It sounds like I'm a lot like you with the
fibromyalgia...and not the Hasimoto
thyroiditus. I do have a skin disease
that flared up a couple of years ago
(lichen planus) which is in the autoimmune
category...and I've wondered the same
thing. Also, like you if I stay vertical
(I have to stand most of the day due to my
job) I really start to feel the pain. I
recently had the 4 day clean out and a
visit to the surgeon -- who -- get this
-- after explaining my colon to me
(redundant, etc.) said, "So what are we
going to do about this?" (Yes??) "Don't
eat." Waa-Ha-Ha (slap the knee) isn't
that great??? Since I have no tumors, no
cancer, --- it's all physiology. Use
Miralax and Amitiza (what a
disappointment), absolutely no dairy, and
if possible no wheat. (I've been tested
for Celiac: negative.) Luckily my regular
doctor is fantastic...and we're pursuing
other options. I have yet to try coconut
oil...might as well give it
a-whirl..........
|
str
New User, Becoming EHEALTHy
Joined: 18 Feb 2008 Posts: 1
Surgery to remove Redundant Colon worked great! Posted: 02-18-08 14:15pm
Beginning in infancy and for 65 years, I
have had every symptom and done nearly
every treatment posted on this site for
Redundant Colon, which I was only recently
diagnosed with at a colonoscopy. Yoga,
perfect diet, supplements, emotional work
- I became a health practitioner because
of my expertise! I had surgery at Mayo
Clinic to remove the excess colon three
months ago (done from the rectum - they
cut above the anus, pulled it out until it
wouldn't stretch any more, cut again and
restitched just above the anus). Besides
regular bowel motions (some were very
runny, but that's improving) I have had
the following improvements: I can empty my
bladder fully and have had no bladder
infections (they had become constant!);
for the first time in 20 years I can eat
wheat without my back muscles spasming in
terrible pain, along with throat clearing;
I can eat cheese, even melted, without
constipation. An autonomic neuropathy
(caused by autoimmune response) is
continuing to improve, which means that I
can stand up and walk after a meal, even
if I don't take digestive enzymes! These
are all miracles to me. I bet I could have
saved my uterus if I'd had this done 30
years ago. If this problem is common, why
wasn't it diagnosed sooner?
I was given morphine after the surgery,
and as soon as it wore off I had
excruciating pain in my shoulders and
sides which is common from the
"jackknife" position (butt in the air)
during the surgery. Other pain meds barely
touched the pain, so I located a great
bodyworker who used kinesiology to
rebalance my body. The nurses said this
post surgery positional pain is common
from the jackknife and also from lying on
one side during hip replacement.
|
ilmnblue
New User, Becoming EHEALTHy
Joined: 17 Feb 2008 Posts: 2
str Posted: 02-19-08 21:38pm
Thank you so much for sharing that news!
I was told today that I'm on the wait list
at the Mayo Clinic -- "about 6 months."
Glad to hear that your surgery went so
well!
|
Linda Sue
New User, Becoming EHEALTHy
Joined: 28 Feb 2008 Posts: 1
Constipation And Redundant Colon Posted: 02-28-08 10:19am
Like many of those who have posted
messages on this subject, for as long as I
can remember (from early childhood) I've
experienced years of constipation, gas,
bloating, pain, etc. Adding to the
frustration was the fact that I have
always eaten healthy and drank loads of
water every day, but still had these
problems.
Due to family history of colon cancer, my
doctor wanted me to have a colonoscopy
earlier rather than later in life.
Immediately after the procedure, I was
told I have a redundant colon. I wasn't
told exactly what that meant, so to the
Internet I went and found this site and
these postings.
Several weeks prior to the colonoscopy,
however, I had started practicing "food
combining" (you can find lots of info on
the Internet about this subject). I gave
it try. Basically, with food combining,
when you eat you don't combine certain
foods with other foods which aides
tremendously with digestion. I can still
eat the same foods I was used to eating, I
just don't eat some of them together with
others.
What a change it has made in my digestive
health. I am no longer always constipated
(in fact, my system empties out 2 - 3
times a day), all the gas/bloating is gone
and I don't need to take any fiber
supplements of any kind anymore.
I hope someone finds this information
useful.
|
cb7
New User, Becoming EHEALTHy
Joined: 04 Mar 2008 Posts: 1
some advice Posted: 03-04-08 16:22pm
I was diagnosed with this problem about
two years ago..and like all of you have
suffered with "constipation" for all my
life. I got so backed up that I was
terribly ill and only then was it
discovered that my ascending colon was
abnormally long and looped and twisted. I
was told to eat a low residue diet...which
for me is really hard as I am a whole
grain, bean eating semi vegetarian. The
adjustment to the diet was hard but I have
found a good balance where I can still eat
healthy but manage my symptoms. They key
is to keep it all moving and this is done
with 2tbs of mineral oil twice a week and
a daily dose of 500ml of Colyte...this is
the prep given for colonoscopy...it works
to flush the bowel daily. I would never
be ablet to function without this therapy
as the pain had gotten so bad...and my
bowel was backing up and making me
seriously ill. I STRONGLY recommend this
to all of you. Our bowel is not like
others and extra fiber...espciallly the
psyllium type fiber just makes our problem
worse. As stuff moves through all the
loops and bends it tends to collect and
not allow proper passage...think of moving
a ping pong ball down a smooth straight
pipe as apposed to a looped bendy one...it
will have a higher chance of getting stuck
in the bendy pipe. High fiber is almost a
recipe for disaster for us. I have not
been able to eat things like corn, pop
corn or raw salads for awhile...and though
I miss them, I certainly do not miss the
pain and suffering afterwards. The reason
surgery is not considered a desirable
treatment is that bowel surgery can cause
adheshions and blockages to form in the
bowel..making you worse off in the long
run....this is a common problem with bowel
surger and as a result most Dr. will only
consider it in life threatening
situations.
|
dk12
New User, Becoming EHEALTHy
Joined: 27 Mar 2008 Posts: 1
redundant colon Posted: 03-27-08 06:30am
I was recently diagnosed with a redundant
colon after a colonoscopy. My doctor
believes this was a result from surgery
and possible nerve damage in my pelvic
wall after a number of lymph nodes were
removed and peristalisis was affected. I
have also read that it is not uncommon for
women to have twists in their colon after
cesarean births and surgeries such as
mine. I was origianlly put on Miralax 2x a
day...not pleasant when I did have
movement. I have since been prescribed
amitiza which has been working well
although I still have some bloating. I
have movement every morning after a cup of
coffee. I also have adopted a high fiber
diet to include lots of water. Hope this
helps.
|
kg6
New User, Becoming EHEALTHy
Joined: 06 Apr 2008 Posts: 2
redundant colon Posted: 04-06-08 20:36pm
I found out from colonoscopy that I had a
twisted and "redundant colon" which means
it is longer than normal and loops upon
itself. My doctor gave me prescription
Enulose (Lactulose) which is a synthesized
form of the sugars Fructose and Galactose
which draws water into the colon thereby
softening the stool. Now I have a normal
bowel movement everyday, no cramping, no
urgency, etc. I recommend it.
|
buffchick
New User, Becoming EHEALTHy
Joined: 29 May 2008 Posts: 2 Location: ,
Posted: 05-29-08 10:18am
wow, sounds like I might have a redundant
colon to! (to chicken for the barium enema
though)
some things that worked for me:
1) healthy diet, definate improvement. the
standard food piramid is a good way to
start. but experiment. eg. I have no food
alergies or so, but for some reason oats
give me BAD gas and bloating, and I mean
BAAAAD. Im fine with all other grains,
except for oats. wierd. also, fruit seem
to be more gentle to me that (most)
veggies.
2) check for food alergies/sensitivities.
of course avoid foods youre
alergic/sensitive to.
3) I found this tip in an old home
remedies book: put your mind into it. pick
the same time of the day, every day (eg.
right after breakfast/lunch) to do your
business. kinda passivly
concentrate/mentally prepare for it in the
10min or so right before. also having your
upper body completaly uprigth the book
said, is not a ideal position for a bowel
movement. lean slihgtly forward/back/to
one side. do that also when youre trying
to induce the urge to go.
hope this helps a little!
|
gizzychico
New User, Becoming EHEALTHy
Joined: 08 Jul 2008 Posts: 2
UUhhh Posted: 07-08-08 21:40pm
I want surgery to end this now!
When I was a little girl, my mom had to
give me enimas very frequently. My whole
life, my schedule was once or twice a
week. In highschool it got worse.
After my daughter... it got UNBEARABLE! I
wouldn't go for 3-4 weeks. I would walk,
take stool softener and fiber supplements,
I would drink butt loads (lol) of water!
I would even give myself enimas with no
results! Finally, when the time came to
pass, it was the most painful experience
ever. I would be in the bathroom for 2
hours minimum, sweating, cramping severely
to the point of passing out and/or
vomiting. This is no way to live!
I had a barium enima (no sedation
whatsoever) and i will never do that
again! ouchie!
Diagnosis:
Redundant colon, multiple loops,
especially on the left side.
Solution:
Miralax
Results:
For the most part, so long as I take
miralax everyday, I can produce bowel
movement every 1-4 days. If I don't take
it, I will get the god awful painful
cramping!
I wish I didn't have to take miralax
everyday. I wish I could have the
multiple loops on the left side chopped up
in a blender!!!!! Get the loops out of
me!!!
Is a surgery like this even possible????
|
gizzychico
New User, Becoming EHEALTHy
Joined: 08 Jul 2008 Posts: 2
UUhhh Posted: 07-08-08 21:41pm
I want surgery to end this now!
When I was a little girl, my mom had to
give me enimas very frequently. My whole
life, my schedule was once or twice a
week. In highschool it got worse.
After my daughter... it got UNBEARABLE! I
wouldn't go for 3-4 weeks. I would walk,
take stool softener and fiber supplements,
I would drink butt loads (lol) of water!
I would even give myself enimas with no
results! Finally, when the time came to
pass, it was the most painful experience
ever. I would be in the bathroom for 2
hours minimum, sweating, cramping severely
to the point of passing out and/or
vomiting. This is no way to live!
I had a barium enima (no sedation
whatsoever) and i will never do that
again! ouchie!
Diagnosis:
Redundant colon, multiple loops,
especially on the left side.
Solution:
Miralax
Results:
For the most part, so long as I take
miralax everyday, I can produce bowel
movement every 1-4 days. If I don't take
it, I will get the god awful painful
cramping!
I wish I didn't have to take miralax
everyday. I wish I could have the
multiple loops on the left side chopped up
in a blender!!!!! Get the loops out of
me!!!
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