Fatigue is a consequence of hepatitis, but, if you think that you feel more tired than it was normal, you should see your doctor. MAybe he can prescribe you a better diet plan or so.

i took not well this time last year and finally i got diagnosed with Autoimmune Hepatitis in march. been on steroids for the last year to try and cure it, when i was on my 40mg of prednisolone a day, i was up and have a buzz about me and wanted to just run and run and run, as i started going cutting down on them i was feeling a lot more tired, then i got jaundiced again, then went back upto 40mg and im absolutly knackerd, feel tired permanantly, and lost the will to do anything, slee all day and up all night.

alex, my story is EXACTLY the same... and its starting to really run me down. to make matters even worse, the steriods blessed me with an extra 30 lbs... is anyone finding any relief from the fatigue or the weight???????

littleone25, iv always been about 15/16 stone, but i went upto almost 19 now im back to 15.

im looking to lose a bit more, though my stomach is full of stretch marks and have alot of spots round my heart area. and its gettin me down.

still having problems with the fatigue, sometimes just sitting down i need to take some deep breaths.

My mom is in the Green hospital because of fluid on the lungs. Could this be caused by her autoimmune hepatitis? She had breast cancer surgery nine years ago, also. Right now the doctors are draining out the fluid and running tests on it. We don't have any results yet. Her EKG showed a good pumping heart, so they did the sonograms on her other vital organs and got no information from it. She has been tired, and has had different infections over the last three months: sinusitis won't go away, so they did the needle thing up in there, then she immediately developed a bladder infection, suddenly couldn't breath, and was accepted into the hospital with fluid in her lungs. Anybody want to comment on this or give me any info.? I will post again tomorrow. Everybody take care of yourselves.

My mom came home today on an oxygen tank. We got the bad news today, after they did a CAT scan of her entire body they found cancer in both lungs with visible nodules in one, cancer in right inner pelvis bone, cancer in base of spine. They say it is breast cancer cells, so it traveled over the years through lymph nodes. But she had the 5 years of Tamoxofin, suffers with lower leg nerve damage from it, and has been checked regularly, and they only found this now, after the CAT scan. The only reason I still post in Auto immune hepatitis area is I said I would post today, AND I am wondering how the intensive chemotherapy will affect the auto immune liver. Doctors said the medication for the liver problem may be too strong, thereby resulting in the infections, but now it is just one of her worries. First thing she did is ask for her antitoxin juice in a glass with multivitamins and vitamin E supplements. I cooked an Ethiopian recipe of vegetarian lentils, and she had two bowls of it, says she didn't eat a bite of the hospital food. We are gonna do all we can to promote her health and fight the disease. Bless you all.

I was diagnosed with autoimmune hepatitis in December 2006 after suffering with flu-like symptoms for a few weeks. Eventually, I became jaundice and blood tests revealed alarming liver enzymes (sgpt & sgot) close to 2000! Normal liver enzymes are typically below 40!

I was hospitalized for almost two weeks and was started on steroid therapy. The prednisone caused my enzymes to initially decrease while creating all sorts of side effects, including facial swelling and sleeplessness.

About two weeks into the prednisone treatment, my enzymes started to increase again and I was referred to a liver specialist. I credit Dr. Maliakkal, located at Strong Memorial in Rochester, NY, with saving my life and liver!

In addition to prednisone, I was started on Cellcept, an immunosupressant. As a result, my enzymes rapidly decreased and within three months of my diagnosis, my prednisone levels were lowered and I returned to work.

Now after a year and a half, I am feeling well and enjoying life! I am off prednisone completely (Thank God) and am on a small dose of Cellcept. Although there are possible risk factors associated with Cellcept, I have tolerated it quite well.

I want to offer hope to those of you recently diagnosed with this relatively unknown disease. I went through a major depression and terrible anxiety when first diagnosed. (The depression and anxiety were also heightened by the prednisone. I reluctantly went on 10mg of Paxil and was surprised at how helpful the Paxil was at calming my fears.)

This disease is treatable and the prognosis for most people with autoimmune hepatitis is the same as the general population if properly monitored and treated.

Please feel free to ask me questions or share your experiences. I would love to help those who are going through what I am! Have hope! You can survive this thing!!