gallbladder out. So tired of all these tests, just want to feel better. Wish I would have gone to a specialist but I didnt' want to travel out of town so I guess its just a guessing game. Hoping this Hida scan will reveal something.
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replied December 9th, 2012
gallbladder
hi I just read your post and its the only one that is recent. My son is having much the same problems. But his pain started on the lower left side of his stomach. all the same symptoms as everyone else other than that. He has lost 20 pds in 6 weeks. He had a heart transplant 25 years ago and 2 years ago his kidneys failed and he is on dialysis. He cannot afford to lose any more weight . He is so thin and sick and all his tests have come back normal.. the heita scan, endoscopy, CT scan, everything shows that he is fine but he is wasting away and is tired of feeling so sick. Did you have your gallbladder out and did it help you if you did? I am desperate for answers. He is so sick and tired and he is on the kidney transplant list and he will be taken off it if we cannot find the answer to this. Please if you have found any answers please email me and let me know. I am desperate. thank you
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replied December 21st, 2012
What was the ejection fraction results for your son's HIDA scan? My son has an 85% ejection fraction. He now takes the 4 gram Cholestyramine powder in a drink before every meal and feels fantastic. All of his symptoms have gone away. The Cholestyramine is a resin that absorbs the excess bile.

My son would have nausea after after every meal. He was also eating A TON of food, and yet losing weight (lost 30 pounds) and feeling weak and exhausted all of the time. Anytime he exercised, it would make him feel horrible for days afterwards. He had a HIDA Scan showing an 85% ejection fraction. He also felt the same nausea with the CCK injection during the HIDA scan. And yet the radiologist report came back saying everything was normal. I was suspicious of this lack of diagnosis. My son had tried taking Creon in the past, with some positive results, though he had to keep upping the dose, because the Creon would stop being effective after a couple of weeks. We also had him try the 1 gram Colestipol pills with similar short term success. Then I remembered about how some people who have had gall bladders removed use Cholestyramine powder to reduce the resulting diarrhea, so I asked our doctor to give my son a prescription for it. It is the only thing that is working long term without losing effectiveness.

This is proof to me that an overactive/hyperkinetic gall bladder is a real diagnosis and can be treated successfully.
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replied June 21st, 2009
Gallbladder symptoms- all tests negative
I am having the same problems. I have been having pain under my right rib (for about a year now). All scans come out negative (ct scans with barium, ultra sound, blood work, hida scan, endoscopy, etc.)- which makes doc's believe nothing is wrong... but something is horribly wrong! Everytime I eat I feel sick and have to use the restroom (#2), loss of appetite. Always in pain. The most recent pain is now on the bottom of my left rib. Horrible pain that sent me to the e.r. last night (Doc said that he didn't want to do any ct or x-ray because i have had too much radiation and believes its damaging)... So no answers! Told me I may have GERD or gastritis. (I'm 21, and believe i'm in good shape!)
I am 100% positive that it is gall stones, or a sick gallbladder. Just today as I was working, I went to take a breahe in and I felt this horrible "grinding" pain in my right rib area that was SO painful! I'm just so sick of negative test results and doctor's who now think i am a hypcondriac! I'm in serious pain, and at my witts end trying to "persuade" doctors into going in laproscopically to explore what could be wrong! Seems like no one wants to.
I just want this thing out!
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replied July 2nd, 2009
Do any of you have these symptoms only right around your period?
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replied August 12th, 2009
I have been having the same symptoms as the rest of you--RUQ pain for 4months. The pain can be on a daily basis but ebbs and flows thru out the day. Some foods seem to make it worse but that isn't always the case. I have had a negative US,HIDA(EF 46%), Abd CT, Colonoscopy, blood work, EGD and today an Endoscopic EGD--ALL NEGATIVE. Can it still be Gallbladder? The pain occ goes into my right shoulder and right side of neck. I supposed the next step is diagnostic exploratory laprascopy. Any advice? Anyone had negative tests but had their Gallbladder removed anyway...And they feel good again. Beyond Frustrustion. Thanks
T
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replied August 12th, 2009
Hello there
I, like you, had some similar problems - it wasn't so much when I ate food - i didn't tend to get a gnawing pain (which to me suggests an ulcer). I get terrible pain under my ribcage and between my shoulder blades - I was constantly being sick - couldn't even keep water down and in the end had to be hospitalised as i was dehydrated and it even affected my vision. A consultant found out that there was a problem with my liver (which accounted for the back pain and upper (between the shoulder) pain. After 2 liver biopsies it turned out I had non alcoholic steatosis hepatitis, which basically meant there was fat in my liver. I don't know if anyone has tested you for any of these symptoms - like you my HIDA showed my gallbladder to be very functional, even though I had 'sludge' in my gallbladder, but no stones. I have read on websites that many people have said they have sludge and it causes them such pain - whereas one of my doctors said it would not cause problems, and yet a consultant said it would cause pain!! Who do you believe. I also get IBS and fibromyalgia which also accounts for pain I have. I hope you manage to get things sorted out - apparently most of my problems were down to my liver. It meant a diet change and weight loss. I was so severely sick (vomitting) I didn't think I was going to get through it.
Good luck, from Suzanne
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replied August 12th, 2009
Hi to all.. I am 41 and 2 years ago I was going through alot of the pains that you all are discussing shoulder pain and having all of these test done and no conclusive results to support the reasoning in my pain.. my indigestion was so servere that water would bring it on and I couldn't eat anything at all.. my ultrasound came back ok and when I went to my surgeon I had eaten about 10 sunflower seeds just trying to get something in my stomach that didn't create the indigestion about 1 hour after eating them I drove myself straight to my surgeons office in so much pain I couldn't hardly move. He ask me what all I had eaten and drank that day and I told him.. He instantly told me that I was in a full blown gallbladder attack.. I asked how he knew cause we hadn't even discussed the results of any test and he said that the for sure sign for him was peanuts.. he said if anyone is ever in doubt of gallbladder to eat some nuts and if you get uncontrollable pain that is the attack. Come to find out he also told me once we discussed my test that the ultrasound hardly ever told them what they really needed to know.. the hida scan is very reliable and my bile duct was full of stones.. so the sunflower seeds saved me..I thank God for my surgeon he was Heaven sent.. I don't really reccomend eating the peanuts cause it was the worst shoulder and rib pain of my life.. and I litterally drove myself to his office hunched over and could not stand up.. I had surgery two days later.. Good luck to you all and I hope you all find relief VERY VERY soon!! God Bless!
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replied August 11th, 2010
I am 42 years old and have been having this pain my whole life, excruciating miss work pain, I don't want to loose my job, just spent the weekend in ER, urgent care, my dr's office all telling me this sounds like gallbladder...every woman on my side of the family has had there gallbladder out, I have done enough research to know I am having a gallbladder attack, I have had 100's no exaggeration over the years, tons of ultrasounds one HIDA scan already and they all come back negative including my blood work, saw a surgeon again yesterday, going for another HIDA scan now, I know its going to come back negative they always do, they've given me nothing for the pain and its been on and off for a week now at about a 25!! Its excruciating worse then childbirth in my opinion, the dr. told me if these tests come out negative we would discuss taking my gallbladder out anyway, why spend all this money on tests when we all know it is my gallbladder, I have had every scope and test done u can think of, there bleeding me dry with this...just take the damn thing out already, how much more pain do I have to be in and how much more work do I have to miss before someone does something!!! I understand frustration believe me, this has been going on for me for over 20 years!!!!
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replied September 18th, 2010
I've been having the same problems a lot of you have mentioned. I'm fifteen and my grandma and I went to my gi doctor because I'd been having bad pain in my right side under my ribcage. The doctor sent us for some blood work, a HIDA scan, colonoscopy, and EGD. CBC, Amylase, everything on the blood work came back normal as well as the HIDA, EGD, and colonoscopy. There was slight gastritis found during the EGD and mild erythematous mucosa found on the colonoscopy. The doctor said it shouldn't cause the pain I'm having. The biopsies won't be back for a couple more weeks but I'm sick of being in pain. The pain is worse after eating and has happened on and off for about a year but recently got to the point it's keeping me out of school and activities. Is it possible it's still my gallbladder? If not, any suggestions as to where to go now? My doctor's reluctant to do more testing but I just want this over with so I can get back to my life.
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replied September 24th, 2010
I had negative tests and had a horribly diseased gallbladder
I had pain in my RUQ my whole life. My mom said it was gas and would have me lie on the floor until the pain passed. I can remember being a little girl (because of the house we lived in) and in so much pain.
I had a nine hour attack on a flight from LAX to London when I was 19 and wanted to die.
The pain came and went and never became chronic until I was 22. At that time my pain was severe but I didn't freak out until I looked down and could see a bulge under my right rib. My husband, and mother & father in law also saw it. *no doctor I've told this to will agree it was even possible*
I went to the ER in excruciating pain. Dr. gave me demerol and told me to go to my doctor and be tested for gallbladder disease.
My untrasound and bloodwork were both negative. My doctor ordered a second untrasound and when I was getting it done the tech told me that gallbladder disease (stones) don't always show up on an ultrasound because the stones aren't living organisms. I have no idea what that means in the world of ultrasounds. Any tech's want to chime in?
Doctor ordered surgery even though I'd tested negative twice. My gallbladder was full of more than 30 stones. My duct was completely blocked (white stool) and I was in danger of my gallbladder bursting by the time they gave me the surgery.
The problem I had is, the pain never went completely away. I still suffer from pain but lying down helps. I was recently diagnosed as a celiac and have read that celiac disease and gallbladder disease are often friends who hang out together. Some suggest the celiac disease causes the gallbladder disease. I don't have any studies to reference though so it's just some peoples' opinions.
Both celiac disease AND gallbladder disease run in my family.
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replied September 26th, 2010
To all of those on this site who have been told their HIDA scan has been normal, I encourage you to ask what your ejection fraction (EF) actually is. So many people are told it is normal because it is over 35%. Many doctors do not recognize that an elevated ejection fraction (above 80%) can cause gallbladder symptoms. Often times if the GB is removed, it is found to be diseased. Elevated ejection fractions are often seen in patients with Celiac patients that also have GB issues. However, I have read many posts from people who were actually told their EF is high and their doctors wouldn't do anything about it. There was an independent study by Dr. Holes-Lewis who discovered that removing the GB in patients with an elevated EF was proven effective in most cases. Here is a small excerpt from her research: "Twenty-seven (97%) of 28 patients indicated that they had improvement in their symptoms after the procedure (gallbladder removal), and 22 (79%) of 28 patients said they had total resolution of their symptoms." So please ask your docs what the EF was. It may still be difficult to get a doc to do something about it but it is a start. If anyone out there finds out they have an elevated EF and have their GB removed, please post and let others know if it was effective or not.
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replied December 15th, 2010
hi guys, have any of you taken hormonal birth control? Some brands like Yaz, Yasmin, Gianvi and Ocella have been linked to Gallbladder disease - there is currently a class action lawsuit going on. If you have problems with your gallbladder which developed while taking one of these or even afterwards?
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replied May 8th, 2011
gallbladder
i too have had 2 hida scans and 2 ultra sounds, all normal. but i have all the symptoms of a bad gallbladder without the vomiting and diarrea. they want me to have an upper g.i. endoscopy, what will that show ? help me please....... sherry
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replied July 4th, 2011
Gallbladder disease
I just got out of the hosp. last wens. for severe pain and vomiting. I was getting I.V. antiobotics and pain meds the entire week. I had 4 different Dr.s looking in on me and ordering test after test. I was never informed about what they thought needed to be done. As the week went by I was vomiting every time I smelled something or when they tried giving me oral med. for the pain. I still have the horrible pain that justs makes me want to be gone. I am also still having explosive stools that are so bad that I can't make it to the bathroom in time That is totally embarrasing but no one seemed to give a damn. My stools range in color and texture that being anything from black....to brick color and a very earthy color of green. I have seen blood in it also.my primary Dr. said that two of the tests were positive in his opinion and that all the other ones were just ify. He said that he was keeping me for a few more days for pain control but something happened and all of a sudden I found myself being taken off the I.V.'s and wisked out of the hosp.as fast as they could get me out. So here I am at home.. back in severe pain wondering if it is really worth fighting for any more. I fear it will never go away and I can't continue this any longer.My primary didn't even come in to instruct me on what I should be doing here at home and I know he was at the main area looking at charts and my husband saw him get off the elevator but he since has said that he did come to see me but that I was not in my room. He has been my prim. Dr. for 15 yrs. and it really hurt to think he would lie to me, but lie he did.Anyway I am pleading with someone out here to please tell me what I can do. Pain has to stop, I am about at the end of what I can stay strong for. i also have decided that it might be time to find another Dr. and hospital.My faith in him is gone. Please sombody help me.
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replied March 11th, 2013
Has anybody ever tested you for a Bacterial infection such as c.diff or giardia?
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replied November 1st, 2011
Did any of you guys ever get answers or anything figured out?

I'm a 28 year old female with many of these symptoms. I've had stomach issues on and off since I was 16, but all these major symptoms only cropped up a month ago.My blood work, stool samples, cat scan and HIDA scan have all came back negative. I am currently on Symax Duotab for the pain and diarrhea. While the Symax allows me to go to work, it doesn't take away the symptoms completely. Every day I hurt either under the right side of my ribcage or in my back under my right shoulder blade. I can't lay on my right side anymore because it starts hurting. It also feels like there is swelling under the right side of my ribcage.

I found out about the results from the HIDA scan today and started crying. I am so tired of being in pain.
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