Hypopituitarism - Sec. Hypothyroidism - Need Help! Posted: 04-26-07 05:49am
Hi there. First at all, sorry for my bad
language. I will try to be understandable
as I can.
Im 25years, male. I have a problem and
many symptoms that brings to thyroid
disorders - hypothyroidism... I v been on
diet and diet for few years... and i v
been on the border of serious anorexia. So
I solve this problem myself. Im 166cm and
have 48kg (almost anorexia)... So, this
was about 2 years ago. Im 62kg at the
moment. so... got weight gain. I had
ortorexia too! I have all these symptoms:
fatigue, lack of energy, mood swings,
fluid retention, weight gain, cold
intolerance, very cold feet, decreased
memory - concentration, depression, low
motivation-ambition, very brittle nails
and slow growth, thiny hair, very slow
healing, very low sex drive - libido,
erectile dysfuntciton, muscle weakness,
and the last thing, most important -
vision problems. I think that vision
disturbance is getting worse from year to
year! So... I have been to my doctor, and
he take TSH tests. In a few days, he says
that im fine with TSH. (2.3). But I knew
there is something wrong with me, and that
I did not fell the way i felt about 5
years ago. So i decided to go to another
doctor, but not my primary, couse he
wanted to give me some antidepresant. Im
from Slovenia actually, and I decided to
go to Ljubljana to hospital poly-clinic to
take a whole Thyroid tests... and...
here's my thyroid results:
There is written down on a paper that I
have Secondary Hypothyroidism, and I ll be
called to a hospital for hospitalization,
to check and test for primary cause
because my thyroid insuficiency. I heard
from one of the doctors that may by
Pituitary gland problem. I have just read
on the internet about Pituarity gland,
hypopituitarism and about tumors.
Im going to hospitalization in about 14
days. And till the date i was wondering
what is really happening to me? How
posibility is there that i have a
pituitary tumor. I have never had any
headache, but my vision and sex libido...
is 'suspicious'. ..Can somebody tell me
some experience about it, and what you
think?
I will be greatful for any of your answer,
help and support.
Thanks again! and I hope I will be live a
normal healthy life soon.
Regards,
Luke from Slovenia
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Michele333
New User, Becoming EHEALTHy
Joined: 27 Apr 2007 Posts: 4 Location: NC
Hypo Pit- Posted: 04-27-07 14:12pm
Hi, first off I should inform you that I
am nothing close to a doctor nor am I very
educated about the whole pituitary thing.
I have recently been dx'ed as having a pit
tumor at 5mm in size as well as a pineal
gland tumor at 8.5mmx13mm, along with
thyroid cysts and other crap.The first
thing my dr did for me was of course blood
work, have they checked your prolactin
levels? That is the main one for testing
for tumors. You have a lot of my same
symptoms. i have had weird weight gain and
loss, the coldness, bad bad headaches,
seeing double, mood swings etc etc...Have
you ever gotten a MRI or CT scan of your
head? those are the main things they use
to see the tumors. Supposedly pit tumors
are pretty common, only certain people
actually feel the effects of them.
Everything that I have researched suggests
that they can be larger in men because of
the later symptoms. Women usually lose
their monthly's and have breast discharge
but men can lose their sex drive and also
have breast leaking. I would defiantly go
and see your endocrinologist or specialist
ASAP, especially if you are having vision
problems. the pit tumor can only really
grow upwards into your eye nerves causing
the vision problems. I know my dr sent me
to an eye dr for a field vision test to
see if I had lost any vision as well as
dilating my eyes to check the pressure in
them. One of the main symptoms of a pit
tumor is visual disturbances and
headaches. I think with you already having
thyroid problems, you may be predisposed
to having to deal with other problems. It
is my understanding that one gland can
stop another or vice versa. The body's
level of homeostasis is all out of whack
and it can all get messed up. Be your own
advocate and research and ASK QUESTIONS
and seek the answers! The internet is full
of good sites with good information on
these things. i would try to help you on
your lab results but our system is way
different in the US. I wish you the best
of luck! Michele
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lukahafner
New User, Becoming EHEALTHy
Joined: 26 Apr 2007 Posts: 4
Re: Hypo Pit- Posted: 04-27-07 14:37pm
Thank you michele, really..thanks!
ok... i said that im goint to
hospitalization in about 14days. so, there
will be made predisposition of main
problem- cause. i have read and read and
read all the info about thyroid, pituitary
and those stuff, iv read even whole
Wilsons Temperature Syndrome book and
manual. But there are always questions
that u cant find. So im wondering if could
still be a tumor, IF i never had
headaches!?? Just my vision is getting
worsen from year to year, and low sex
drive too. I also forgot to tell that im
having a strange symptom - sign on my
penis. it's some kind of sores on my penis
just below gland penis on the left side of
outer foreskin layer. Those sores I have
for about 3 years, and any kind of
ointment did not heal my problem. There
are actually a few days severe sores that
makes a little pain (light 'sting') and
then follows the very mild feelings or
nothing at all. Do you know any
information or experience about this
problem?
I think this is a sign of a tumor or
cancer or something serius thing.
Thanks gor help. I will be greatful any
help and info. Thanks again all of u.
Regards,
Luke
|
Michele333
New User, Becoming EHEALTHy
Joined: 27 Apr 2007 Posts: 4 Location: NC
Posted: 04-27-07 14:50pm
No problem! Have you ever been checked for
Diabetes? there are many different
kinds... Sometimes that makes people have
sores that don't heal right or are just
open wounds for quite sometime. I don't
know too much about it, especially since I
don't actually have a penis haha..So you
have NEVER had headaches? That is a good
sign i am guessing..
Beyond that I would definitely ask your
dr, push them to answer you or to find
answers for you. I know alot of people
with hormonal problems and many are led to
believe that it is all in their heads
until one day Bam- there really is
something wrong. Sometimes blood work and
tests of any sort can be either done
wrong, or the thing that is really there
just does'nt show up for whatever reason.
Just stick with it and push your drs to
help you, that is what you are paying them
for. If you are finding that you feel
uncomfortable with the answers they are
giving you or you feel that they are
brushing you off, get a second opinion.
That is your right as a patient. I don't
know what kind of laws you have over there
but I know it is that way here. You can
request your lab results and films and
whatever else, up to a complete copy of
your medical record. Perhaps if you feel
failed by your current dr then get a copy
of everything and find another if
possible. I hate that I can't help you out
more than some general advice but I hope I
helped you some. I do know that sitting
around worrying about things and picturing
all the bad possibilities can only expend
your energy in other places than where you
should be directing it, on getting better.
I know how easy that advice is to give but
I also know how valuable it really is to
try to do. Feel free to email me or keep
chatting on here if you would like. Good
Luck!
Michele
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lukahafner
New User, Becoming EHEALTHy
Joined: 26 Apr 2007 Posts: 4
Hi Posted: 04-28-07 01:58am
Hi Michele. Thanks for those hints.
OK, i know that is a good sign, couse i
have never had any headaches.
Maybe is this so, because i eat very
healthy food,?
And i repeat you again: do you think there
is still posibility to have tumor if i
never had any headaches?
Hm..diabetes? ok, i can tell you my
--blood sugar-- results = 4.4
Is this blood test result enough to show
me, that it's all fine about diabetes?
i will remember those hints about doctors
and requests. very good. and i agree with
you about energy and psyche. how old r u,
michele? and where r u from? can you tell
me something more about your tumor,
symptoms etc.?
Cya
Luke
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lukahafner
New User, Becoming EHEALTHy
Joined: 26 Apr 2007 Posts: 4
Re: Hi Posted: 04-30-07 03:04am
hi michele..
a nurse from other forum told me, that i
could have this disease:
and one last question:
what is the cause for pituitary tumour? i
read that the cause is unknown.
is it possibly that my cause is stress,
yoyo diet, overtraining, and all thinks
from my past 5 years?
thanx
cao
Luke
|
Michele333
New User, Becoming EHEALTHy
Joined: 27 Apr 2007 Posts: 4 Location: NC
Hey Posted: 04-30-07 08:43am
Hey again, I suppose there is always a
possibility for anything to going wrong,
we are only humans, of course
over-thinking that you may have a major
disease is sort of a doorway to becoming a
hypochondriac, ya know, so I hope for your
sanitys sake that you don't overdo it but
then on the other hand you have to
vigilant to figure some stuff out for your
self. I know for me, reading information
about some things makes me think that I do
indeed have that rare disease or something
but then my common sense has to kick me in
the butt to make me come to my senses.
Like I said before I am still a newbie to
all this tumor stuff, I found out about my
first tumor in Dec 06 right before Cmas,
but they failed to tell me about my second
tumor untill 4 months later, which really
makes me mad at them. But that is beside
the point, You could possibly still have
something majorly wrong with you but not
have any major symptoms, alot of the
really hard to find diseases or illness
can sort of hibernate until they really
come out in full force ya know...About the
headaches or your lack there of, may just
be something you have never had or you may
have a high tolerance for pain as well, I
am not sure. I can tell you some about
me..I am 28 years old, I live in North
Carolina, on the eastern side of the US. I
have a anterior right sided pituitary
tumor, measures 5mm, I am guessing all the
way around, and I have a 8.5mm x 13 mm
pineal gland tumor too. I have found out
since then that I have kidney cysts,
thyroid cysts, among other "little"
problems ,which I have to go and have
biopsied soon. My major symptoms were
headaches which have since then gotten way
worse, loss of my period for almost 2
years, just plain tired all the time, I
was cold all the time, even in our 80
degree weather we have here now, loss of
sex drive, breast lactation when my
youngest child is already 5 years old.
Moodiness and irrabiilty, way worse than
normal for a woman =) memory loss, and
vision problems. I am a photographer so I
think I may of noticed the vision problems
eariler than most people would, mine were
just out and out double vision sometimes,
bluriness on the edges of things,
increased brightness to everything. I
think the vision, headaches and menstral
cycle disruption are the most common, of
course in men impotence or low sperm count
as well as loss of sex drive comes into
play. Men can have breast discharge as
well, I have read that most men with these
type of tumors don't show that many
symtoms for either the reason that you
guys deal with physical pain better or
hide it, or a man does'nt have the
immediate loss of periods or something
that women deal with every month , ya
know...so when men do get dx'ed then their
tumors are usually bigger b/c of the
timing about it, Does that make sense? I
hope so. Now..about the link you sent me,
I have never heard of that, but I do plan
on reading in a few minutes in more
detail. The cause of tumors are really
unknown, just like cancer. Some of the
things I have read suggest everything from
a sort of birth defect, to enviromental
causes. Some people just get more sick
with them too, they are supposedly common,
I don't know a single person with anything
like this..and they are usually found
during autopsies so who knows really. I am
thinking mine all started about 3 or 4
years ago. I have never really been one to
really take care of myself cause I was
always too busy doing for everyone
else...So I think the stress levels and
all that take part in it too. I do know
that I have never felt worse or older in
my whole life, and that includes breaking
bones and childbirth. I am constantly sick
to my stomach b/c of the meds and I have
no energy, I have two little girls ages 9
and 5 and work a full time job and go to
college so I need all the energy I can get
and it is just not there, no matter how
much coffee I drink or how much I
excersice. I don't really know what to
think about all of it yet, I am still in
shock sort of. I think thou if you are
feeling bad and not getting the answers
from simple blood work, maybe you can
request more in depth work ups..how does
your countries medical policies go, are
you all on a universal system or do you
have to have medical insurance? I know
that issue has been a struggle for me. I
hope maybe something I said in this big
ramble made sense, please feel free to
email me personally if you would like to
talk off these boards. My email is on
esimplegurl00@yahoo.com
take it easy, Michele
