For the past 12 months or more I have had increasing bowel problems that are wearing me down so much. I am in almost constant severe pain, lost 3 stone in weight, had just about every test imaginable that all show ok except I was shown to have gallstones. I eventually had my gallbladder removed 6 weeks ago. The surgeon was convinced all the other bowel problems I'd had was due to this, I wasn't convinced. My gallbladder was full of pus & I had a large stone blocking my bile duct when they opened me up. Some blood & pus also leaked onto my liver causing severe pain afterwards. However I have recovered well from the surgery & thought that wuld be the end of my symptoms but it appears that I still have all the bowel symptoms apart from I no longer have the gallbladder attacks. I have tried every diet even a total exclusion diet. They seem to work for a while but at the moment if I eat anything I am in severe pain, so am just eating enough to get me by. I will list my symptoms as they are so varied:
Severe abdominal pain, sometimes above pubic bone, sometimes at waist sides, sometimes centre of ribs but usally are cramp like pains.
Diarrhea but not always, I can have the pain without it.
Sickness or nausea.
Very pale yellow stools.
Sometimes orangy very loose oily diarhea.
Pain starts half an hour after eating, could almost set clock by it.
I am at the end of my tether with it, dr's have no answers, I have had to be rushed to hospital in pain several times. I am now convincing myself it is somethng sinister. I am on the verge of losing my job due to the time I have had off & also because I have become violently ill while working.
I have read the post about what celiacs is & read other info on the net. When I tell peole my symptoms they always say have you got a problem with gluten or do I have celiacs.
When I had biopsies from my bowels they came back ok, I have had loads of blood tests & I know 1 has been for celiacs but still came back ok.
When I have had a bout of thr pains I have tried following a gluten free diet & had no pain but also I have had no pain when eating gluten when not having a bout of problems.
Does this sound anything like celiacs, is it possible to have pain eating gluten one day but not the next?
Is it possible for the tests I've had to come back k but still have a problem?
Advice desperately needed!