Joined: 05 Dec 2005 Posts: 22 Location: , Indiana U.S.A.
Thanks: 0
Thanked:1
Unexplained Pain For Over a Year..help!! Posted: 04-22-07 19:35pm
It started out hurting right above my left
shoulder blade. Then along with the pain
my left pinkie finger, ring finger, and
palm went numb and they have been for a
year. Now I am having shooting stabbing
pains in my neck, back of my head, ears,
temples, on top of my head and in my jaw.
I have been to doctor after doctor from
Neurologists to pain management doctors to
chiropractors and nobody can find whats
going on or give me any real relief from
the pain. I can only take the pain meds
that give me a small amount of relief at
night because I work 40 hours a week and
then on the weekends I don't take them
because when I do I fall asleep and I
don't want to sleep my life away. So I am
basically living in pain almost constantly
and it's getting worse. I went to the
E.R. a couple of nights ago because the
pain in my ears and temples got to be
unbearable. The first thing they did was
check for an ear infection and the doctor
said my ears look perfectly healthy and
there was no infection. He also did a
throat culture for strep as my glands are
swollen and my throat looked raw but that
can back negative too. I also have
terrible restless leg syndrome that
started around the same time the other
symptoms showed up. Has anyone ever heard
of anyone else having this array of
symptoms? I would be truly greatful if
anyone out there could think of something
that my doctors might have missed. I am
so sick of this horrible pain. And by the
way, I did get an injection of Demerol at
the hospital and although it took the edge
off the pain for a few hours, it didn't
take it completely away. Thanks in
advance for any help anyone might
have...Stacy
|
mc4ever02
Moderator
Joined: 08 Feb 2007 Posts: 3636 Location: Orlando, FL Usa
Thanks: 5
Thanked:2
Posted: 04-23-07 19:35pm
What did the neurologists have to say? Did
they run any tests?
It sounds as though your condition is
neurological.
Keep us posted on your progress!
|
stacylady
New User, Becoming EHEALTHy
Joined: 05 Dec 2005 Posts: 22 Location: , Indiana U.S.A.
Thanks: 0
Thanked:1
Finally Getting Answers Posted: 07-20-07 19:18pm
Well it is now July and I have finally
started to get some help but my symptoms
had to get much worse for someone to
really pay attention. I have progressed
form the shoulder/ear/temple pain and
restless legs to restless everything.
Seriously, it moved form my calves to my
entire leg in both legs, my hips and my
arms. It also progressed from just
restlessness to muscle spasms, twitching,
cramps and my newest symptoms: the feeling
that someone is hammering bolts into the
bottom of my feet, not being able to put
my head forward towards my chest and every
time I eat anything at all it feels like
my stomach muscle is going to explode. I
went for a sleep study Tuesday night and
had to leave around 1am because the pain
was so excruiatiog. I went to the doctor
Thursday and he told me he is really
worried about me and that he would find me
relief immediately and ordered a bunch of
tests. I am waiting on test results. He
also prescribed me Darvocet, Prednizone
and Soma with asprin and Codeine in it. I
expressed concern about all the narcotics
but he reassured me that it would be
temporary and that he just wanted me to
get some relief form the symptoms so I
could get some sleep. (I was averaging 2-3
hours a night for quite some time and my
job and family were suffering over it).
In the diagnosis on the blood work sheet
he wrote Polymyalgia. I had a friend who
is a nurse look it up for me and all it
means POLY=all or every and
MYALGIA=muscles. So that is where I am at
today. Anyone else with a simular story I
would really love to hear form them or
just if you have knowledge about these
symptoms because I am getting quite
worried and really need a bit of
reassurance. I am a wife and mother to 4
children and 3 step-children that we are
also raising full time, I work a full time
job and of course enjoy a lot of hobbies
outside of everything else and I am
worried about what kind of changes I am
going to have to make in order to cope
with this thing that I have. Any
encouraging words would be greatly
appreciated....Thanks and God
bless...Stacy
|
sillyakchick
Moderator
Joined: 12 Apr 2007 Posts: 2688
Thanks: 5
Thanked:0
Posted: 07-25-07 09:28am
You have been through so much! I am glad
that your physicians are finally taking
notice and doing something about your
condition. I would hate to specualte as
to the cause, but a few thinggs jump to
mind such as MS, Rheumatoid arthritis,
Reflex Sympathetic Dystrophy, or
Parkinson's. I hope you find out what the
problem is! Please keep us posted as to
what you find out!
|
stacylady
New User, Becoming EHEALTHy
Joined: 05 Dec 2005 Posts: 22 Location: , Indiana U.S.A.
Thanks: 0
Thanked:1
Thanks Posted: 07-25-07 09:41am
Well, the blood tests are in and they
showed nothing. Now my doctor is sending
me to a rheumatologist. I have gotten a
little relief and sleep but hope an answer
is found soon. My boss gave me the week
off to just take the meds and rest. Just
getting a little more sleep is bringing
improvement. Will keep you
posted...thanks..Stacy
|
AshNine
New User, Becoming EHEALTHy
Joined: 26 Jan 2008 Posts: 6
Posted: 01-26-08 18:45pm
have you had a neck or upper spine mri
yet?
|
Galaxy
Supporter
Joined: 15 Mar 2006 Posts: 512 Location: U.K,
Thanks: 5
Thanked:0
Posted: 01-26-08 19:19pm
I have the neck, shoulder, arm, palm and
last two fingers situation too - I have
been in extreme pain for several months
with this and after a steroid injection
into the shoulder I now feel a little
relief. However, I have had
Physiotherapy, blood tests, x-rays, MRI
and am now awaiting a nerve conduction
test. I was informed by an orthopoedic
specialist that I have cervical
spondylitis but he did not think this was
directly causing the shoulder problem. He
thinks it is definitely neurological and
that it will probably require an operation
to release the trapped nerve. However,
nothing can be done till I see the
neurologist.
I sympathise with you and the despair you
feel. I imiagine that you, like me,
become sensitive to the looks that pass
between friends when they hear that you
are not well again and you get to the
point where you don't want to talk about
it any more. But this forum can help as
you will find many sympathetic people
here.
One thing occured to me - you seem to have
a huge remit. Can you delegate some of
your load to others? That, combined with
the fact that you are seriously sleep
deprived and exhausted, could certainly
contribute to some of the muscular pain
you have been experiencing. Take the meds
every night - take the codeine early
enough not to impact on your working day.
Ask your doctor about Amitriptylene too,
as that , in small doses taken at night,
will relax your muscles, solve the
restless leg syndrome and encourage
restful sleep.
