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Q: Bicornuate Uterus ...
asked by: nmcurious on May 19th, 2007
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Have any women here had a hysterectomy due to a bicurnuate uterus? I just recently found out i have one. My ultrasound revieled that i have a bicornuate uterus with 2 endometrial stripes that showed up. My uterus has also grown a little. And 3cc of fluid was seen in the cul-de-sac. tho the doc said the fluid was from one of the many cysts i seem 2 develope. I was also curious about how the miscarriage rate is... a few years ago i delivered my son who had died while i was pregnant (7months)..i dont understand how on earth nobody saw my uterus was abnormal, after having tons of ultrasounds during pregnancy. i am going 2 get 2 the bottom of that one. it wold have saved me alot of pain and heartache......anyway, does anyone have any info on bicurnuate uterus?
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Kia
replied on May 19th, 2007
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yes, me.

I have lots and lots of information.
I had a bicornuate uterus which ruptured during pregnancy.

tell me what you want to know and I'll answer your questions where possible.
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nmcurious
replied on May 23rd, 2007
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what do you mean it ruptured?? i had been pregnant at one time, but lost the baby at 7 months pregnant. I have a feeling it was due to my uterus, but i didnt find out it is bicornuate until 2 1/2 weeks ago. My pregnancy was almost 5 yrs ago. I dont understand how on earth, with all the ultrasounds that were done, nobody saw the way my uterus was?! or atleast they didnt tell me.
Anyway, really I was just curious if at some point anyone here sees it as a possibility that i would need a hysterectomy in the future..or if anyone has had the same kind of issue. Like I had mentioned before, the ultrasound showed 2 endometrial stripes and some thickening..... though the doc said its not something to worry too much about right now, she did mention that we need to keep an eye on it.. i have another ultrasound in june. but that is also to see if the solid mass on my ovary has gone away or not. U*G*H.. i am a little confused.....
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Kia
replied on May 23rd, 2007
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well the rupture was because the part of the uterus my child grew in wasn't properly formed so it tore instead of stretching (although there has been some question abbout what actually happened now by my new doctor - but that's a story for another day).

a truly bicornuate uterus can and more often than not does produce a successful pregnancy although pre-term labour is very common.
this does fit with your loss at 7 months.

it is likely that no-one "noticed or said anything" because they probaly didn't know.

suprising most gyns know very little about the rarer uterine anomalies, and a bicornuate uterus is certainly not common - it's not the rarest anomaly though.

there is no reason to require a hysterectomy unless on side fo the uterus gives you problems and this would then need to be discussed with a qualified and knowledable surgeon at such time.
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nmcurious
replied on May 25th, 2007
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can a bicornuate uterus cause pain and bloating? this is probably a question 4 another forum, but I get extremely bloated and gasy along with abdominal pain,mainly on my right side. a very small solid mass was found on my right ovary and i have another ultrasound 2 see if it has grown or not. sometimes the gas and bloating and some pain goes away after a bowel movement...but i am constantly gasy and feel the pain. sometimes the pain is just an aching/burn.... and i do sometimes feel the pain with urination and after intercourse.... can it be due 2 my uterus? or does it sound more like the problem with my ovaries? like i said b4,the doc says i produce more cysts than most women do... and my endometrium has thickened.... im just a bit frustrated and believe there is more than what they are letting me believe..tho i do have another ultrasound on the 4th...hmmmmm.?
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Kia
replied on May 26th, 2007
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A bicornuate uterus (or any other uterine variation) is very unlikely to cause pain, gassiness, bloating or similar symptoms.

These could be related to a hormonal issue - ie associated with the cysts you are having problems with.

But in short, no having a uterine variation wouldn't (alone) cause those symptoms.
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genie m
replied on June 5th, 2007
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Bicornuate
I just wrote you elsewhere, curious, about this type of anomaly -- something I share with you two. In my case it was uterus didelphys.

Curious, here's why no one noticed your unusual uterus while you were pregnant -- they weren't looking! They don't expect it, they don't look for it, and they zoom through those ultrasounds like it was nothing very important.

I'm so, so very sorry that you lost your baby. Kia is right that premature labor is very common in cases like ours.

Kia, I also experienced a ruptured uterus during my first pregnancy. It was the internal septum that ruptured, apparently due to the kicking from that little foot! What a disaster.

I don't agree with you, Kia, that mullerian anomalies are not necessarily associated with a host of menstrual difficulties. When any organ in the body is . . . unusual, then it is very possible that other organs and/or functions can also be out of the norm. I speak from experience, oh, believe me, years and years of experience.

The problem, as I mentioned to Curious in another post, is that most docs know very little about us, and they aren't always interested in learning new things. You must find the most experienced gyn you can so there's a hope of getting good care.
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Kia
replied on June 6th, 2007
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Re: Bicornuate
genie m wrote:
In my case it was uterus didelphys.


Quote:
I also experienced a ruptured uterus during my first pregnancy. It was the internal septum that ruptured, apparently due to the kicking from that little foot!

Interesting... there is no septum in uterus didelphys.
A septum is only present in uterus septate which is definately not uterus didelphys.

Quote:
I don't agree with you, Kia, that mullerian anomalies are not necessarily associated with a host of menstrual difficulties. When any organ in the body is . . . unusual, then it is very possible that other organs and/or functions can also be out of the norm. I speak from experience, oh, believe me, years and years of experience.
You are entitled to your opinion.

However I speak from fact not opinion, just because I am not professionally trained does not mean I am uneducated.
I am more aware than most that gyns/doctors often do not know much about mullerian anomlies - I know more than the doctors at my original hospital following my extensive research during the aftermath of my own experiences.
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Susieq28
replied on July 29th, 2007
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Bicornuate Uterus Pain During Pregnancy
I just recently found out that I have a bicornuate uterus. I had a miscarriage back in Feb. I have been experiencing pain on my left side in my ovary area. I went to my doctor to find out if I had a cyst because I had them before, but they did not cause a lasting numbing pain like this. This pain starts at ovluation and last until I begin my period. Never had pain like this until I began ovulation following miscarriage. This is when doctor found out I had bicornuate uterus. NO cyst. He thinks just ovulation pain. I took a pregnancy test twos before my period. Not pregnant. Now my period is 3 days later. I am planning to take another. MY questions are: Has anyone had pain like this before after miscarriage? Could this be a kidney infection? I read that sometimes women with bicornuate uterus have only one kidney. If anyone could give me feed back on their experience with bicornuate uterus and pregnancy. I have been trying almost 3 years to have a baby. Sad
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stash.ash
replied on August 15th, 2008
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i too have a bicornuate uterus. one side is very small and the other has no opening. i had a misscariage in october of last year. i am having a hysterectomy in 2 weeks mostly because it causes huge amounts of pain, especially from the side that can't slough or drain.

i am kinda suprised, i thought i was the only one.
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boop123
replied on January 29th, 2009
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Bicornuate Uterus and associated problems
I discovered that I have a heart shaped uterus or bicornate uterus after having problems carrying my babies. The first was born at 28 weeks when my waters broke quickly followed by my son (now eleven). Dr's did not investigate as this was my first pregnancy. The second pregnancy followed 2 years later, after a routine internal scan they saw that my cervix had dialated at 4 cms. I was told that I would go into labour and that there was nothing that they could do. My contractions stopped and my gyny doc said that he would try a suiture around the cervix. It worked and held baby in for 4 weeks, sadly the baby was too small to survive. It was time to investigate the problem - and then they discoved my heart shaped uterus. I was advised early in my third pregnancy that I would need lots of rest and a cervical stitch at about 12 weeks - a successful preganacy at 35 weeks and a beautiful baby boy. So you see some of these stories have a very happy endings... good luck to all the special ladies.
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mamma_G
replied on February 26th, 2009
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re: bicornuate uterus
I too have a bicornuate uterus - or heart shaped uterus. I have had 4 pregnancies, all to term, my first was evan two weeks over due. I have had all of my children by cesarian section, and didn't know about my condition until the delivery of my 2nd baby by a different dr. I have never had a KNOWN miscarriage, and I have had no problems through my pregnancy. I agree that when an organ is abnormal, difficulties can arise, however, there are many cases, like mine, where you have success. I want to share my story with you, because you need to get the facts, and you need to know that you do have hope, but unfortunately YOU have to do Your homework, and you cant always count on the Drs to have the perfect answer for you. Everything that I know about my condition is by My research, not the help of my doctor. I wish all of you who are looking for answers and help the best of luck.
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boop123
replied on March 2nd, 2009
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Bincornuate Uterus
Hi There, well that's good news for you, however, not all women are as lucky as you. I was eager to share my knowledge with others who are or have been affected by Bicornuate uterus and the associated problems around pregnancy. It is unlikely that you would have known about the condition if like you explained you had carried to full term without any hitches. I had great medical attention and the discovery of why i had not been able to carry babies full term was quickly explained. I am sorry that you felt my story was misrepresentative to others with bicorn ate uterus, but we can only tell others of our experiences and hope that they are able to question professionals and with the help of adequate investigations find solutions to what has been in my experience very distressing. All medical staff that I have had the pleasure of meeting have answered my questions and have been, I believe been instrumental in me having two lovely children. In answer to another question, i also queried why it was never picked up under ultrasound. The only time the gynys can tell if a uterus is abnormal is by laparoscopy or hysteroscopy. I did not need to research, the Dr's gave me answers which i needed to ask. I am an intelligent woman and believe that Dr's will only answer questions that are asked of them, some people would rather not know outcomes or case studies, I did. So girls ask away and you will also get answers and good luck to all, like i said before we are all different with individual bodies and babies, to share our stories will only give a greater understanding and not necessarily the answers to individual cases.
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rekha
replied on March 18th, 2009
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Suggestion regarding bicornuate uterus
Sir/Madam,
While i have scanned the results outcomes that the uterus structure is bicornuate/septate .Hence please suggest me in which steps are to be taken for safe of the diagnosis. As there is a chance of aboration in 28 weeks.
Regards
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STARSBABYGIRL
replied on April 28th, 2009
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Living with a bicorniate uterus
I too have a bicorniate uterus. I have 2 children. One was c-section the other vaginal. Neither pregnacy was easy. I've had my share of miscarriages too. I was told that its harder to get pregnant and easier to have a complicated pregnancy but it could be done. On the left is always miscarriage for me. Both of my children were on the right. Very complicated pregnancy though. Cervical stitching, early labor, bed rest, house rest and going to the doctor EVERY week. I was told that there wasnt enough oxygen and room in the other side. I had to have a c-section because my daughter was breach and they coulnt turn her around in there. I do know that you can't have an Iud done and later there are going to be other things you cant have done because of an abnormal uterus. I didn't want to go through the heartache of more unsuccessful pregnancies or it coming down to the choice of me or the baby so I got fixed. I had to have a living will made because of my issues while I was pregnant. Everybody is different and their complications are too. An Iud is not an option for us. (totally separate issue)I'm having female problems and the Nova Sure was supposed to be an option to help me. Guess what? Have to have a hysterectomy because my uterus isn't normal to have that done too.So, if you are having other problems and Nova Sure is suggested, it can't be done and your other option IS a hysterectomy. This is my experience.
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bumblebee1985
replied on June 30th, 2009
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just found out i have heart shaped womb
I was told in a throw away comment when I was 16 that i had a heart shaped womb. I had been suffering painful periods since I had started at age 11, they were never regular and lasted three weeks at a time. My doctor was brilliant and sent me for every test going to check I wasn't anaemic or didn't have cysts. This involved an ultra sound, and I was then told i had a heart shaped womb. They never found a reason for my periods (i was never told my womb had anything to do with it).
Im now 24, and thinking about the future. My womb has never been mentioned since, i went on the pill and that solved my periods. Ive been off the pill for over 2 years (not to have a baby) and my periods are fine now.
I decided this evening to research the condition because im getting older and i have to say i'm feeling very sad right now. I had no idea it would cause any complications, i naively thought I was just special! Although i feel blessed to have been told at a young age, so at least if i do get pregnant i can tell the doctors.
I feel so bad for all the bad experiences of everyone on here. I hope this is not my future also.
x
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freeofperiods
replied on July 3rd, 2009
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I got pregnant at 17(oops), normal pregnancy, not so normal birth. Had to have C-section, found out why baby was breech. Bi cornuate uterus. Went back to OB for 2 wk check up, and she thought it was because I'm an identical twin. Of course, I'm the abnormal one. My sister has had 4 vaginal births. I had 2 sections. Now I'm 35 and have had the worst bleeding with clots for a week now. Am going for the hysto. The only problem I've had with this kind of uterus, is heavy periods with clots, and major cramping. This bleeding I'm now having is related to my uterus, but is not my period. Find out if you can get a biopospy of your uterus and get it typed. I found out I have two cycles. I always knew I was weird. Good luck ladies, with your pregnancies
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Evasmum
replied on November 12th, 2009
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I have bicornuate ut, and had emergency c section in 2007 to deliver my daughter at 34 weeks. All great with her but thinking of what next. Another go or is it too much risk? Anna
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