I am very excited to introduce this new
forum. Fibromyalgia is a topic that
unless you are afflected by it or know
someone that is you may not know much
about it. Heres a little bit of
information about FMS. Please tell
everyone that you know about this forum I
am here to help!!
Fibromyalgia Syndrome is also known as
FMS. Unfortunately for those afflected,
FMS does not show up on any routine
medical exam.
To meet the fibromyalgia criteria for
diagnosis, patients must have:
A. Widespread pain in all four quadrants
of their body for a minimum of three
months
B. At least 11 of the 18 specified tender
points
minimum of three months
B. At least 11 of the 18 specified tender
points (see diagram*)
The 18 sites used for the fibromyalgia
diagnosis cluster around the neck,
shoulder, chest, hip, knee, and elbow
regions. Over 75 other tender points have
been found to exist, but are not used for
diagnostic purposes.
The primary symptoms of fibromyalgia
include widespread musculoskeletal pain,
severe fatigue, and disturbed sleep.
Fibromyalgia means pain in the muscles,
ligaments, and tendons – the soft
fibrous tissues in the body.
Other common symptoms include:
fatigue
irritable bowel (e.g., diarrhea,
constipation, etc.)
sleep disorder (or sleep that is
unrefreshing)
chronic headaches (tension-type or
migraines)
jaw pain (including TMJ dysfunction)
cognitive or memory impairment
post-exertional malaise and muscle pain
morning stiffness (waking up stiff and
achy)
menstrual cramping
numbness and tingling sensations
dizziness or lightheadedness
skin and chemical sensitivities
|
NWKC
Experienced User , Rather EHEALTHy
Joined: 21 Apr 2007 Posts: 134 Location: The States
I am very excited to
introduce this new forum. Fibromyalgia is
a topic that unless you are afflected by
it or know someone that is you may not
know much about it. Heres a little bit of
information about FMS. Please tell
everyone that you know about this forum I
am here to help!!
Fibromyalgia Syndrome is also known as
FMS. Unfortunately for those afflected,
FMS does not show up on any routine
medical exam.
To meet the fibromyalgia criteria for
diagnosis, patients must have:
A. Widespread pain in all four quadrants
of their body for a minimum of three
months
B. At least 11 of the 18 specified tender
points
minimum of three months
B. At least 11 of the 18 specified tender
points (see diagram*)
The 18 sites used for the fibromyalgia
diagnosis cluster around the neck,
shoulder, chest, hip, knee, and elbow
regions. Over 75 other tender points have
been found to exist, but are not used for
diagnostic purposes.
The primary symptoms of fibromyalgia
include widespread musculoskeletal pain,
severe fatigue, and disturbed sleep.
Fibromyalgia means pain in the muscles,
ligaments, and tendons – the soft
fibrous tissues in the body.
Other common symptoms include:
fatigue
irritable bowel (e.g., diarrhea,
constipation, etc.)
sleep disorder (or sleep that is
unrefreshing)
chronic headaches (tension-type or
migraines)
jaw pain (including TMJ dysfunction)
cognitive or memory impairment
post-exertional malaise and muscle pain
morning stiffness (waking up stiff and
achy)
menstrual cramping
numbness and tingling sensations
dizziness or lightheadedness
skin and chemical
sensitivities
well done! they need a clapping emot...I
applaud you!
|
princessnae
Experienced User , Rather EHEALTHy
Joined: 17 Apr 2007 Posts: 90
Introducing Myself- Jen the Fibro Supporter Posted: 04-24-07 23:48pm
Hi, my name is Jen. I was diagnosed in
the fall of 2001 when I was 17 and still
in high school. I had been sick, I could
not turn my neck, and passed out so I went
to the Dr. To be tested for a ton of
different things. Eventrally I was sent to
a Rhematologist at Valley Children's
Hospital and was diagnosed with fms after
being tested for an array of things
including lupus. Basically there are
several different pressure points in your
body. There are 18 specific spots or
tender points that they push on to see if
you are sensative in those areas. I
personally had increase sensitivity to 17
out of 18 the most he had seen. In the end
that Dr. Told me that there was nothing
that he could do for me. Five years ago
there wasn't as much information about FMS
as there is now. Unfortunately, there are
no traditional medical tests that can
diagnose fms which is why it is nicknamed
"the invisible disease".
I am now 22. I have sleep apnea (which is
when you stop breathing when you sleep)
this stops me from getting into my deep
sleep to repair my muscles which leads to
fatigue and chronic pain in my joints
mostly my knees, hips, and shoulders. I
also have ibs (irratible bowl syndrome). I
have an mri scheduled for tomorrow because
I passed out two months ago and I now have
ringing in my ears. All in all, there
isn't much medically speaking that can be
if you are diagnosed. What I have learned
is to make life style adjustments. Getting
lots of sleep, eating healthy, exercising,
and staying positive. I have my good days
and my bad days..
I am here to help. So please feel free to
pm me.
|
mtnchev
New User, Becoming EHEALTHy
Joined: 01 Jun 2007 Posts: 1
Just Found Out Posted: 06-01-07 10:27am
Hi Jen. I just found out that I have this
dreaded stuff and I'm in the early stages
of learning about the diet thing, lack of
sleep, and so many other pains and
physical and emotional issues. Oddly
enough and I'm thankful to the Lord for
it, I've always worked out and tried to
eat right. That is why it took years and
years of having pain before I finally gave
in and went to the Dr. I would like to
hear of any food do's and dont's or any
other help you or anyone can provide. My
motto many years ago when I first figured
something was wrong was. "Fight Back".
It's all you can do.
|
MaggieH
New User, Becoming EHEALTHy
Joined: 23 Jun 2007 Posts: 6 Location: TN
Fibromyalgia Posted: 06-23-07 22:52pm
I have had Fibromyalgia for about 6 years
now but only found out about it after
seeing many specialists a year ago. I also
have a rare form of lupus.
The Fibro has become much worse as I have
aged. I have to struggle with the pain
daily. I am just attempting to learn how
to live with chronic pain and not let this
disorder get the best of me. Since
learning what I had I was able to pinpoint
exactly when the Fibro started and it was
right after I had been very ill will the
flu and bronchitis. All I can say is
educate yourself if you have this disorder
and don't give into it.
|
kmkat
New User, Becoming EHEALTHy
Joined: 03 Jul 2007 Posts: 7 Location: az
Posted: 07-03-07 01:30am
i am in the process of finding out what's
going on with me, i have been having
numbness, tingling, burning in my feet,
legs , hands, arms cheeks and upper lip
and random spot on my body hurt . i don't
sleep good, i have headaches and tmj iam
nauseated and lightheaded, i wake up tired
and stiff every morning. i went to see a
neurologist,he took some labs and
myCRP,sensitivity is high and my uric acid
is 10.8 but i don't have gout.my protein
is 8.2 my albumin is 5.2 my calcium is
10.9 .just all over fatigue. the
neurolgistis sending me to see a
rheumatologist. i am just so tired of
being tired.
|
MaggieH
New User, Becoming EHEALTHy
Joined: 23 Jun 2007 Posts: 6 Location: TN
Posted: 07-03-07 10:01am
Hi kmkat,
Glad to hear you are going to see a
rheumatologist and hopefully he will
diagnosis you. It took me along time to
finally find out what was wrong with me. I
was tired of being tired and not getting
any answers. It can be very frustrating.
Just hang in there.
|
Nikki242
New User, Becoming EHEALTHy
Joined: 07 Aug 2007 Posts: 2 Location: Ga
Fribro Posted: 08-07-07 22:16pm
I have been suffering from terrible back
pain for many years.Had a motorcycle
accident when a man I was dating wanted to
show off his "skills".Big Crash going very
fast.I was two years getting surgery after
surgery on my back and legs.I started to
drink everyday because it helped me get
thru the day.I stopped in 2001.Found out I
had Hep.C.I was fine for several years but
started losing
weight,sick,listless,apathy,depressed.My
pain seemed to double.I lost my
job.Couldn't sleep.I f I slept more than
20 min.s I would lock up and had to have
help turning over.It seems my hair hurt.
My friend Dana also had Hep C but then
found out she had Fribro.She is positive I
have it too.We match almost point to
point.
I went from the life of the party to
having to drag myself out of bed just to
eat.My Dr. did put me on Prozac and
methadone for the pain awhile back.It has
enabled me to at least have a few good
hours.
I thot I was going crazy ya'll!!! My heart
aches for those that have gone to Dr after
Dr knowing darn well something is wrong
but being blown off.
I need a chart to take to my Dr to show
him just where it hurts.I have one of
those Dr.s that pat your head and ignore
what your saying.Grrrrrrrrrr
|
MaggieH
New User, Becoming EHEALTHy
Joined: 23 Jun 2007 Posts: 6 Location: TN
Pain Chart Posted: 10-17-07 15:25pm
You can download pain charts on the net
fill then and take them to doctor.
|
bakin_april
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2008 Posts: 210 Location: state of confusion, usa
Beginning of Fibro Posted: 01-29-08 22:52pm
I've been diagnosed with fibro but have no
one to talk to about it. Hope someone can
help. . . my bouts with pain &
especially muscle weakness seem to come in
cycles and they occur after a few days of
feeling "off." Like I've got the flu
without a fever. The pain, tiredness,
headaches then last for several weeks. Is
this common? I have doubts that the fibro
diagnosis is correct given the attitude of
the dr. who diagnosed me.
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