Joined: 08 Feb 2007 Posts: 3636 Location: Orlando, FL Usa
Thanks: 5
Thanked:2
Hello Posted: 04-23-07 20:28pm
I was interested to see if anyone knows
how this is diagnosed. I have never heard
of it. However, I seem to have many of
these symptoms in common. Are there any
others on here that have been diagnosed
with it?
I am now 22. I have sleep apnea (which is
when you stop breathing when you sleep)
this stops me from getting into my deep
sleep to repair my muscles which leads to
fatigue and chronic pain in my joints
mostly my knees, hips, and shoulders. I
also have IBS (irratible Bowl Syndrome).
I have an MRI scheduled for tomorrow
because I passed out two months ago and I
now have ringing in my ears. All in all,
there isn't much medically speaking that
can be if you are diagnosed. What I have
learned is to make life style adjustments.
Getting lots of sleep, eating healthy,
exercising, and staying positive. I have
my good days and my bad days..
So hopefully you have a good Dr. and can
explain to them what your symtoms are.
But i am here to support this forum and
you can PM anytime.
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princessnae
Experienced User , Rather EHEALTHy
Joined: 17 Apr 2007 Posts: 90
I Forgot to Mention Posted: 04-23-07 23:06pm
As you said you weren't familiar with FMS
not many people are. So do not take
"nothings wrong with you" for an answer.
It is a real condition not something that
is in your head. You may as I did, have
to go to several Dr's before you can get
an answer.
My Grandmother was a Nurse and it took her
two years to start to believe what I had.
And more and more research has been done
on FMS.
Also do a search online there is a ton of
information about it.
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mc4ever02
Supporter
Joined: 08 Feb 2007 Posts: 3636 Location: Orlando, FL Usa
Thanks: 5
Thanked:2
Posted: 04-24-07 10:25am
Thank you very much for the info. I
have/do have many problems that no one can
explain. It is very frustrating. I get the
"your young, i'm sure it's not that bad"
or "At your age, that shouldn't be an
issue". It is very frustrating.
I have recently found a neurologist that
is wonderful. He has diagnosed me with
trigeminal neuralgia. As bad of a
condition as that may be, at least I know
what it is. And someone finally took me
seriously.
There are still many other problems that
have not been addressed. Are you aware of
if this condition would have an impact on
blood pressure at all? I know its a long
shot, I'm just reaching...
Agian, thank you for your reply.
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mc4ever02
Supporter
Joined: 08 Feb 2007 Posts: 3636 Location: Orlando, FL Usa
Thanks: 5
Thanked:2
Posted: 04-24-07 10:31am
I forgot to ask...Do you know if it is
hereditary? My mother has recently been
diagnosed with lupus. She has discuss some
of my issues with her rhumo doctor and he
is interested in seeing me. So hopefully I
will eventually get some
answers...Hopefully.
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princessnae
Experienced User , Rather EHEALTHy
Joined: 17 Apr 2007 Posts: 90
I Don't Know Posted: 04-24-07 23:41pm
They really don't know if it is
hereditary. But lupus is. FMS has alot
of the same symptoms as lupus, arthritis,
chronic fatigue syndrome, among others.
I am glad you that it sounds like you have
a good Dr. and lots of people in your
corner. I hope your mother is well, lupus
is tricky disease but many people live
happy, health lives with it.
And by the way, I have heard of lots of
people that have been diagnosed with both
lupus and FMS. Some of the symptoms
overlap.
Good luck and let me know how everything
goes.
Jen
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mc4ever02
Supporter
Joined: 08 Feb 2007 Posts: 3636 Location: Orlando, FL Usa
Thanks: 5
Thanked:2
Posted: 04-25-07 07:07am
Thank you for your well wishes!
I am very fortunate to have a wonderful
support group of family.
I will definitely let you know how things
go.
Agian, thank you for your help.
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Keithanne
New User, Becoming EHEALTHy
Joined: 12 May 2007 Posts: 3
Posted: 05-12-07 16:29pm
I was diagnosed with fibromyalgia when I
was 21 years old. That is close to 25
years ago. I also first had the stiff,
sore neck which in time became unbearable
painful. I would wake up over and over
again at night with my neck hurting so bad
I would cry. I was already married and had
a 1 year old daughter at the time. Next
came my wrists and then my knees. It took
quite a few dr. appointments and finally a
specialist in arthritic diseases diagnosed
me.
I also have irritable bowel syndrome,
which is common with FMS. I have
remissions that can last for up to a year
and then super bad 'bouts' of painful
joints and/or IBS.
My Dad has been diagnosed with Chronic
Fatigue Syndrome. Perhaps my FMS is
inherited? I also have a sister with IBS
but she does not have FMS.
It's a very painful disease, hard to
manage and treat and also hard on you
mentally and emotionally. I haven't found
anything that really helps a lot but
rather a lot of things that help a little
bit!
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princessnae
Experienced User , Rather EHEALTHy
Joined: 17 Apr 2007 Posts: 90
Thanks For Sharing Posted: 05-13-07 23:06pm
Thanks so much for sharing.
I completely agree. I have found the same
thing, that there are alot of things that
help alittle. I go through phases too,
where things are great then I start to
flair up. Right now, it's bad. Mostly
the stress from school, work, boyfriend,
ect.. which starts to add up and take a
toll on my body.. So this week I will be
working on chilling out and work on
feeling better.
Thanks again.
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Ebabe14
New User, Becoming EHEALTHy
Joined: 14 May 2007 Posts: 21 Location: Phoenix
Fibro... Posted: 05-14-07 01:22am
Fibromyalgia is a syndrome characterized
by severe muscle pain, tender body points,
disturbed sleep, depression, fatigue, and
anxiety. It is often difficult to
diagnose, because symptoms can vary in
severity and mimic other chronic
conditions such as Chronic Fatigue
Syndrome and Lupus. Approximately 3.7
million Americans suffer from fibromyalgia
to some degree, and about 90% of the cases
occur in women.
Doctors seem to do a pretty poor job of
dealing and treating this condition...I
hope for your case it is not, I am a Fibro
sufferer but I have found some success in
combatting it.
# Alternative therapies such as
acupuncture and biofeedback have proven to
be helpful.2
# Join a support group that deals with
chronic pain.
# Try therapeutic massage. Look for a
massage therapist that specializes in pain
disorders. Getting a traditional,
deep-tissue massage from a health spa may
end up being extremely painful.
# Try meditation, guided imagery,
relaxation, and breathing techniques.
These are all great techniques for coping
with pain.
# Do whatever it takes to avoid stress in
your life. The symptoms of fibromyalgia
are severely aggravated by chronic or high
levels of stress.
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exodus_152
New User, Becoming EHEALTHy
Joined: 02 May 2007 Posts: 40
Fibromyalgia Info Posted: 05-22-07 19:15pm
Fibromyalgia can be a very disabling
disease that even medical doctors tend to
minimize at best. Few people can
understand that even modest pressure on a
trigger point will cost that person pain
for weeks.
The info posted so far is a good starting
point for you. You should be aware that
Fibromyalgia and chronic fatigue syndrome
tend to run hand in hand although finding
relieve from the fibromyalgia is usually
easier.
Symptoms can be relieved by maintaining a
strict diet that eliminates the foods you
may be sensitive to. Some people find
supplementing with malic acid / magnesium
supplements help dramatically. Eliminate
wheat and gluten from your diet generally
helps all that are afflicted - but it
takes up to 10 weeks or more to really see
the difference. Cheating starts the clock
all over so if you try it do 100%.
Probiotics may help some people, try
drinking Kombucha tea. Brew your own and
save big money you can get a starter
culture.
Sleep does make a difference as well,
consider trying L-theanine (from green
tea) before bed it really helps you get a
better nights sleep. Vita cost is as cheap
and good a place as I have found to get it
although it is available at most health
food stores - just don't confuse it with
L-threanine No "r" in the right one.
God bless and good luck!
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dave01
Experienced User , Rather EHEALTHy
Joined: 04 Jul 2007 Posts: 61 Location: Iowa
Posted: 07-05-07 15:53pm
In my case I started getting worsening
insomnia last October. In November I
developed increasingly intense pain in my
upper back. By December it was in my head
and shoulders. I saw many, many doctors
and all the test came back fine, fine,
fine. They finally decided I had
depression and I saw a psychologist who
told me up front that my pain was real,
genuine, physical pain and not
pschosomatic or the result of depression.
Shortly after that I developed pain at the
trigger points of fibromyalgia.
It is treatable. I am taking Neurontin
and Cymbalta for the pain and Temazapam
for the sleep and am now relatively
functional again. Each person seems to be
different and it took months before I
found medicine that actually helped me.
Don't give up.
