Hello,
my 3 years old daughter was diagnosed with congenital blocking hydrocephalus when she was 8 weeks old. She was operated on right away and a shunt was placed, that is functioning well. She is developing very well, and is a happy, bright, articulate and above-average intelligent 3 years old. You would not guess by looking at her, talking to her or playing with her that anything is not 100% about her...
We have annual dr visits with the neurosurgeon, and at the last one he said she would have to be checked by a neuro-opthalmologyst before her next check-up. This is to prevent the need to have an annual ct, he said.
I am looking for any information available, to understand exactly what test we have to expect, and the connection between the test's results and her condition.
Thank you in advance for any information or experience you can share with us!